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Briefing paper on the Tackling Loneliness Network – Older People’s Task and Finish Group
- Authors:
- INDEPENDENT AGE, ALZHEIMER'S SOCIETY
- Publisher:
- Independent Age
- Publication year:
- 2021
- Pagination:
- 22
- Place of publication:
- London
This briefing provides insight into the resilience of individuals experiencing loneliness and volunteer and organisations tackling loneliness during the pandemic. Coping with bereavement, loss of social contact, increasing anxiety and depression, a reduction in confidence and digital exclusion have all been raised as areas of concern for people in later life and the organisations that support them. The Network also heard from many about the challenges facing third sector organisations and the volunteer workforce that support people in later life who feel lonely. They are dealing with unprecedented demand and situations they could never have predicted, often without the resources to cope. Despite the introduction of COVID-19 vaccines, uncertain times lie ahead and many are deeply worried about what will happen over the coming months. The resilience of people in later life, and the volunteers and organisations who support them, is being tested like never before: more than three quarters of the latter have experienced an increase in need for their services. The report provides recommendations for Government, business and the voluntary sector on how to tackle the immediate impacts of COVID and address the structural factors that affect the experience of people in later life. (Edited publisher abstract)
Guidelines for care: person-centred care of people with dementia living in care homes: framework
- Author:
- ALZHEIMER'S SOCIETY
- Publisher:
- Alzheimer Society of Canada
- Publication year:
- 2011
- Pagination:
- 67p., bibliog.
- Place of publication:
- Toronto
These guidelines for care present a framework aimed at improving the quality of care of people with dementia in care homes through a person-centred philosophy. The Alzheimer Society suggests that people with dementia have the right to enjoy the highest possible quality of life and quality of care by being engaged in meaningful relationships which are based on equality, understanding, sharing, participation, collaboration, dignity, trust and respect. The framework is an evidence based foundation for the development of knowledge translation tools to enhance quality care. A Rapid Evidence Assessment (REA) was completed to systematically examine practice guidelines published in peer-reviewed journals regarding the care of people in advanced stages of Alzheimer's disease living in care homes. The guidelines consist of the following sections: what does a person-centred philosophy mean; what does person-centred care look like in a care home; ensuring family inclusiveness; extending a person-centred philosophy through end of life.
Putting care right: your guide to choosing a care home
- Author:
- ALZHEIMER'S SOCIETY
- Publisher:
- Alzheimer's Society
- Publication year:
- 2008
- Pagination:
- 23p.
- Place of publication:
- London
This guide features the essential issues to consider when deciding on a care home for a person with dementia. It lists questions families can put to care home staff and includes blank pages for notes on the places they visit. This guide raises the crucial questions everyone should ask about care homes. It will also help people to understand how to recognise quality care and help them to start demanding the high standards of care that people with dementia deserve. The charity’s survey found a third of people over 55 have experience of looking for care homes, but nationwide more than more than four out of ten people admit they would not know what to look for in a good care home. Skilled staff appear to be more important than a nicely decorated room when it comes to deciding on the quality of residential care. A choice of activities and access to outside space was also rated as important by more than 94 per cent of people.
Dementia in rural Wales: the three challenges
- Author:
- ALZHEIMER'S SOCIETY
- Publisher:
- Alzheimer's Society
- Publication year:
- 2016
- Pagination:
- 16
- Place of publication:
- London
This report looks at current situation for people with dementia living in rural areas in Wales and their carers. Based on an analysis of existing data, the report estimates that there approximately 17,000 people in Wales living in rural areas who have dementia. It identifies three main challenges: the continuing rise of dementia in rural area, the additional challenges faced by people affected by dementia living in remote areas, and developing a policy response to meet these challenges. Challenges identified from interviews with people affected by dementia in rural areas included poor transport links which make it harder to access help, support services less likely to be commissioned in rural areas, lack of awareness of dementia, and carers more likely to feel isolated and unsupported. The report sets out a series of recommendations in order to find out more about the extent, impact and potential growth of dementia in rural areas, and to see how Wales can lead the way in supporting people affected by it. (Edited publisher abstract)
Living and dying with dementia in England: barriers to care
- Authors:
- MARIE CURIE CANCER CARE, ALZHEIMER'S SOCIETY
- Publishers:
- Marie Curie Cancer Care, Alzheimer's Society
- Publication year:
- 2014
- Pagination:
- 24
- Place of publication:
- London
This report assesses access to appropriate high quality care in the final stage of dementia – a progressive, terminal illness. It highlights that dementia is often not recognised as a terminal diagnosis, and this can lead to poor access to care, inconsistent quality of care and inadequate pain management. The report draws on research from across the UK and particularly from University College London, as well as findings from health and social care services. The paper examines the three main barriers that prevent many people from accessing appropriate high-quality care at the end of their lives. These are: poor identification and planning, including poor recognition of dementia as a terminal illness and a cause of death and lack of appropriate/timely diagnosis and care planning; inequality of access to palliative care, hospice care and funding and discrimination; and inconsistency in care standards and inappropriate hospital admissions. The report aims to bring together NHS organisations, social care bodies, royal colleges, charities, researchers, and people with experience of dementia and end of life care, to explore how to address the barriers and develop an action plan that each organisation can to sign up to. (Edited publisher abstract)
Optimising treatment and care for people with behavioural and psychological symptoms of dementia: a best practice guide for health and social care professionals
- Author:
- ALZHEIMER'S SOCIETY
- Publisher:
- Alzheimer's Society
- Publication year:
- 2011
- Pagination:
- 26p.
- Place of publication:
- London
More than 90% of people with dementia will experience behavioural and psychological symptoms of dementia (BPSD) as part of their illness. These symptoms include agitation, aggression, hallucinations and delusions. This guide has been designed to support health and social care professionals to determine the best treatment and care for people experiencing BPSD. It has been designed to be a practical, informative tool, with an emphasis on alternatives to drug treatment. Good practice recommendations, such as the NICE dementia guidelines, recommend psychosocial interventions as the first line approach and emphasise the importance of assessing medical conditions and pain, which often underpin the development of these symptoms. The value of not rushing into treatment is also important, as many people with BPSD will experience significant improvement or resolution of symptoms over a 4-6 week period. The toolkit provides 2 simple flow diagrams to be used depending on whether the person with dementia is already prescribed antipsychotics or not. The flow diagrams should be used to determine the best care and treatment for each person with dementia. The guidance, charts and care plans are colour-coded according to a traffic light system representing: prevention; watchful waiting; and specific interventions and antipsychotic prescription.
Home from home: quality of care for people with dementia living in care homes
- Author:
- ALZHEIMER'S SOCIETY
- Publisher:
- Alzheimer's Society
- Publication year:
- 2007
- Pagination:
- 69p., bibliog.
- Place of publication:
- London
The Alzheimer's Society's Home From Home report calls for care homes to begin operating as specialist dementia care providers. Research shows a typical person with dementia in a care home spends just two minutes in every six hours socially interacting with other people - most of these residents are in the advanced stages of dementia and rely on the support of trained staff. The Home From Home report features a survey of more than 3,500 people, including relatives of people with dementia, care home staff and managers. The survey shows more than half of people with a relative in residential care say there is not enough for the person with dementia to do each day. Over one in four family carers feel they do not receive enough information about the care and treatment of the person they care for. Care home staff say providing care that improves the quality of life of residents with dementia is the top factor in job satisfaction.
Dementia-friendly technology: a charter that helps every person with dementia benefit from technology that meets their needs
- Author:
- ALZHEIMER'S SOCIETY
- Publisher:
- Alzheimer's Society
- Publication year:
- 2014
- Pagination:
- 30
- Place of publication:
- London
The Dementia-friendly technology charter aims to give people with dementia and their carers information on how to access technology and provides guidance to health, housing and social care professionals on how to make technology work for people based on their individual needs. The charter, developed by a diverse working group led by Tunstall Healthcare, has been produced as part of the Dementia Friendly Communities programme. The charter sets out in detail what considerations community and primary care providers need to give to technology and what they need to have in place during the different stages of a person with dementia’s journey, including before diagnosis, after diagnosis, during a crisis and when more complex needs appear. It also illustrates the key components of a good technology service and includes a self-evaluation check list for commissioners and providers. (Edited publisher abstract)
Let's make it happen: the national service framework for older people; a briefing and local action plan for staff, volunteers and supporters of the Alzheimer's Society
- Author:
- ALZHEIMER'S SOCIETY
- Publisher:
- Alzheimer's Society
- Publication year:
- 2002
- Pagination:
- 40p.
- Place of publication:
- London
The National Service Framework for Older People (NSF), outlines the government’s ten year strategy to provide comprehensive, integrated and high quality health and social care services for older people in England. It also includes the needs of younger people with dementia. Its success depends on how well it is implemented across the country. This document has been written to help branches of the Alzheimer’s Society to get involved in implementing the NSF in their area.