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Coping with the caregiving role: differences between primary and secondary caregivers of dependent elderly people
- Authors:
- BARBOSA Ana, et al
- Journal article citation:
- Aging and Mental Health, 15(4), May 2011, pp.490-499.
- Publisher:
- Taylor and Francis
The coping strategies employed by primary carers of older people are well researched. However, little is known about secondary carers, who often share caring responsibilities. The Portuguese version of the of Caregivers' Assessment Management Index was administered to 90 primary carers, and 90 secondary carers in the Aveiro district of Portugal. Results indicate that emotion-cognitive strategies are less efficient for secondary caregivers. Common problem-solving strategies adopted by both types of caregivers involve relying on own their experience and expertise and addressing and finding a solution to the problem. Neither group were highly efficient at managing care-related stress, but both identified benefits from taking time off. The authors conclude that engaging secondary caregivers in available interventions is of paramount interest, as they can reduce the burden of primary carers and help delay institutionalisation for older people.
Older male carers and the positive aspects of care
- Authors:
- RIBEIRO Oscar, PAUL Constanca
- Journal article citation:
- Ageing and Society, 28(2), February 2008, pp.165-183.
- Publisher:
- Cambridge University Press
Drawing on data from in-depth personal interviews, this Portuguese study analyses the positive statements in the personal descriptions of the care-giving experience of 53 elderly men who were caring for chronically-ill wives. It also explores the differences between the positive references made by the men who were caring for a wife who had dementia and those made by men whose wives had physical impairments. Using open coding and content analysis, positive aspects were identified in 32 of the 53 care-giving situations. The most prevalent themes were ‘satisfaction’ and ‘perceived social honour’. The findings show that positive returns from the caring experience and role were strongly associated with previous good marital relationships and the husband's good self-rated health, and manifested in both specific coping strategies and global and situational meaning-making processes. The study demonstrates that much more can be learnt about the positive dimensions of care in older men's lives, and that such understanding can inform and strengthen formal and therapeutic support.
Aged 70 and still a child: complexities, strains and gains of older children caring for their (near) centenarian mothers
- Authors:
- MACEDO Typhanie, SOUSA Liliana, RIBEIRO Oscar
- Journal article citation:
- Age and Ageing, 51(1), 2022, p.afab204.
- Publisher:
- Oxford University Press
Background: Longer lives increase the possibility of caring duties, which means that older adults looking after their ageing parents - as well as their own partners - is becoming an increasingly common scenario in developed countries. Objective: To explore the caregiving demands of very old caregiving dyads and the experience of maintaining the identity of a child at such an advanced age. Design: Qualitative study. Subjects: 15 participants (four males), all aged 70 or over and caring for their mothers, aged between 95 and 105 years old. Methods: Semi-structured interviews analysed thematically. Results: Caregivers are willing to care for their mothers 'until death tears them apart', despite the double strains they face, that is more self-limitations and added care receiver need. On a positive side, they feel 'happy, thankful and proud' for still having their mothers alive. They also describe that maintaining the identity of a child at such an advanced age was somewhat unthought of and unexpected but an important source of pride. Conclusions: These findings suggest that these oldest-old caregiving dyads are characterised by a relationship shaped by strong feelings of extended filial love, constituting a family feature that needs further understanding. Findings also underscore the challenges these carers face in dealing with several agents (secondary caregivers) and entities in the care provision. (Edited publisher abstract)
Ethical issues arising from a research, technology and development project to support frail older people and their family carers at home
- Authors:
- MAGNUSSON Lennart, HANSON Elizabeth Jane
- Journal article citation:
- Health and Social Care in the Community, 11(5), September 2003, pp.431-439.
- Publisher:
- Wiley
Provides an overview of the application of key ethical issues which arose in an EU-funded research, technology and development project, Assisting Carers using Telematics Interventions to meet Older Persons' Needs (ACTION), whose primary aim was to support frail older people and family carers in their own homes across England, Northern Ireland, the Republic of Ireland, Sweden and Portugal via the use of user-friendly information and communication technology. Ethical guidelines were developed and used as a tool to enable the multidisciplinary project team to increase their awareness of ethical issues in their everyday work and act as a useful ethical framework for regular team discussions at international and local meetings across the partner countries. A range of ethical issues arose during the field-study phases when the ACTION services were introduced into a number of families' own homes. It can be argued that these reflect factors relating both to the application of research into practice as well as those relating more directly to the use of new technology by families and care professionals. Key issues centre on ethical concepts of autonomy, independence, quality of life, beneficence, non-maleficence and justice, and more specifically on issues of security, privacy and confidentiality, increased expectations, and service withdrawal. This paper is intended to facilitate dialogue and debate in the area of enabling (assistive) technology in home care for older people and their families.
Family care of the older elderly: casebook of initiatives
- Authors:
- STEENVOORDEN M., van der PAS F., de BOER N
- Publisher:
- European Foundation for the Improvement of Living and Working Conditions
- Publication year:
- 1993
- Pagination:
- 88p.
- Place of publication:
- Dublin
Contains 14 examples of projects and initiatives from EC member states designed to support carers of older people. These include: a sitting service; leave of absence and allowances for carers; support groups for carers; advice bureau for carers; help for dementia sufferers and their carers; local day centres; and respite care.
Dementia, care and education: what needs do demented persons have?; what should caregivers attach importance to?
- Authors:
- HOEG Dorthe, NIELSEN Eva Bonde, SAMUELSSON Gillis
- Publisher:
- Danish National Institute for Elderly Education
- Publication year:
- 1999
- Pagination:
- 78p.,tables.
- Place of publication:
- Frederiksberg
Report of a Europe wide project aiming to promote quality of life for people suffering from neuro-degenerative diseases through an innovative training programme for caregivers developed and adapted to the conditions of the participating member states. The programme also aims to integrate formal and informal care. Contains chapters on: quality of life, the care model, and the GBS scale; organisations involved and population profiles of participating countries; methods used in the studies; needs of people with dementia and what caregivers see as important; the Danish and Finish training programmes; and visions for the future.