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Choices for the carer of an elderly relative
- Author:
- LEWYCKA Marina
- Publisher:
- Age Concern
- Publication year:
- 2003
- Pagination:
- 118p.
- Place of publication:
- London
- Edition:
- 2nd
Being a carer may mean many different things - from living at a distance and keeping a check on things by telephone to taking on a full-time caring role. This book looks at the choices facing someone whose parent or other relative needs care. It helps readers look at their own circumstances and their own priorities and decide what is the best role for themselves - as well as the person being cared for.
Developing an inclusive approach to dementia care
- Author:
- ADAMS Trevor
- Journal article citation:
- Practice: Social Work in Action, 15(1), 2003, pp.45-56.
- Publisher:
- Taylor and Francis
Critically examines the trend within dementia care to focus on either people with dementia or their informal carer. Attention is given to the alliances and collusions that may develop within triads comprising people with dementia, their carers and dementia care practitioners and the implications for this upon the distribution of power. Outlines an inclusive model of dementia care in which the needs of the person with dementia, family carers and the dementia care practitioner are understood in terms of inclusion. Also shows how the model may be used to enhance practice in dementia care, particularly how practitioners can ensure that both people with dementia and their carers are included within decision making processes. The role of supervision is noted as a way that dementia care practitioners may gain worthwhile insights into the alliances and collusions that can impede practice within dementia care.
Employment and caregiving: exploration of African American caregivers
- Authors:
- BULLOCK Karen, CRAWFORD Sybil, TENNSTEDT Sharon
- Journal article citation:
- Social Work: A journal of the National Association of Social Workers (NASW), 48(2), April 2003, pp.150-162.
- Publisher:
- Oxford University Press
To more completely understand the challenges African American families face when combining employment commitments and informal caregiving responsibilities, the authors used data from a community sample of 119 African American elder-caregiver dyads. This article examines the nature of caregiving relationships and extent to which caregivers' employment statuses affect the hours of care provided. The authors concluded that employed caregivers do not provide significantly less care than do unemployed caregivers, elderly people with employed caregivers are no more likely than those with unemployed caregivers to use formal services, and unemployed caregivers may remain unemployed partly because of caregiving responsibilities.
Relatives' views on mouth care
- Authors:
- MANTHORPE Jill, WATSON Roger, STIMPSON Anne
- Journal article citation:
- Journal of Dementia Care, 11(2), March 2003, pp.28-29.
- Publisher:
- Hawker
Oral care of people with dementia is often undertaken by family carers as much as professional staff in formal care. This article reports on carers' experiences and views by analysing the results of responses to 3777 questionnaires about caring for people with dementia. The questionnaires were part of a research project from the Alzheimer's Society, 'Food for Thought' undertaken in 2000.
Informal caregivers' experiences of formal support in a changing context
- Author:
- WILES Janine
- Journal article citation:
- Health and Social Care in the Community, 11(3), May 2003, pp.189-207.
- Publisher:
- Wiley
As the location of long-term care of elderly people moves to homes and communities, and responsibility shifts to families, understanding the experience of people in this situation is necessary to ensure that support is appropriate, accessible and effective. This paper explores informal caregivers' and recipients' relationships with formal support, drawing on thematic and narrative analysis of 30 in-depth interviews with self-identified family caregivers over a year in a mid-size city in Ontario, Canada. All but 6 had some interaction with formal support. The semistructured interviews explored caregivers' knowledge about and perceptions and experiences of accessing and using formal support. Interpretation reveals how confusion and lack of knowledge about services, inflexibility and lack of availability, and increasing pressure on the quantity and quality of publicly funded community-based resources combine to impact negatively on the experience of accessing and using formal support. Different ideas about relative roles and responsibilities of seniors, informal caregivers and 'family' in general, and the state both shape and are shaped by policies and the situated realities of formal support provision. Providing home care creates both opportunities and constraints for caregivers in interactions with formal support. Highlights the difficulties of interacting with publicly funded formal support as the costs of care are moved away from the state and onto families and individuals.
Caring for someone with diabetes
- Author:
- LEWYCKA Marina
- Publisher:
- Age Concern
- Publication year:
- 2003
- Pagination:
- 138p.
- Place of publication:
- London
This book sets out to bring up-to-date information about diabetes and how to live with this condition. Packed with practical help and guidance, this book explores topics such as understanding diabetes, day to day care, healthy eating and living, medication and coping with emergencies. It draws on the experience of people with diabetes and their carers.
Caring for someone with an alcohol problem
- Author:
- WARD Mike
- Publisher:
- Age Concern
- Publication year:
- 2003
- Pagination:
- 118p.
- Place of publication:
- London
- Edition:
- Rev. ed.
Caring for someone with alcohol problems can be physically and emotionally exhausting, and it is often difficult to think about what can be done to make things easier. This book examines issues such as: who becomes a problem drinker and why; the impact of alcohol problems on carers and the family; working for change; and support and specialist services.
Family caregivers on the job: moving beyond ADLs and IADLs
- Authors:
- LEVINE Carol, et al
- Journal article citation:
- Generations, 27(4), Winter 2003, pp.17-23.
- Publisher:
- American Society on Aging
Discusses 'activities of daily living' and 'instruments for activities of daily living' which were designed to describe the functioning - and functional limitations - of care recipients. Looks at how they fail to convey the full complexity of the family caregivers responsibilities.
Older people
- Author:
- MANTHORPE Jill
- Journal article citation:
- Research Matters, 16, October 2003, pp.43-48.
- Publisher:
- Community Care
Looks at research into the options for people who take early retirement and the implications for the social care profession.
A multi-centre survey among informal carers who manage medication for older care recipients: problems experienced and development of services
- Authors:
- SMITH Felicity, et al
- Journal article citation:
- Health and Social Care in the Community, 11(2), March 2003, pp.138-145.
- Publisher:
- Wiley
The UK Government has highlighted the need to develop appropriate information and support services for informal carers. Previous research has found that managing medication is one aspect of the role that presents its own problems; however, these have not been subject to detailed examination. The objective of this paper is to report the number and type of problems experienced by informal carers when managing medication for older care recipients and relate these to measures of coping and health. This was a cross-sectional survey undertaken in one district in each of 4 randomly selected health authority areas in England. Structured interviews, comprising closed and open questions, with 184 informal carers and 93 associated older care recipients were conducted in participants' own homes. Data were gathered on the number and type of medication-related problems experienced in relation to the informal caring role, and the impact of these from carers' perspectives in terms of coping and health. Problems with at least one medication-related activity were reported by 67% of carers. Problems were associated with all types of medication-related activities and experienced by carers providing different levels of care for older people. Four themes were identified from carers' accounts which illustrated a diversity of practical problems and anxieties: maintaining continuous supplies of medication in the home, assisting with administration, making clinical judgments and communicating with care recipients and health professionals. Carers reporting greater numbers of medication-related problems were more likely to experience higher levels of carer strain and poorer mental health status. The findings provide insights to inform the development of primary care services to support informal carers in the management of medication for older people.