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Rosalie Kane: a career’s worth of “evergreen” insights
- Author:
- DOTY Pamela
- Journal article citation:
- Journal of Gerontological Social Work, 64(1), 2021, pp.78-87.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
The author reminisces about her collegial relationships and friendship with Rosalie Kane over a span of nearly 40 years. She also reflects on the main themes of Rosalie’s scholarly work as a social gerontologist, highlighting seminal publications and why Rosalie’s insights remain valuable and “evergreen” decades later. (Edited publisher abstract)
Informal caregivers and the risk of nursing home admission among individuals enrolled in the program of all-inclusive care for the elderly
- Authors:
- FRIEDMAN Susan M., et al
- Journal article citation:
- Gerontologist, 46(4), August 2006, pp.456-463.
- Publisher:
- Oxford University Press
This American study sought to determine whether participants in the Program of All-Inclusive Care for the Elderly (PACE) with an informal caregiver have a higher or lower risk of nursing home admission than those without caregivers. PACE is a community-based system of preventive, primary, acute and long-term care that care for older adults that qualify for nursing home care. A secondary data analysis was performed of 3,189 participants aged 55 years or older who were enrolled in 11 PACE programs during the period from June 1, 1990 through June 30, 1998. Cox proportional hazard models determined whether having any caregiver, as well as specific caregiver characteristics, such as either living separately from the enrollee, being over the age of 75 years, providing personal care, not reducing or quitting work to provide care, or not being a spouse, predicted time to nursing home admission. Fewer than half of the participants (49.4%) lived with a caregiver, and 12.4% had no caregiver. Individuals who lived with their caregiver were frailer than either those who lived separately or those without a caregiver. The study measured frailty in terms of functional and cognitive status, incontinence, and multiple behavioral disturbances. The presence of a caregiver did not change the risk for institutionalization. None of the caregiver characteristics were associated with a higher risk of nursing home admission. Unlike individuals in the general population, participants in PACE who lack an informal caregiver are not at higher risk of institutionalization. Further research is required to ascertain whether PACE's comprehensive formal services compensate for the lack of informal caregiving in limiting the risk for institutionalization.
Institutionalization for the elderly is a novel phenomenon among the Arab population in Israel
- Authors:
- AZAIZA Faisal, LOWENSTEIN Ariela, BRODSKY Jenney
- Journal article citation:
- Journal of Gerontological Social Work, 31(3/4), 1999, pp.65-89.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Institutionalisation of senior citizens is foreign to Arab Moslem mores. However, the rapid modernisation process witnessed among the Arab population in Israel is also leaving its mark on the social values of the community and the rule that offspring or close family act as sole caregivers of the elderly person is losing its strength. This descriptive account composes a primary profile of the elderly Arab citizens who enter, or already occupy, one of the two old age homes for Arabs in Israel. Discusses the salient features that make an elderly person a candidate for placement include lack of family, sick and/or invalid partner, childlessness, loneliness, and diminished activities of daily living.
Transition from home care to nursing home: unmet needs in a home- and community-based program for older adults
- Authors:
- ROBISON Julie, et al
- Journal article citation:
- Journal of Aging and Social Policy, 24(3), July 2012, pp.251-270.
- Publisher:
- Routledge
- Place of publication:
- Philadelphia, USA
An effort is under way in the United States to move long-term care services from institutional to home and community-based settings. This article employs quantitative and qualitative methods to identify unmet needs of a cohort of 1,577 clients from the Connecticut Home Care Program for Elders who transitioned from a state-wide home and community-based service programme for older adults to long-term nursing home residence. Administrative data, care manager notes, and focus group discussions identified programme service gaps that inadequately accommodated acute health problems, mental health issues, and stressed family caregivers; additional unmet needs highlighted an inadequate workforce, transportation barriers, and limited supportive housing options. Implications for national and state-level policy are discussed.
Family care-giving and decisions about entry to care: a rural perspective
- Authors:
- RYAN Assumpta, MCKENNA Hugh, SLEVIN Oliver
- Journal article citation:
- Ageing and Society, 32(1), January 2012, pp.1-18.
- Publisher:
- Cambridge University Press
This qualitative study undertaken in a large Health and Social Care Trust in Northern Ireland investigated rural family carers' experiences of the nursing home placement of an older relative. Semi-structured interviews were conducted with 29 relatives of nursing home residents. Findings revealed that older people had deep attachments to their homes and entry to care was a last resort. Rural family carers had close relationships with health and social care practitioners and felt supported in the decision-making process. The choice of home was a foregone conclusion for carers who had a strong sense of familiarity with the nursing homes in their area. This familiarity was influenced by the relatively rural communities in which respondents resided, which seemed to thrive in these small communities. This familiarity, in turn, influenced the choice of nursing home, timing of the placement and responses of family carers. The findings indicate that issues such as location and familiarity warrant a more detailed exploration in future research on entry to care.
Do trajectories of at-home dementia caregiving account for burden after nursing home placement? A growth curve analysis
- Authors:
- NIKZAD-TERHUNE Katherina A., et al
- Journal article citation:
- Social Work in Health Care, 49(8), September 2010, pp.734-752.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Moving into the nursing home setting is a difficult process for family caregivers of older people with dementia. It is known that nursing home placement can alleviate certain caregiving responsibilities, but new stressors can also emerge. This study examined how care-related factors can change leading up to nursing home placement and how these factors influence caregiver outcomes following nursing home placement. Six hundred and thirty four family dementia caregivers were surveyed at three six-month intervals prior to nursing home placement and once during the 12 month period following institutionalisation. Findings revealed dynamic changes in certain factors leading up to nursing home placement, such as caregivers' perceived health, while other factors such as burden remained stable. Several factors emerged as significant predictors of caregiver burden following nursing home placement, including pre-placement burden and adult day service usage. For geriatric social workers, these findings may be useful in assessing family caregivers, and in the development and utilisation of appropriate interventions.
Is there agreement between Canadian older adults and their primary informal caregivers on behaviour towards institutionalisation?
- Authors:
- DUBOIS Marie-France, et al
- Journal article citation:
- Health and Social Care in the Community, 16(6), November 2009, pp.610-618.
- Publisher:
- Wiley
Behaviour towards institutionalisation between frail older adults and their informal caregivers, and identify correlates of differential behaviour. Five hundred and ninety three participants and their primary informal caregivers involved in a longitudinal study following older adults identified at risk of functional decline, were asked separately if they thought about institutionalisation placement, discussed it with someone or visited an institution during the previous year. Compared with neither person thinking about it, the care-receiver alone thinking about placement was associated with using voluntary services, receiving help for home maintenance and visits to the emergency room during the previous year, along with the caregiver being aged 70 years or over. Compared with neither person thinking about it, the caregiver alone thinking about placement was associated with being male, not residing with the care-receiver, sensing a higher subjective burden, along with the care-receiver being 85 years or older, not being able to feed him/herself independently and visits to the emergency room during the previous year. Identified correlates can be useful in targeting dyads likely to behave differently. Communication within these dyads needs to be enhanced, as it is crucial to ensure that both parties are comfortable with possible future institutionalisation. In this regard, health professionals could play a role in bringing the issue to discussion.
Group living homes for older people with dementia: the effects on psychological distress of informal caregivers
- Authors:
- te BOEKHORST Selma, et al
- Journal article citation:
- Aging and Mental Health, 12(6), November 2008, pp.761-768.
- Publisher:
- Taylor and Francis
The aim of this study was to investigate the effects of group living care for people with dementia on the psychological distress of informal caregivers, compared with regular nursing home care. This study had a quasi-experimental design with two measurements. 67 primary informal caregivers in 19 group living homes and 99 primary informal caregivers in seven regular nursing homes in the Netherlands filled in a questionnaire upon admission (baseline measurement) of their relative and six months later (effect measurement). Linear and logistic regression analyses were performed on three outcomes of psychological distress - psychopathology, caregiving competence and caregiver burden. There were no significant differences in caregiver competence and caregiver burden between informal caregivers of residents in group living homes and those in regular nursing homes, although there was a trend towards less psychopathology in group living homes after adjustment for confounding. Informal caregivers of residents in group living homes do not have less psychological distress than informal caregivers of residents in regular nursing homes. Although there was a trend towards less psychopathology in informal caregivers of group living homes, the amount of symptoms remained very high in both caregiver groups. This means that the psychological well-being of caregivers deserves the continuing attention of health care providers, also after admittance of their relative in a nursing home facility.
A teaching nursing home
- Author:
- UPEX Clifford
- Journal article citation:
- Nursing Times, 30.11.00, 2000, pp.43-44.
- Publisher:
- Nursing Times
Describes a new centre of excellence for frail elderly people in Oxford.
The interplay of institution and family caregiving: relations between patient hassles nursing home hassles and caregivers' burnout
- Authors:
- ALMBERG Britt, et al
- Journal article citation:
- International Journal of Geriatric Psychiatry, 15(10), October 2000, pp.931-939.
- Publisher:
- Wiley
This population-based study investigated the relationship between stresses (hassles) and burnout for 30 family caregivers and their institutionalised demented elderly. The Burnout Measure, the Patient Hassles Scales and the Nursing Home Hassles Scale were used. Hassles included: patient hassles (cognitive, behaviour, basic ADL) and nursing home hassles (caregiver - staff, patient - staff, practical/logistical). The caregiver's characteristics are described in relation to burnout and the caregiver's most frequent hassles are discussed. All subscales except basic ADL were correlated to burnout. However, regression analysis showed the nursing home hassles to be the most important stresses explaining variance in burnout among family caregivers.