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Support/services among family caregivers of persons with dementia - perceived importance and services received
- Authors:
- ALWIN Jenny, OBERG Birgitta, KREVERS Barbro
- Journal article citation:
- International Journal of Geriatric Psychiatry, 25(3), March 2010, pp.240-248.
- Publisher:
- Wiley
This study examines the perceptions of family caregivers for older people with dementia. Focusing on the important types of support and services in relation to experienced negative impact (NI) due to the caregiver situation, and investigating if caregivers receive the support and services perceived as important, this study, based on the Swedish part of the EUROFAMCARE project, included the views of 110 caregivers of older people with dementia. Data was collected primarily through telephone interviews, and the caregivers were divided into two groups - a higher NI group and a lower NI group, based on the NI scale from the COPE index. Obtaining information and having someone to talk to were perceived as very important types of support by the most caregivers in both groups. The data indicated only one significant difference - a higher proportion of caregivers in the higher NI group reported being able to participate in activities outside of caring as very important. There was also an indication that a high proportion of caregivers in the lower NI group perceived information about the disease as very important. Support and services perceived as important by the caregivers were received both to a high and a low degree. Findings suggest that there is negligible difference between groups of caregivers experiencing higher and lower NI regarding their perception of what are important types of support and services. The caregivers rated different types of support and services within the areas of information, relief and counselling as very important.