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Unpaid older carers: the backbone of community care - what community care?
- Authors:
- DILLENBURGER Karola, MCKERR Lyn
- Journal article citation:
- Generations Review, 19(3), July 2009, Online only
- Publisher:
- British Society of Gerontology
A recent study conducted in Northern Ireland asked older parents who care for their sons and daughters with disabilities at home about their experiences. This article highlights some of their responses. Recommendations for policy makers are included.
What the future holds: older people caring for adult sons and daughters with disabilities
- Authors:
- DILLENBURGER Karola, MCKERR Lyn
- Publisher:
- Changing Ageing Partnership
- Publication year:
- 2009
- Pagination:
- 150p., bibliog.
- Place of publication:
- Belfast
This report is based on interviews with 29 parents reporting on 27 adult sons and daughters with disabilities in which issues were explored in relation to present life circumstances, support from family and service providers, levels of health and impairment, and futures planning. Findings expose high levels of commitment and love for sons and daughters in the face of, at times, severe disabilities and carers’ ill health. Carers also experienced twice the level of psychological stress than the general population. They faced worry and loneliness, experienced severe lack of statutory support, and reported near non-existence of futures planning, especially in cases with highest levels of impairment.