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An autoethnography on shifting relationships between a daughter, her mother and Alzheimer’s dementia (in any order)
- Author:
- MALTHOUSE Marina
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 10(2), May 2011, pp.249-256.
- Publisher:
- Sage
Dementia involves a challenging journey for family members. This is an autoethnography written by a daughter whose mother developed Alzheimer’s dementia a few years ago. Using personal experiences, it describes the part of her journey that signifies the shifting relationships with her mother. As a form of self-narrative where the author is placed within a social context, the writing within the autoethnography follows Ellis who suggests seeing through a wide-angled lens. This lens has been focused outwards and inwards with the aim of creating a text about shifting relationships and dementia. In its construction, meaning has been extracted from these experiences that help the author to stay aware of these relationships that can shift even further as her mother’s dementia moves deteriorates.
Side swipe at common practice
- Author:
- -
- Journal article citation:
- Community Care, 16.4.09, 2009, pp.24-25.
- Publisher:
- Reed Business Information
Discusses the case of a 87-year-old women with dementia who receives intensive daily support from a specialist services for people with dementia. The service allows her to continue to live as independently as possible in her own home.
Home care service for people with dementia: case study for the Housing Learning and Improvement Network
- Authors:
- RUSSELL Jeff, HOVEY Lisa, FAIRLIE Carole
- Journal article citation:
- Housing Care and Support, 8(3), September 2005, pp.17-21.
- Publisher:
- Emerald
This case study gives an example of a pioneering, specialist home care service for people with dementia living in their own homes in the Borough of Poole in Dorset. The service provides appropriate home care services through the deployment of a specially trained staff team and additional, flexible support to meet individual needs.
The subtle art of understanding
- Authors:
- BRAGANZA Kay, CLEGG David
- Journal article citation:
- Journal of Dementia Care, 10(6), November 2002, pp.12-13.
- Publisher:
- Hawker
Reports on a pilot project which uses art to help people with dementia express themselves. The sessions are client-led, one-to-one and based on intensive sessions undertaken in the clients own home. Provides two case studies highlighting the outcomes from the project.
Challenges in the provision of digital technologies to elderly with dementia to support ageing in place: a case study of a Swedish municipality
- Author:
- TSERTSIDIS Antonios
- Journal article citation:
- Disability and Rehabilitation: Assistive Technology, 16(7), 2021, pp.758-768.
- Publisher:
- Taylor and Francis
- Place of publication:
- London
Purpose: The aim of this paper is to identify structural problems and challenges for the delivery of digital technologies for ageing in place to elderly with dementia. Methods: To that end, I conducted a case study in a Swedish municipality. Results: The results showed that elderly with dementia are not exploiting their full potential of receiving help in the form of technology, since the four conditions of the Consumer Direction (Control and Direct services – Variety of digital technologies for ageing in place options – Information and Support – Participation in systems design) were met to a very low degree. Conclusions: I propose that the municipality in question creates a proper knowledge-sharing platform so that occupational therapists are well informed about digital technologies for ageing in place, to allow them to provide accurate information and support to elderly with dementia, resulting in a possible increase in use of technology and subsequently support the empowerment goal of Consumer Direction. I also believe, according to the findings of this study, that the module of Information and Support should be treated as the most important condition for achieving increased Consumer Direction. (Edited publisher abstract)
Exploring the scope for normalisation process theory to help evaluate and understand the processes involved when scaling up integrated models of care: a case study of the scaling up of the Gnosall memory service
- Authors:
- CLARK Michael, et al
- Journal article citation:
- Journal of Integrated Care, 29(1), 2021, pp.3-21.
- Publisher:
- Emerald
Purpose: The scaling up of promising, innovative integration projects presents challenges to social and health care systems. Evidence that a new service provides (cost) effective care in a (pilot) locality can often leave us some way from understanding how the innovation worked and what was crucial about the context to achieve the goals evidenced when applied to other localities. Even unpacking the “black box” of the innovation can still leave gaps in understanding with regard to scaling it up. Theory-led approaches are increasingly proposed as a means of helping to address this knowledge gap in understanding implementation. Our particular interest here is exploring the potential use of theory to help with understanding scaling up integration models across sites. The theory under consideration is Normalisation Process Theory (NPT). Design/methodology/approach: The article draws on a natural experiment providing a range of data from two sites working to scale up a well-thought-of, innovative integrated, primary care-based dementia service to other primary care sites. This provided an opportunity to use NPT as a means of framing understanding to explore what the theory adds to considering issues contributing to the success or failure of such a scaling up project. Findings: NPT offers a framework to potentially develop greater consistency in understanding the roll out of models of integrated care. The knowledge gained here and through further application of NPT could be applied to inform evaluation and planning of scaling-up programmes in the future. Research limitations/implications: The research was limited in the data collected from the case study; nevertheless, in the context of an exploration of the use of the theory, the observations provided a practical context in which to begin to examine the usefulness of NPT prior to embarking on its use in more expensive, larger-scale studies. Practical implications: NPT provides a promising framework to better understand the detail of integrated service models from the point of view of what may contribute to their successful scaling up. Social implications: NPT potentially provides a helpful framework to understand and manage efforts to have new integrated service models more widely adopted in practice and to help ensure that models which are effective in the small scale develop effectively when scaled up. Originality/value: This paper examines the use of NPT as a theory to guide understanding of scaling up promising innovative integration service models. (Edited publisher abstract)
Repairing self-identity with musical autobiographies
- Author:
- JONES Nick J.
- Journal article citation:
- Journal of Dementia Care, 27(4), 2019, pp.14-15.
- Publisher:
- Hawker
In this practice example, a composer explains how his approach to working with people with dementia goes beyond the everyday therapeutic effect of music. In this approach, autobiographical songs are composed for each of the care home residents involved in the practice. At the heart of this practice lies the question of whether person centred musical autobiographies can offset one of the most damaging aspects of dementia, namely the loss of identity. The composer worked with residents from a Fremantle care home in Chesham Leys, Buckinghamshire; Rathmore House in Swiss Cottage, London. He has trialled this bespoke musical project with seven people. Participants were reported to have gradually opened up to new memories through sound, visual and musical stimulants, and then were able to put these memories to music with the support of the composer. Learning from the pilots suggests that helping participants recall the past through the senses of sight and sound, rather than just talking works particularly well. In one case, integrating nostalgic music with the most important person in the participant’s life brought comfort and joy and reminded the person of who they were. Outcomes reported include the person with dementia being more relaxed, alert and social after the sessions. All participants demonstrated positive, and often unexpected, reactions to their finished songs. Once the song has been composed, staff can play or sing these musical autobiographies as a form of validation therapy, reminding people of who they are, what’s important to them and stimulating opportunities to talk and bond. (Edited publisher abstract)
The process of co-creating the interface for VENSTER, an interactive artwork for nursing home residents with dementia
- Authors:
- JAMIN Gaston, et al
- Journal article citation:
- Disability and Rehabilitation: Assistive Technology, 13(8), 2018, pp.809-818.
- Publisher:
- Taylor and Francis
- Place of publication:
- London
Introduction: Interactive art installations might engage nursing home residents with dementia. The main aim of this article was to describe the challenging design process of an interactive artwork for nursing home residents, in co-creation with all stakeholders and to share the used methods and lessons learned. This process is illustrated by the design of the interface of VENSTER as a case. Methods: Nursing home residents from the psychogeriatric ward, informal caregivers, client representatives, health care professionals and members of the management team were involved in the design process, which consisted of three phases: (1) identify requirements, (2) develop a prototype and (3) conduct usability tests. Several methods were used (e.g. guided co-creation sessions, “Wizard of Oz”). Each phase generated “lessons learned”, which were used as the departure point of the next phase. Results: Participants hardly paid attention to the installation and interface. There, however, seemed to be an untapped potential for creating an immersive experience by focussing more on the content itself as an interface (e.g. creating specific scenes with cues for interaction, scenes based on existing knowledge or prior experiences). “Fifteen lessons learned” which can potentially assist the design of an interactive artwork for nursing home residents suffering from dementia were derived from the design process. Conclusions: This description provides tools and best practices for stakeholders to make (better) informed choices during the creation of interactive artworks. It also illustrates how co-design can make the difference between designing a pleasurable experience and a meaningful one. (Publisher abstract)
A choir in every care home: case studies of singing in care homes. Working paper 8A
- Author:
- DEANE Kathryn
- Publisher:
- Baring Foundation
- Publication year:
- 2016
- Pagination:
- 71
- Place of publication:
- London
Sets out 27 case studies to show singing and music can be effective for older people in care homes. The case studies were submitted during 2016 as part of the 'A Choir in Every Care Home' initiative to explore how music and singing can feature regularly in care homes across the country. The project aimed to find the greatest range of singing models, rather than the ones most used. Each brief case study provides information on the initiative, who benefits, advantages and disadvantages, training, costs, hints and tips, and support materials. (Edited publisher abstract)
From wandering to wayfaring: reconsidering movement in people with dementia in long-term care
- Author:
- GRAHAM Megan E.
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 16(6), 2017, pp.732-749.
- Publisher:
- Sage
The movement of people with dementia in long-term care continues to be an issue of concern among clinicians, caregivers and families. This article will examine the social construction “wandering” and its association with pathology, risk discourse and surveillance technologies. Further, the article will explore the recent shift from the term “wanderer” to the phrase “people who like to walk” in person-centred dementia care. Engaging with Ingold’s concept of movement as wayfaring, an alternative becoming-centred understanding of movement and its significance for people with dementia will be presented and illustrated through a case study. The paper concludes that depathologizing movement opens the possibility to see movement in people with dementia as an intention to be alive and to grow, rather than as a product of disease and deterioration. Suggestions for future research and implications for care interventions are discussed. (Publisher abstract)