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The carer's handbook: what to do and who to turn to
- Author:
- LEWYCKA Marina
- Publisher:
- Age Concern
- Publication year:
- 2004
- Pagination:
- 127p.
- Place of publication:
- London
At some point in their lives, millions of people find themselves unexpectedly responsible for organising the care of an older person facing a crisis. All too often, such carers have no idea what services are available or who can be approached for support. This book aims to help people through the first hours and days of an emergency. It is a practical book packed full of advice and information. It explains the roles of the professional workers who may care for a relative, and explains decisions that have to be made. It also examines longer term options of how relatives can be cared for and the services which may be available for them.
The nutrition-related needs of family caregivers
- Author:
- SILVER Heidi J.
- Journal article citation:
- Generations, 28(3), 2004, pp.61-64.
- Publisher:
- American Society on Aging
Explores nutritional status and its relationship to the experience of carers and care recipients, given that models depicting carers' strain and burden are well known, but none includes nutrition despite its importance to health. Describes carers' tasks and burden, health outcomes and nutrition in carer education, and discusses implications. Carers' burdens may prevent recognition of the need for considering their own nutrition-related health and also interfere with ability to provide quality nutrition care to recipients and engage in nutrition education activities.
Learning while caring
- Author:
- JANSSEN Rosalind
- Journal article citation:
- Adults Learning, 16(2), October 2004, pp.12-13.
- Publisher:
- National Institute for Adult Continuing Education
The author describes how, returning to adult education after 25 years, she was struck by the learning and support needs of older women who, because they cared for elderly relatives, found it difficult to attend classes, and embarked on a research project asking what was being done to fill this gap. Such women have a much lower profile than those with childcare responsibilities, and fellow students and tutors lacked awareness of what was involved. Concludes that with the ageing population set to peak in the 2030s adult education must put in place equal opportunities provision for tomorrow's grannycarers.
Building on the benefits: assessing satisfaction and well-being in elder care
- Authors:
- JENSEN Christine J., FERRARI Michael, CAVANAUGH John C.
- Journal article citation:
- Ageing International, 29(1), Winter 2004, pp.88-110.
- Publisher:
- Springer
- Place of publication:
- New York
One hundred interviews were conducted with primary caregivers who completed the Caregiver Well-Being Scale (CWB), the Caregiving Uplifts Scale (CUPL), the Caregiving Satisfaction Scale (CSS), and the Center for Epidemiologic Studies Depression Scale. CWB, CUPL and CSS scores were significantly higher for caregivers for elders with a primarily physical (e.g. heart disease) rather than a primarily cognitive impairment (e.g. dementia), indicating greater perceived caregiver benefits based on type of care recipient impairment. Little evidence of depressive symptoms was found in either group. These findings advance previous research by indicating that caregivers experience satisfaction in their role and potential for personal fulfillment even when faced with challenging circumstances. Discusses validation of positive experiences and the impact of positive appraisals on depression levels.
Direct payments, independent living and mental health: an evaluation
- Authors:
- SPANDLER Helen, VICK Nicola
- Publisher:
- Health and Social Care Advisory Service
- Publication year:
- 2004
- Pagination:
- 106p., bibliog.
- Place of publication:
- London
The Community Care (Direct Payments) Act came into force in April 1997, and from April 2003, Local Authorities have been required to make direct payments to people who are assessed as eligible to receive them and want them, including people in contact with mental health services. However, most have not yet given serious consideration to the implementation of direct payments in mental health and the number of people with mental health needs who have taken up direct payments has remained low in comparison with other groups. The purpose of the National Pilot was to promote independent living through the increased take up of direct payments in mental health. It included five key components: the recruitment of Site Co-ordinators from within local service user networks; the setting up of Steering Groups to oversee the progress of the pilot; the organisation of All Sites Days at six monthly intervals to enable representatives from participating sites to discuss progress and share ideas about implementation; and the setting up of an e-mail discussion group and newsletter.
Direct payments, independent living and mental health: an evaluation: executive summary
- Author:
- HEALTH AND SOCIAL CARE ADVISORY SERVICE
- Publisher:
- Health and Social Care Advisory Service
- Publication year:
- 2004
- Pagination:
- 3p.
- Place of publication:
- London
The Community Care (Direct Payments) Act came into force in April 1997, and from April 2003, Local Authorities have been required to make direct payments to people who are assessed as eligible to receive them and want them, including people in contact with mental health services. However, most have not yet given serious consideration to the implementation of direct payments in mental health and the number of people with mental health needs who have taken up direct payments has remained low in comparison with other groups. The purpose of the National Pilot was to promote independent living through the increased take up of direct payments in mental health. It included five key components: the recruitment of Site Co-ordinators from within local service user networks; the setting up of Steering Groups to oversee the progress of the pilot; the organisation of All Sites Days at six monthly intervals to enable representatives from participating sites to discuss progress and share ideas about implementation;and the setting up of an e-mail discussion group and newsletter.
Compassionate friends
- Author:
- COUNSEL AND CARE
- Publisher:
- Counsel and Care
- Publication year:
- 2004
- Pagination:
- 56p.
- Place of publication:
- London
This booklet encapsulates the history of the charity - which has touched thousands of people's lives since it was established in the early 1950s - in parallel with many changes in the development of the National Health Service and care for the older person. The charity lobbies and liases with government and local authorities. It carries out joint studies with academia, and researches projects on behalf of large charitable funds. It provides professional training for carers, has developed its capability as a professional guide to good practice, and strengthened its advocacy role.
Ethnic differences in social network help-seeking strategies among Latino and Euro-American dementia caregivers
- Authors:
- VALLE R., YAMADA A.-M., BARRIO C.
- Journal article citation:
- Aging and Mental Health, 8(6), November 2004, pp.535-543.
- Publisher:
- Taylor and Francis
This research explores the help-seeking behavior of Euro-American and Latino caregivers who provide homecare assistance to an older adult with dementia. A community sample of 89 caregiver-care recipient pairs (39 Latino and 50 Euro-American) was interviewed. Descriptive, bivariate, and multivariate analyses were conducted to examine ethnic differences in use of an informal social network for help with caregiving tasks. Caregiver experiences that may impact help-seeking behaviors such as perceived availability of support network, satisfaction with support received and caregiver distress were also considered. Latino caregivers reported less help-seeking than did the Euro-American caregivers. Overall, ethnicity accounted for 16% of the variation in help-seeking behaviors. Ethnicity accounted for a significant portion of the variation in most of the help-seeking characteristics examined even after adjusting for socioeconomic variables. In the multivariate model, the effects of ethnicity on help-seeking persisted, while the effects of other likely predictors did not. The size of social network may not be synonymous with the seeking of support by caregivers. Likewise, higher levels of distress among Latino caregivers did not result in increased help-seeking behaviors. There remains a need to identity what other factors may contribute to the cultural variability in caregivers’ use of informal support.
Caregiver-carereceiver communication part 2: overcoming the influence of stereotypical role expectations
- Authors:
- EDWARDS Helen, CHAPMAN Helen
- Journal article citation:
- Quality in Ageing, 5(3), November 2004, pp.3-12.
- Publisher:
- Pier Professional
- Place of publication:
- Brighton
Part 1 of this paper explored the premise that a role predicament of caring exists within family caregiving relationships, arguing that dysfunctional patterns of communication develop in family caregiving relationships not only in response to stereotypical expectations of both caregiver and carereceiver concerning their role in the caregiving relationship. This was grounded in data from a large comprehensive study of older people and their family caregivers. This paper builds on the earlier contention and holds that more productive and effective forms of communication and caregiving relationships can be promoted through modification of role expectations and behaviours. The Health Promoting Communication Model is introduced and proposed as an appropriate framework for guiding both prevention and intervention strategies for health promoting communication in family caregiving.
A study of 10 states since passage of the National Family Caregiver Support Program: policies, perceptions, and program development
- Authors:
- FEINBERG Lynn Friss, NEWMAN Sandra L.
- Journal article citation:
- Gerontologist, 44(6), December 2004, pp.760-769.
- Publisher:
- Oxford University Press
Describes the preliminary experiences of 10 US states in providing support services to family or informal caregivers of elderly adults and adults with disabilities, focusing on the newly created National Family Caregiver Support Program, state general funds, Medicaid-waiver programs, and other state-funding streams. Case studies were conducted in March-July 2002 through in-person interviews with state officials and stakeholders in Alabama, California, Florida, Hawaii, Indiana, Iowa, Maine, Pennsylvania, Texas and Washington. States were in the start-up phase of implementing the Program and varied greatly in programme design and integration of caregiver support into their home- and community-based care system. Viewing family caregivers as a client population was a paradigm shift for many state officials. Heavy reliance is currently placed on family and informal caregivers in home- and community-based care, without adequate support services. Family support should be an explicit goal of long-term-care system reform.