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Past the age of consent? a discussion of some ethical issues arising in a study involving older people
- Authors:
- REED Jan, PAYTON Valerie Roskell
- Journal article citation:
- Health Care in Later Life, 1(1), 1996, pp.51-61.
Discusses some of the dilemmas faced by a research team in trying to conduct a research study in an ethical way that respected the perspectives of the older people studied. The article points out that the issues of power and control is particularly important when reaching with older people, who are an already marginalised and disempowered group. Gives an account of some of the strategies used to try to ensure that the study was not rigidly controlled by the researchers.
‘Speaking about the unspeakable’: clinical psychologists views on the role of the profession regarding ‘forced care’ of older adults without capacity
- Authors:
- WATTS Sarah J., JACKMAN Louisa J., HOWARTH Alan
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 18(2), 2019, pp.660-673.
- Publisher:
- Sage
‘Forced care’ describes the provision of personal care to an individual who does not have the capacity to make a decision about that care and resists receiving that care. This study explored the views of clinical psychologists on supporting staff involved with forced care and considered the following question: Do clinical psychologists feel that they have a role in guiding decisions around forced care, and if so, what? Interview data were gathered from five clinical psychologists experienced in the field of Older Adult psychology in the UK. This study concludes that the environment in which psychologists work influences the psychologist’s beliefs about whether psychologists should be involved with making recommendations about forced care, and how they should be involved. (Publisher abstract)
Dignity and older Europeans: comparative analysis of data from older people's focus groups from all centres
- Author:
- TADD Win
- Publisher:
- Dignity and Older Europeans Consortium
- Publication year:
- 2004
- Pagination:
- 33p.
- Place of publication:
- Cardiff
The findings of focus groups of older people carried out in six countries to explore how older people view human dignity in their lives, and how factors such as age, social and economic aspects, and health and illness are compared. The countries involved in the study were the UK, Ireland, Spain, Sweden, Slovakia and France.
Lying in dementia care: an example of a culture that deceives in people's best interests
- Authors:
- ELVISH Ruth, JAMES Ian, MILNE Derek
- Journal article citation:
- Aging and Mental Health, 14(3), April 2010, pp.255-262.
- Publisher:
- Taylor and Francis
The use of lies in dementia care settings is endemic. Paradoxically, although many staff groups use deceptive techniques frequently, they are uncomfortable about acknowledging their actions. This article examines the issue of deception, using a 2-phased study design. The first phase involved developing a 16-item questionnaire to investigate attitudes towards lying to people with dementia. The second phase involved a workshop of 34 delegates attending a national UK older people’s psychology conference. In this workshop information on the use of lies was presented to determine whether it would lead to attitude change. The developed questionnaire and other measures of change were used in pre and post assessment of the effectiveness of the workshop in modifying attitudes to lying in professionals. The paper reports on the psychometric properties of the questionnaire. The results of the workshop demonstrate that the participants develop a more positive attitude towards the use of lies post workshop. The reasons underpinning changes in attitude are discussed. This study contributes to a more informed understanding regarding both the definition and use of lies. On the whole, participants developed a less generic perspective about lying, becoming more supportive of lies when used in specific situations in the best interests of the recipients.
Why do we ignore these ethical issues?
- Author:
- COX Janet
- Journal article citation:
- Journal of Dementia Care, November 2003, pp.25-28.
- Publisher:
- Hawker
Explores the way a person with dementia's rights can be overridden and their freedom restricted even when everyone involved seems to be acting from the best of motives.
The effects of changing values on the provision of long-term care
- Authors:
- LONGINO Charles F., POLIVKA Larry
- Journal article citation:
- Generations, 25(1), Spring 2001, pp.64-68.
- Publisher:
- American Society on Aging
This article asks what the long-term-care workforce in the USA will look like in the future. This depends upon the changing values on which long-term care itself is based. Argues that there are some major changes under way that may frame long-term care in the new ways in the future, thereby affecting both workforce and resources.
Achieving cultural competence: the challenge for clients and health care workers in a multicultural society
- Authors:
- BOMDER Bette, MARTIN Laura, MIRACLE Andrew
- Journal article citation:
- Generations, 25(1), Spring 2001, pp.35-42.
- Publisher:
- American Society on Aging
Increasingly, health care practitioners are recognising the importance of culture in their interactions with clients and colleagues. As the United States population becomes more diverse, practitioners face situations in which their clients' cultural backgrounds are clearly different from their own. Argues that skills that enhance care providers' abilities to recognise different cultural values, beliefs, and practices and to address these factors in intervention are likely to lead to more successful treatment outcomes. Further, professional groups are placing greater value on such skills not only because their client populations are more diverse group of individuals is joining the ranks of health care professions.
Why dignity in old age matters
- Author:
- MOODY Harry R.
- Journal article citation:
- Journal of Gerontological Social Work, 29(2/3), 1998, pp.13-38.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Discusses the concept of dignity in old age and by drawing on different fields of thought and shows why it matters.
Stigma, the medical model and dementia care: psychological growth in senior health professionals through moral and professional integrity
- Authors:
- WALMSLEY Bruce D., McCORMACK Lynne
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 15(6), 2016, pp.1685-1702.
- Publisher:
- Sage
Minimal research explores the impact of a career in dementia care on senior health professionals. This study sought positive and negative subjective interpretations from seven senior health professionals regarding their experiences in dementia care. Data from semi-structured interviews were analysed using interpretative phenomenological analysis (IPA). One superordinate theme, Honouring stigmatised self, overarched four sub-themes: Systemic stigma, Invalidated, Self-respect and Moral integrity and Growth. Stigma was interpreted as systemically entrenched minimisation of aged care and the aged-care workforce, including poor remuneration and training. Participants experienced peer invalidation particularly when attempting to resolve complex professional and moral challenges in dementia care. These often occurred in the context of efforts to individualise care, constrained within a medical model. Paradoxically, external invalidation motivated a search for redefining ‘self’ and moral integrity. By wisely acknowledging career experience, growthful domains of self-respect, optimism, humility and innovation defined professional practice and personal choices. Implications are discussed. (Publisher abstract)
Coping with the obligation dilemma: prototypes of social workers in the nursing home
- Authors:
- LEV Sagit, AYALON Liat
- Journal article citation:
- British Journal of Social Work, 46(5), 2016, pp.1318-1335.
- Publisher:
- Oxford University Press
The authors examined the ways in which the social worker is coping with obligation dilemma in an Israeli nursing home. The research was conducted using semi-structured, in-depth interviews carried out with fifteen social workers employed in nursing homes. The interviews were analysed thematically, using constant comparisons. The three themes were concerned with the social worker's place in the nursing home, her relationship with the management and staff, and her coping with the obligation dilemma. These themes highlighted the difference between the interviewees. On the background of this difference, four prototypes of nursing home's social workers were defined: the managerial, the contented, the fighter and the frustrated. From analysing the findings, the significant place of the personal and environmental factors that influence the ways in which the social worker deals with these four themes emerges. The findings suggest that the strengthening, empowerment and support of social workers in institutions can directly enhance the health, security, emotional well-being and quality of life of nursing home residents. (Edited publisher abstract)