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Dementia patients caregivers quality of life: the pixel study
- Author:
- THOMAS Philippe
- Journal article citation:
- International Journal of Geriatric Psychiatry, 21(1), January 2006, pp.50-56.
- Publisher:
- Wiley
This French survey aimed to determine parameters influencing caregivers' quality of life, and its possible link with patients' quality of life. A scale measuring caregivers' quality of life, developed from data from previous PIXEL studies was used. It is a questionnaire composed of 20 items. The scale was related to the socio-demographic data of both patients and their main caregivers, to the ADRQL scale (Alzheimer Disease Related Quality Life) of Rabins for the QoL of dementia patients, to the patients medical and therapeutic data, specially a neuropsychological inventory: Folstein's cognition test, Cornell's depression scale, the fast battery of frontal assessment, Katz's dependence index, Cummings' neuropsychiatric inventory for behavioural and psychological symptoms of dementia and to a physician evaluation of caregiver's depression. One hundred patients diagnosed with dementia who live at home with their principal caregivers were recruited for this survey. The caregivers' quality of life was correlated to the quality of life of the patients they cared for, the importance of behavioural disorders, and the duration of dementia evolution. Women caregivers had a worse quality of life and were more depressive than men.
Family, Alzheimer's disease and negative symptoms
- Authors:
- THOMAS Philippe, et al
- Journal article citation:
- International Journal of Geriatric Psychiatry, 16(2), February 2001, pp.192-202.
- Publisher:
- Wiley
This French study looks at the correlation between the presence of apathy measured by Marin's scale and family complaints related to withdrawal and the loss of motivation, or depression. The multicentre study was performed on 58 non-demented elderly people, 132 outpatients with Alzheimer's-type dementia, as well as their main caregiver. Results found the first family complaint relates to the loss of motivation. Depression and apathy also attracted a high complaint score. When the family complaint concerning the loss of motivation is present, apathy is significantly more common. Family complaints about withdrawal and loss of motivation are frequently present, and are congruent with the actual presence of apathy in the patient. Concludes that both apathy and depression, which are present at the severe stage of Alzheimer's disease, increase the perception of family burden.