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Living and dying with dementia in England: barriers to care
- Authors:
- MARIE CURIE CANCER CARE, ALZHEIMER'S SOCIETY
- Publishers:
- Marie Curie Cancer Care, Alzheimer's Society
- Publication year:
- 2014
- Pagination:
- 24
- Place of publication:
- London
This report assesses access to appropriate high quality care in the final stage of dementia – a progressive, terminal illness. It highlights that dementia is often not recognised as a terminal diagnosis, and this can lead to poor access to care, inconsistent quality of care and inadequate pain management. The report draws on research from across the UK and particularly from University College London, as well as findings from health and social care services. The paper examines the three main barriers that prevent many people from accessing appropriate high-quality care at the end of their lives. These are: poor identification and planning, including poor recognition of dementia as a terminal illness and a cause of death and lack of appropriate/timely diagnosis and care planning; inequality of access to palliative care, hospice care and funding and discrimination; and inconsistency in care standards and inappropriate hospital admissions. The report aims to bring together NHS organisations, social care bodies, royal colleges, charities, researchers, and people with experience of dementia and end of life care, to explore how to address the barriers and develop an action plan that each organisation can to sign up to. (Edited publisher abstract)
Dementia-friendly technology: a charter that helps every person with dementia benefit from technology that meets their needs
- Author:
- ALZHEIMER'S SOCIETY
- Publisher:
- Alzheimer's Society
- Publication year:
- 2014
- Pagination:
- 30
- Place of publication:
- London
The Dementia-friendly technology charter aims to give people with dementia and their carers information on how to access technology and provides guidance to health, housing and social care professionals on how to make technology work for people based on their individual needs. The charter, developed by a diverse working group led by Tunstall Healthcare, has been produced as part of the Dementia Friendly Communities programme. The charter sets out in detail what considerations community and primary care providers need to give to technology and what they need to have in place during the different stages of a person with dementia’s journey, including before diagnosis, after diagnosis, during a crisis and when more complex needs appear. It also illustrates the key components of a good technology service and includes a self-evaluation check list for commissioners and providers. (Edited publisher abstract)