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Ageing people with a lifelong disability: challenges for the aged care and disability sectors
- Author:
- BIGBY Christine
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 27(4), December 2002, pp.231-241.
- Publisher:
- Taylor and Francis
This article compares and contrasts Australian policy directions in aged care and disability. Using people with intellectual disability as an exemplar of those who are ageing with a lifelong disability, the paper analyses their location within and the services offered to them by each sector. The paper argues that neither sector adequately addresses the issues raised by the needs of this group and suggests why this is so. Directions for policy and service developments necessary to ensure that the needs of this growing population are met are suggested. These are broadly categorised as; systematically bridging existing gaps with specialist services; supporting inclusion and ensuring older people with lifelong disability are visible within the aged care system; adapting and resourcing the disability sector to facilitate ageing in place; and developing partnerships and joint planning aimed at the removal of cross- and intra-sector obstacles to accessing appropriate services.
Facilitating transition: elements of successful case management practice for older parents of adults with intellectual disability
- Authors:
- BIGBY Christine, OZANNE Elizabeth, GORDON Meg
- Journal article citation:
- Journal of Gerontological Social Work, 37(3/4), 2002, pp.24-43.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
The increased life expectancy of people with intellectual disability raises the dual issues of supporting aging parental carers to continue in their role and ensuring a smooth transition for middle-aged adults with intellectual disability to non-parental care. However, few services are specifically designed to respond to these issues and older carers are not generally dissagregated from other groups. This paper reports on an evaluation that examined the characteristics of these families, the outcomes for carers and adults, and the strategies adopted to achieve these. The elements of successful case management practice with older carers demonstrated in the programs were proactivity and prevention with a dual emphasis on maintenance and change for both the carer and their adult child with intellectual disability. Demands on carers were reduced by the introduction of formal services such as “recreation as respite” whilst the environmental demands for adults were increased, thus effecting change and providing vital ingredients for preparation for the future.