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Navigating health and care: living independently with long term conditions: an ethnographic investigation: interim findings
- Author:
- IPSOS ETHNOGRAPHY CENTRE OF EXCELLENCE
- Publisher:
- Ipsos MORI
- Publication year:
- 2015
- Pagination:
- 44
- Place of publication:
- London
An evaluation exploring the lives of older people living with multiple long term conditions, assessing how well the health and care system is meeting their needs. The evaluation heard the views of 36 patients, family members and carers in order to gain an insight into their experiences of living with and managing their long term conditions and the care they receive. The key findings of the evaluation include: people greatly value the care and support they receive from the NHS and the wider health and care sector, and in the main feel the care they receive is good; however, they often feel the system is not set up to cope with their multiple and complex needs; people with more than one long term condition struggle to coordinate them all and they can feel there is no support linking all of their conditions and focusing on them personally and holistically; they can feel that they are a burden within their home as well as within the health and care system, which can prevent them seeking the help and support they need; and too often, there is an absence of discussion about care and care needs, within the home and within the health care system. (Edited publisher abstract)
Living independently with long term conditions: an ethnographic investigation: interim findings
- Author:
- IPSOS ETHNOGRAPHY CENTRE OF EXCELLENCE
- Publisher:
- Ipsos MORI
- Publication year:
- 2015
- Place of publication:
- London
Presentation and five videos which detail interim findings from an ethnographic evaluation to explore the experiences of older people living with and managing their long term conditions and their views on the care they receive. The evaluation covered patients’ support networks, relationships and interactions, and planning and coordination of care within their everyday lives. A filmed ethnographic approach was used where ethnographers spent a day with 15 patients, carers and their families, within their homes and local communities. Patients also completed a four-week care diary. Findings to date include: people generally feel they care they good, though feel the system is not set up to cope with multiple and complex needs. People with more than one long term condition struggle to coordinate them all and can feel there is no support focusing on them personally and holistically. It is intended that the evaluation will be used to co-design improvements in service delivery for people living with long term conditions. The final results will be published by Spring 2016. (Edited publisher abstract)