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Funding long-term care for older people: lessons from other countries
- Authors:
- GLENDINNING Caroline, et al
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 2004
- Pagination:
- 35p., bibliog.
- Place of publication:
- York
An evaluation of how other countries are devising fair and sustainable ways of funding long-term care for older people. Like the UK, many other countries are facing challenges in devising fair and sustainable ways of funding the long-term care needed by new generations of older people. While the challenges are similar, their responses are sometimes very different from our own. Nevertheless, their experiences can provide valuable lessons for the UK. This report draws on the experiences of long-term care funding – both the raising of revenue and the mechanisms by which it is allocated to services and allowances – in Australia, Austria, Denmark, France, Germany, Japan, Netherlands, Scotland and the United States.
Women and poverty in Britain
- Editors:
- GLENDINNING Caroline, Millar Jane
- Publisher:
- Wheatsheaf Books
- Publication year:
- 1987
- Pagination:
- 302p., bibliog.
- Place of publication:
- Brighton
Outcomes-focused services for older people
- Authors:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE, GLENDINNING Caroline, et al
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2006
- Pagination:
- 134p.
- Place of publication:
- London
This project was commissioned by the Social Care Institute for Excellence (SCIE), to form the basis of practice guidance published by SCIE to support the implementation of proposals in the health and care White Paper, Our Health, Our Care, Our Say. It helped to strengthen the evidence base on how to deliver outcomes-focused services for older people and carers. The project aimed to identify: the service outcomes that were valued by older people and their carers; the organisational and other factors that helped or hindered the delivery of desired outcomes; and examples of good practice in outcomes-focused, person-centred services for older people and their carers. Outcomes' are defined as the impact, or end-results, of services on a person's life; therefore outcomes-focused services are those that aim to achieve the priorities that service users themselves identify as important. The project had two stages. The first covered research on the outcomes valued by older people and their carers; and examples of outcomes-focused practices, including changes in ways of funding, organising or commissioning services, assessment or review arrangements, or the activities of service provider organisations. A postal survey was undertaken to find out how widely outcomes-focused approaches were being developed in services for older people and carers across England and Wales, and the range of different projects or approaches involved. The study then focused on six localities in more depth, examining what changes had been made to the organisation and delivery of services; and the impact of those changes, from the perspectives of service users and carers, managers and front-line staff. The project was supported by an Advisory Group of Service Users, that met at key stages during the project. The Outcomes Network established by SPRU also contributed advice throughout the project.
Choice and independence over the lifecourse: final report to the Department of Health
- Authors:
- GLENDINNING Caroline, et al
- Publisher:
- University of York. Social Policy Research Unit
- Publication year:
- 2011
- Pagination:
- 43p.
- Place of publication:
- York
Between 2006 and 2011 the Social Policy Research Unit (SPRU) at the University of York carried out a programme of research on choice for disabled and older people who need social care support, and their family carers, called ‘Choice and Independence over the Lifecourse’. This final report for the Department of Health (DH) provides an overview of this programme of research. The account of the research is divided into 3 sections: projects funded from the main DH programme grant; projects funded through SPRU’s ‘responsive mode’ capacity; and other projects linked to the DH programme. An account of the relevance of the research programme to DH policy and its implementation at local levels is also provided. The research conducted by SPRU within its DH-funded programme has, for the most part, been concerned with issues of choice, from the perspectives of users, carers, service providers and managers. At the heart of the programme was a major long-term study of disabled young people, working age adults and older people as their health and other circumstances changed. The report concludes with a list of the published outputs (peer reviewed journal articles, books and reports, research summaries, professional press, and presentations) emerging from this research programme.
Choice and change: disabled adults' and older peoples' experiences of making choices about services and support
- Authors:
- BAXTER Helen, RABIEE Parvaneh, GLENDINNING Caroline
- Publisher:
- University of York. Social Policy Research Unit
- Publication year:
- 2011
- Pagination:
- 4p.
- Place of publication:
- York
This study explored the experiences of disabled people of working age and older who were likely to have to take frequent decisions because of their changing health status. Thirty working age and older people with fluctuating conditions and twenty with the recent sudden onset of severe impairments were recruited to the study from diverse backgrounds across England; around two-thirds remained in the study after three years. Participants were interviewed on at least three occasions between 2007 and 2010, to explore recent experiences of making choices about services including: the information and advice people sought; the options considered; the factors taken into account; the outcomes of these choices over time; and the roles played by family, friends and professionals in the choices that were made. Fifteen ‘significant others’, reported as having played an important role in a particular choice, were also interviewed. Data were analysed to identify common and contrasting patterns. Analysis addressed specific questions and drew wherever possible on data from all interview rounds to maximise the longitudinal dimension of the study. Key findings include that choice is important in maintaining health, independence and identity, but that exercising choice can be limited by lack of information or acceptable options. Implications for professionals are summarised.
Dartington review on the future of adult social care: what can England learn from the experiences of other countries?
- Author:
- GLENDINNING Caroline
- Publisher:
- Research in Practice for Adults
- Publication year:
- 2010
- Pagination:
- 24p., bibliog.
- Place of publication:
- Dartington
This paper examines the potential future funding and delivery of adult social care by investigating the experiences of other advanced welfare states, including Denmark, Netherlands and Japan. In 2008 the English Government announced consultation on the future funding and delivery of care and support for disabled adults and older people. A Green Paper was published which suggested a number of potentially radical changes to adult social care and a further period of consultation was announced. However, these debates are also much longer standing. Despite projections of demographic change, particularly future population ageing, this on-going consultation suggests that politically acceptable and economically sustainable solutions are hard to find. If central government becomes responsible for deciding on the levels of resources allocated to individual service users, then it would be unfair to expect local authorities to contribute resources from local council tax – central government would become responsible for raising all the resources for social care, from taxation and insurance mechanisms; a move entirely consistent with reform elsewhere in the world.
Paying for care: lessons from Europe
- Authors:
- GLENDINNING Caroline, McLAUGHLIN Eithne
- Publisher:
- HMSO/Great Britain. Social Security Advisory Committee
- Publication year:
- 1993
- Pagination:
- 169p.,tables,bibliog.
- Place of publication:
- London
Comparative study looking at financial support for informal carers which has been introduced in some developed countries in the light of demographic trends experienced across Europe.
People who fund their own social care: scoping review
- Authors:
- BAXTER Kate, GLENDINNING Caroline
- Publisher:
- NIHR School for Social Care Research
- Publication year:
- 2014
- Pagination:
- 50
- Place of publication:
- London
Scoping review which identifies research evidence about people who fund their own social care in England. Specifically the review looks at: the size of the self-funding population and its characteristics (age, region, type of care); information, advice and help available and needed by self-funders; the experiences care providers have of people funding their own social care; and gaps in the available evidence. The review comprised: a search of electronic databases; a search of the websites of selected organisations; and contacts with a small number of organisations known to have been active in research about self-funders. A total of 185 relevant pieces of work published since 2000 were identified, and 71 met the inclusion criteria. Information retrieved focussed on residential care, domiciliary care or both. Evidence suggests that the number and percentage of self-funders has increased in both residential and home care; many felt local authorities were unwilling to help them with their information needs and they were often signposted elsewhere; main information needs were in relation to fees and finances, particularly the long term financial implications of care. Gaps in the research evidence identified include: the number and characteristics of self-funders; factors that influence the level of demand; the levels of support needed; how tasks carried out for self-funders might differ from local authority-funded clients; and the experiences and outcomes for self-funder. Recommendations are made on key areas for potential future research. (Edited publisher abstract)
Care provision within families and its socio-economic impact on care providers across the European Union
- Authors:
- GLENDINNING Caroline, et al
- Publisher:
- University of York. Social Policy Research Unit
- Publication year:
- 2009
- Pagination:
- 4p.
- Place of publication:
- York
This is summary of a study that aimed to compile evidence on: the prevalence of long-term informal care-giving within a family setting to dependent family members or relatives in various EU countries, focusing on the most ‘heavily burdened’ carers; the socio-economic impact of care-giving on the households of family carers; and measures aimed at alleviating burdens on family carers by supporting them in the provision of care and/or compensating for the adverse socio-economic consequences of care-giving. The study used existing national and transnational sources of data, including official statistics and published primary research. Burden and socio-economic impacts of carers of older people and non-older people are discussed in separate sections. Policy and practice measures designed to support carers, rated according to the robustness of evidence also included.
Reforming long-term care: recent lessons from other countries
- Authors:
- GLENDINNING Caroline, MORAN Nicola
- Publisher:
- University of York. Social Policy Research Unit
- Publication year:
- 2009
- Pagination:
- 51p., bibliog.
- Place of publication:
- York
This paper reports on a review that explored the experiences of a number of countries in reforming their arrangements for funding and delivering long term care. It aimed to: describe the key features of social care funding and service delivery in a number of countries; examine the current debates and reforms in arrangements for funding and delivery in these countries; discuss the implications and lessons for reform in England. In doing so, three issues were of particular interest: the promotion of choice through individual budgets; sustainability of current arrangements; the extent to which funding and delivery arrangements apply equally to older and younger people with care and support needs. The paper concludes with a number of lessons for the reform of care and support in England.