Search results for ‘Subject term:"older people"’ Sort:
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A review of conceptualisation of expressed emotion in caregivers of older adults with dementia
- Authors:
- LI Chao-Yin, MURRAY MaryAnne
- Journal article citation:
- Journal of Clinical Nursing, 24(3-4), 2015, pp.332-343.
- Publisher:
- John Wiley and Sons
Aims and Objectives: To clarify the concept of ‘expressed emotion’ and its application to caregivers of older adults with dementia. Background: Expressed emotion has been a useful construct for understanding the quality of family relationships affecting patients with mental illness and their caregivers. However, this concept has been developed without precisely defining ‘expressed emotion’ as it pertains to dementia patients. Clarity regarding expressed emotion will enable nurses to apply knowledge of expressed emotion and provide important information for the development of new clinical interventions for this specific population. Design: Integrative review. Methods: A review of literature on expressed emotion by caregivers of older adults with dementia. The inclusion criteria were: (1) published in English or Chinese during 1970–2012; (2) included both research and theoretical review articles on expressed emotion in nursing and other disciplines such as psychology, psychiatry and sociology. Initially, 236 articles were screened, and finally, 32 articles were evaluated for this review. Results: Emotional expression and expressed emotion were discussed to clarify the distinctions and address overlap between these two similar terms. In addition, expressed emotion was examined further from three different aspects: trait or state, social control and cross-cultural. Finally, the results of reviewed papers for expressed emotion on dementia patients were explored and synthesised. Conclusion: A conceptual definition and a theoretical framework for the concept of expressed emotion are urgently needed to further our understanding of this critical phenomenon. With increasing attention to caregiving for patients with dementia, including the concept of expressed emotion in the research of this field may accelerate understanding of the importance of the family dynamics in advanced ageing caregiving. Relevance to clinical practice: The expressed emotion concept could guide much of current clinical practice and help professional nurses understand the family's experience and perspective on mental illness, especially regarding dementia within the family. (Publisher abstract)
The emotional landscape of accessing and navigating formal supports for older adults in one Western Canadian city
- Authors:
- FUNK Laura M., HOUNSLOW Wanda
- Journal article citation:
- International Journal of Care and Caring, 3(4), 2019, pp.531-548.
- Publisher:
- Policy Press
Emotions may be pivotal to understanding how fragmented care systems for older adults can generate structural carer burden. Analysing 78 interviews with 32 carers who navigated formal services in a Western Canadian city, the research explores and distinguishes between emotional responses to navigation challenges and the emotion work that navigation entails. Emotional responses had a temporal dimension, and, at times, both positive and negative emotions coexisted simultaneously. Symbolic and normative understandings of interactions with providers, and of ‘caring well’, shaped emotion work throughout navigation. Discussion focuses on how broader contexts, through emotional processes, indirectly contribute to carer stress and strain. (Edited publisher abstract)
The relationship between self-efficacy and positive aspects of caregiving in Alzheimer's disease caregivers
- Authors:
- SEMIATIN Alicia M., O'CONNOR Maureen K.
- Journal article citation:
- Aging and Mental Health, 16(6), August 2012, pp.683-688.
- Publisher:
- Taylor and Francis
Positive aspects of caring may help buffer carers from the negative psychological and physical consequences of caregiving. Self-efficacy is a potentially modifiable psychological construct that has been associated with positive thinking, improved control of negative affect, and enhanced motivation. This study investigated the relationship between positive aspects of caregiving and self-efficacy among 57 family members caring for a family member with Alzheimer's disease in Boston, Massachusetts, United States. Participant data was gathered through individual interviews conducted as a part of a larger randomised controlled trial of a caregiver intervention. Result revealed that self-efficacy accounted for a significant percentage of the variance in positive aspects of caregiving after controlling for other factors commonly associated with positive aspects of caregiving including caregiver demographics, care recipient neuropsychiatric symptoms, and caregiver depression.
Caregiver expressed emotion and depression in Alzheimer's Disease
- Authors:
- WAGNER A.W., et al
- Journal article citation:
- Aging and Mental Health, 1(2), May 1997, pp.132-139.
- Publisher:
- Taylor and Francis
Investigates the rate of Expressed Emotion (EE) in caregivers of patients with Alzheimer's Disease and depression. Also investigates the relationship of caregiver EE to patient status and caregiver burden and depression. Results found that high EE caregivers were significantly more likely to be clinically depressed and have higher levels of burden. They also endorsed fewer positive aspects of caring. Concludes that carer EE offers a useful approach to understanding important aspects of caregiver-patient interactions which may impact long term patient functioning and caregivers' ability to provide effective care.
The impact of a care recipient’s pet on the instrumental caregiving experience
- Authors:
- BIBBO Jessica, PROULX Christine M.
- Journal article citation:
- Journal of Gerontological Social Work, 61(6), 2018, pp.675-684.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Older adults report strong emotional bonds with their pets which often become increasingly important as health declines and dependence upon others increases. Individuals requiring assistance meeting their own needs are likely to need assistance in meeting the needs of their pet. The care recipient’s pet may be an important, though presently overlooked, factor in the caregiving experience. This study measured the amount of care tasks/ activities informal caregivers of older adults devoted to their care recipients’ pet. Caregivers for an individual aged 50 and older who did not consider the care recipient’s pet to be his/her own animal completed an online questionnaire. Descriptive statistics and Pearson correlations were used in analyses. Caregivers (N = 34) performed an average of 14.9 (SD = 5.4) different pet care tasks/activities and an average of 11.21 (SD = 1.33) hours per week in pet care. The total number of tasks/activities performed was significantly and positively correlated with the care recipients’ degree of functional limitation (r = 0.49, p = 0.004). Care recipients’ pets may be a significant factor in shaping the instrumental caregiving experience. (Edited publisher abstract)
Exemplary care as a mediator of the effects of caregiver subjective appraisal and emotional outcomes
- Authors:
- HARRIS Grant M., et al
- Journal article citation:
- Gerontologist, 51(3), June 2011, pp.332-342.
- Publisher:
- Oxford University Press
Exemplary care is a relatively new construct which has been defined as "communicating to care recipients that they are loved, respected, and worthy of special consideration", and is assessed using the Exemplary Care Scale. Examining secondary data from the US REACH II project, this study looked at how exemplary care is related to caregivers' subjective appraisals (daily care bother, burden and behavioural bother), depressive symptoms, and positive aspects of caregiving, where care receivers have a diagnosis of Alzheimer's disease or a related disorder. The article describes the measures from REACH II and the data analysis carried out. It presents and discusses the results, including analysis of differences in results between white/caucasian, black/African American, and Hispanic/Latino caregivers. The authors conclude that the findings suggest that engaging in exemplary care behaviours is one mechanism through which caregivers' subjective appraisal of the caregiving situation leads to positive, and reduces negative, emotional outcomes.
Choice and change: disabled adults' and older peoples' experiences of making choices about services and support
- Authors:
- BAXTER Helen, RABIEE Parvaneh, GLENDINNING Caroline
- Publisher:
- University of York. Social Policy Research Unit
- Publication year:
- 2011
- Pagination:
- 4p.
- Place of publication:
- York
This study explored the experiences of disabled people of working age and older who were likely to have to take frequent decisions because of their changing health status. Thirty working age and older people with fluctuating conditions and twenty with the recent sudden onset of severe impairments were recruited to the study from diverse backgrounds across England; around two-thirds remained in the study after three years. Participants were interviewed on at least three occasions between 2007 and 2010, to explore recent experiences of making choices about services including: the information and advice people sought; the options considered; the factors taken into account; the outcomes of these choices over time; and the roles played by family, friends and professionals in the choices that were made. Fifteen ‘significant others’, reported as having played an important role in a particular choice, were also interviewed. Data were analysed to identify common and contrasting patterns. Analysis addressed specific questions and drew wherever possible on data from all interview rounds to maximise the longitudinal dimension of the study. Key findings include that choice is important in maintaining health, independence and identity, but that exercising choice can be limited by lack of information or acceptable options. Implications for professionals are summarised.
Hearing the cry “I’m still here” in the midst of grief and loss
- Author:
- ZEISEL John
- Journal article citation:
- Journal of Dementia Care, 18(2), March 2010, pp.20-22.
- Publisher:
- Hawker
This article from the author of ‘I’m Still Here’, describes the book and the message it tries to portray – for the continued recognition of the person with dementia, in spite of feelings of grief and loss. The author suggests ways those around the person can support this continued sense of self, and that those close to the person need to recreate the relationship, change the pattern of roles they may always have taken in the relationship, no longer expecting the person to take the initiative in activity or conversation, for example. In conclusion, the author comments that dwelling on grief over dementia leads one to miss the positive, and that first and foremost the carer should consider the dementia sufferer as a person first, and only then as a person with dementia.
Adult daughters and aging mothers: the role of guilt in the experience of caregiver burden
- Authors:
- GONYEA Judith G., PARIS Ruth, de SAXE ZERDEN Lisa
- Journal article citation:
- Aging and Mental Health, 12(5), September 2008, pp.559-567.
- Publisher:
- Taylor and Francis
Although guilt is often identified as being a common emotion experienced by family caregivers in the clinical literature and in small descriptive studies, it has only recently emerged as a construct in the empirical research focused on identifying predictors of caregiver distress. Using Pearlin's stress process model, and based on data from 66 midlife adult daughters caring for aging mothers, this study explored the extent to which guilt contributes to caregiver burden. Hierarchical regression analysis revealed that guilt was positively correlated with burden and that it accounted for a significant amount of the variance in caregiver's sense of burden even after contextual and stressor variables were controlled. The research suggests the importance of clinicians seeking to understand how individuals judge their caregiving performance and targeting negative self-appraisals, which affect individuals' mental health, for change. The challenge for clinicians is to help guilt-ridden caregivers revise their evaluative standards and engage in self-forgiveness and self-acceptance.
Their story, my story: health of older men as caregivers
- Author:
- RUSSELL Richard
- Journal article citation:
- Generations, 32(1), Spring 2008, pp.62-67.
- Publisher:
- American Society on Aging
The author explores the topic of men as caregivers and the implications for their health from the perspectives of: coping with chronic illness; help and support; and emotional challenges. The author draws on ongoing research into the experiences of older male caregivers and his own experiences of caring for his wife who has been diagnosed with cancer.