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Personal budgets briefing: learning from the experiences of older people and their carers
- Author:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2011
- Pagination:
- 6p.
- Place of publication:
- London
This briefing provides a summary of older people's and carers experiences of using self-directed support and personal budgets. It is based on a six month study commissioned from a joint team from Acton Shapiro, the National Centre for Independent Living (NCIL) and the Social Policy Research Unit (SPRU). The briefing covers moving to a personal budget, deciding on personal budget, being assessed, resource allocation, support planning, ways of holding a personal budget, obtaining support, the role of carers, management of the personal budget, the role of external organisations and monitoring arrangements.
Living longer: caring in later working life: examining the interplay between caring and working in later life in the UK
- Author:
- OFFICE FOR NATIONAL STATISTICS
- Publisher:
- Office for National Statistics
- Publication year:
- 2019
- Place of publication:
- London
As the UK population gets older, an increasing number of workers are providing care towards the end of their working life for family members. One in four older female workers, and one in eight older male workers, have caring responsibilities. In this article, we look further at the differences between men and women who work and care, and how who is being cared for drives the number of hours a carer provides and their ability to work. Nearly three in five carers in England and Wales are aged 50 years and over, and one in five people aged 50 to 69 years are informal carers – this is the most common age group for having caring responsibilities. A substantial proportion of older workers already balance work with caring responsibilities, particularly women: almost one in four (24%) female workers care, compared with just over one in eight (13%) male workers. There is also still a societal expectation for women, rather than men, to take on caregiving roles. Most of the care that men provide is to their spouse or parents, whereas women are more likely to provide care to a broader range of people including non-relatives. Overall, parents are the most common recipient of care by those of older working ages (29% of informal carers provide care to parents). People caring for parents are more likely to be in work than people caring for any other type of person. (Edited publisher abstract)
Managing medication: older people and their families need support to deal with the hidden burden of medication
- Author:
- NATIONAL INSTITUTE FOR HEALTH RESEARCH
- Publisher:
- National Institute for Health Research
- Publication year:
- 2020
- Place of publication:
- London
Being prescribed many medicines places a huge, often hidden, burden on older people in the community and on their families or carers. This affects whether older people take medicines incorrectly or not at all, which puts them at risk of harm and wastes medicine. The MEMORABLE (Medication Management in Older people: Realist Approaches Based on Literature and Evaluation) study aimed to understand the difficulties patients have in managing medication. To consider various points of view, researchers interviewed health and social care professionals, older people and family carers. They also reviewed scientific papers on the subject. One of the key findings was that medication management places a large burden on older people and family carers and that this burden is often hidden. The study recommends that doctors, pharmacists and nurses consider burden when prescribing or changing medicines. The researchers identified key areas of difficulty that could be tackled with simple interventions. One, a short questionnaire or aid, would help identify older people who are struggling. A second, a patient-led, personalised record, could help inform shared decision-making about medicines. The researchers identified five burdens that occur at medicine review and suggested ways of tackling these burdens: ambiguities – could be partly dealt with by clarifying the purpose and content of medicine reviews; concealment issues – increasing the personalised information given to older people and carers could increase their feelings of being in control and coping; unfamiliarity – addressed by seeing the same practitioner, establishing continuity and developing trust; fragmentation – could be reduced by improving collaboration between and across health and social care services; exclusion – could be reduced by taking the opinions of older people and informal carers into account via shared decision-making. (Edited publisher abstract)
Focusing on the person: exploring the potential of photography for people with dementia
- Author:
- CRAIG Claire
- Publisher:
- University of Stirling. Dementia Services Development Centre
- Publication year:
- 2005
- Pagination:
- booklets, CD ROM
- Place of publication:
- Stirling
This resource explores the wealth of opportunities that photography can offer people with dementia and their carers. It does not focus on the technical elements of photography but rather looks at the potential benefits that the process of taking pictures and using images can provide. Two booklets offer a series of practical starting points. The first booklet focuses on ways to support the person in taking photographs and the second explores ways of using these visual images. The CD ROM describes further projects - great photographic feasts - where image making can be utilised.
Personalisation for older people: residential care
- Author:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2009
- Place of publication:
- London
The film is introduced by the manager of a residential care home for older people with dementia who talks about the importance of understanding the individual, their interests, background and personal history. The benefits of this approach are illustrated by Marjorie’s story. Marjorie has been supported and encouraged to take up her interest in music again and it has brought pleasure to her life. There is an emphasis on relationship-based, individual person-centred care, rather than a functional approach to basic personal care. This is important to maintaining dignity and well-being. The latter half of the film looks at the family and carer support that the service also provides as part of person-centred care.
The impact of self-funding on unpaid carers: lightening the load or adding to it? Briefing
- Authors:
- WARD Lizzie, RAY Mo, TANNER Denise
- Publishers:
- Wellcome Trust, University of Lincoln, University of Brighton, University of Birmingham
- Publication year:
- 2020
- Pagination:
- 12
This briefing draws on research findings from the Ethical Issues in Self-funded Social Care: Coproducing knowledge with older people project. This participatory research project explored how older people experience the process of finding and paying for personal care from their own resources in three local authority areas in England. Tight needs-based eligibility criteria and a fixed financial threshold for local authority care mean that an increasing number of older people have to pay for their own social care. The bulk of personal care is received by older people with high level needs and multiple conditions, including dementia. Navigating the self-funded care market and managing private care arrangements are complicated processes. For many older people who are paying for their care, it is their family or close friends (‘unpaid carers’) who take a main role in finding, arranging and overseeing the care arrangements. This can place heavy responsibilities on unpaid carers, over and above their other caring tasks. Responsibilities for self-funded care are not only practical, such as finding suitable care, agreeing the terms and managing and monitoring payments, but also emotional, bound up in the dynamics of relationships between people. We need to recognise the demands of this unseen dimension of caring and the impact that giving support with self-funding has on the lives of unpaid carers. Otherwise, instead of lightening the load, the purchase of self-funded care adds another layer of responsibility, anxiety and stress for unpaid carers. (Edited publisher abstract)
Living longer: implications of childlessness among tomorrow's older population
- Author:
- OFFICE FOR NATIONAL STATISTICS
- Publisher:
- Office for National Statistics
- Publication year:
- 2020
- Pagination:
- 14
- Place of publication:
- London
An analysis of how the population is ageing as a result of declining fertility and an increase in life expectancy and the impact of future demand for formal social care. In the future, there will be more older people and a higher proportion of those will be childless. Because adult children are the most common providers of informal social care to their parents at older ages, this is likely to increase the demand for paid-for care. The article compares childbearing patterns, focusing on women completing childbearing years without children for the three largest cohorts (all the people born in a particular period or year) born in the last 100 years. It then explores the potential implications of childlessness among these cohorts for future social care demand and provision. Key findings include: peaks in the numbers of births post-World War 1 (WW1), post-World War 2 (WW2) and in the 1960s mean there are relatively large numbers of people now aged in their late 90s, 70s and 50s respectively; high levels of childlessness among the 1960s baby boomers combined with increases in life expectancy mean there will be many older people in the future who do not have adult children; adult children are the most common providers of informal social care to their parents at older ages when care needs are greatest; while there is no overall difference in the proportions of older people with and without children receiving care, those without adult children are more likely to be in receipt of formal (paid-for) care than those with children; increased levels of childlessness among older people in the future are likely to increase demand for formal care. (Edited publisher abstract)
Mutual caring: multimedia resources
- Authors:
- FOUNDATION FOR PEOPLE WITH LEARNING DISABILITIES, (Producer)
- Publisher:
- Foundation for People with Learning Disabilities
- Publication year:
- 2010
- Pagination:
- DVD, CD ROM
- Place of publication:
- London
This 2-disc set include information developed as part of the Mutual Caring Project. The Mutual Caring Project was set up to help promote recognition of good practice and develop improved service provision for older families where the balance of the caring relationship between the long-term family carer (often a parent) and the person with learning disabilities (normally an adult son or daughter) has changed. This disc set highlights this neglected area and provides evidence of practical approaches that can be used in different settings. Disc 1 is a DVD with video stories of personal experiences and covers: being a carer; person centred planning; carers’ assessments; and group and peer support. Disc 2 is a CD-ROM containing all resources, tools and reports developed as part of the Mutual Caring Project. Resources have been made to help families, people with learning disabilities, staff, commissioners and others and include: Supporting You as an Older Family Carer; Supporting You and Your Family as You Grow Older Together; Supporting You to Support Your Family; Supporting Mutual Caring; Circles of Support and Mutual Caring; and Being a Carer and Having a Carer’s Assessment.
Valuing experience: older people and mental health
- Authors:
- MENTAL HEALTH MEDIA, (Producer)
- Publisher:
- Mental Health Media
- Publication year:
- 2004
- Pagination:
- (43 mins.), videocassette, booklet (20p.)
- Place of publication:
- London
The video features testimony from older people with mental health problems speaking powerfully about the isolation, discrimination and difficulties they’ve faced. Significantly, they move on to share positive experiences of the help and support they receive, alongside their own involvement in making decisions about their care, that enables them to live well. Valuing Experience also features interviews with older people’s advocates and highlights exceptional examples of work in the voluntary sector that demonstrate good practice in person-centred care and promoting well-being and an active lifestyle. Research shows that older people are frequently let down when they really need help and support. 1 in 20 people over 65 have some form of dementia 1 in 10 older people may experience depression – rising to about 40% for those living in care homes. Many older people experience mental distress brought on by isolation, loneliness or loss, but these problems often go unrecognised.
Keeping personal budgets personal: learning from the experiences of older people, people with mental health problems and their carers
- Authors:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE, et al
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2011
- Pagination:
- 90p., bibliog.
- Place of publication:
- London
This report is a summary of people’s experiences of using self-directed support and personal budgets. The research was conducted by a joint team from Acton Shapiro, the National Centre for Independent Living (NCIL) and the Social Policy Research Unit (SPRU). The study was based primarily on the experiences of 69 personal budget holders and carers, supported by the views of 40 practitioners and managers from local authorities, and 12 support provider organisations (including five user-led organisations). The findings are structured around the main stages of the personal budget process: moving to a personal budget, including access to information and advice; assessment, self-assessment and resource allocation; support planning and brokerage arrangements; setting up services and managing the personal budget. A final section covers key themes and issues. Whilst examples of positive practice were found, all the case study sites emphasised that it was still ‘early days’ for them in terms of the implementation of personal budgets, and both their personal budgets systems and front-line practice were still evolving.