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Guidelines for nursing homes delivering end-of-life care to residents with dementia across the island of Ireland
- Authors:
- CAHILL Suzanne, DORAN Daphne, WATSON Max
- Journal article citation:
- Quality in Ageing and Older Adults, 13(1), 2012, pp.60-70.
- Publisher:
- Emerald
This study investigated the experiences of elderly spouses whose relatives died with end-stage dementia in nursing homes in both Northern Ireland (NI) and the Republic of Ireland (RoI), with a view to improving quality of life for people with end stage dementia living in residential care settings. The study aimed to draft guidelines to a multi-disciplinary group of health service professionals for their critical appraisal and ratification. Results indicated that the care delivered was deemed by most elderly spouses to be of high quality, with person centred, individual, kind, professional care highly valued. Areas of dissatisfaction included poor communication, lack of involvement in key decision making, and poor symptoms control. Based on the study's findings, guidelines for the delivery of quality care in long stay residential institutions were developed in consultation with eight health service professionals.