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We do things together’:a case study of ‘couplehood’ in dementia
- Authors:
- HELLSTROM Ingrid, NOLAN Mike, LUNDH Ulla
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 4(1), February 2005, pp.6-22.
- Publisher:
- Sage
The value of the single case study is well established in dementia care with the seminal contributions of Alzheimer and Kitwood being based on the study of individuals. This article presents a case study of an elderly married couple living with dementia and explores how their relationship has continued to flourish. In drawing on their story we highlight ways in which both partners seek to ‘maintain involvement’ of the person with dementia (PWD), and consider the various types of ‘work’ that is required. We suggest that whilst the ‘personhood’ of the PWD as an individual has received much recent attention, a consideration of ‘couplehood’ is also essential to a full understanding of how spouses live with and respond to the impact of dementia.
Towards a more inclusive vision of dementia care practice and research
- Authors:
- COUNSEL AND CARE, NOLAN Mike, et al
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 1(2), June 2002, pp.193-211.
- Publisher:
- Sage
Drawing on recent literature this article explores the development of research with family carers and people with dementia and identifies a number of themes that have emerged over time. It raises fundamental questions about the nature and purpose of research and the balance of power between researchers, family carers and people with dementia. Existing notions of expertise and knowledge are called into question and the article concludes with a call for a more empowering and inclusive model of research and practice based upon a relationship-centred approach to care.