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A profile of support group use and need among middle-aged and older adults with multiple sclerosis
- Authors:
- FINLAYSON Marcia L., CHO Chi C.
- Journal article citation:
- Journal of Gerontological Social Work, 54(5), July 2011, pp.475-493.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Support groups can play an important role in the lives of people with multiple sclerosis (MS), enabling them to learn more about the disease, obtain support from peers, and to enhance their ability to cope with and manage the consequences of the disease. The aim of this study was to compare the profile of individuals with MS by their use of support groups, and to identify factors associated with perceived need for support groups. The analysis used data from 1,275 participants in a large cross-sectional descriptive study of middle-aged and older adults with MS that focused on their unmet needs. The findings showed that over 64.6% of participants had attended a MS support group meeting at least once. Individuals who had never attended a group were more likely to reside in urban or suburban communities, report lower symptom interference, and fewer activity limitations. Women, individuals without a helper, and people with greater symptom interference were more likely to perceive a need for a support group. These findings are likely to be of value for professionals involved in developing and implementing multiple sclerosis support groups.
Change of identity: the psychological and emotional impact of caring for someone with multiple sclerosis
- Authors:
- HEWARD Kate, GOUGH Brendan, MOLINEUX Matthew
- Journal article citation:
- Social Care and Neurodisability, 2(1), 2011, pp.21-32.
- Publisher:
- Emerald
In the United Kingdom, multiple sclerosis (MS) is the most common disease of the central nervous system affecting young adults, with more than 85,000 living with the condition. The diagnosis of such a condition impacts many aspects of daily life not only for the diagnosed, but also for their carers who are likely to have emotional and psychological problems. This paper describes a study with nine partners/carers that examined the impact of caring for someone with MS, and asked whether or not partners’ identities are affected by taking a central role in caring – including how existing identities are maintained and new ones acquired. Findings revealed two core themes: ‘playing detective’, or seeking evidence regarding symptoms in order to reach a possible diagnosis; and ‘reshaping identities’ such as becoming a sole parent and income generator. In conclusion, it is essential that professionals working with MS are aware that identities within families can change over time, and that there are issues that can arise through these changes that need to be addressed.
Enhancing the mental well-being of people with multiple sclerosis
- Authors:
- ASKEY-JONES Sally, et al
- Journal article citation:
- Nursing Times, 24.2.09, 2009, p.22.
- Publisher:
- Nursing Times
Briefly reports on a services that aims to enhance the mental and emotional wellbeing of people who have multiple sclerosis. The service provides assessment and treatment using medication, cognitive behavioural therapy (CBT) and psychosocial interventions. Patients also receive education that helps them empower them to take control over their lives.
Supporting people with multiple sclerosis in employment: a United Kingdom survey of current practice and experience
- Author:
- TOWNSEND Gail
- Journal article citation:
- British Journal of Occupational Therapy, 71(3), March 2008, pp.103-111.
- Publisher:
- Sage
This paper reports on one section of a larger project, which examined employment issues from the perspectives of people with multiple sclerosis (MS) and the professionals who may support them in retaining or regaining employment. The aims of the study were, first, to explore the knowledge and experience of MS specialists, occupational therapists and disability employment advisers of employment and MS and, second, to identify the current practice of professionals supporting people with MS in work. A postal questionnaire was used to elicit a wide range of responses. The results showed that the impact of MS on employment was well understood, but that there was less awareness of the wider social influences on the ability to retain employment. There was evidence of a range of support being offered by some participants, but there appeared to be a gap between the problems reported and interventions offered overall. There is a need for further research to develop effective interventions targeted at supporting people with MS in work, which will underpin the implementation of Quality Requirement 6 of the National Service Framework for Long-Term Conditions.
It's my life: an interactive resources for social care professionals
- Authors:
- MULTIPLE SCLEROSIS SOCIETY, (Producer)
- Publisher:
- Multiple Sclerosis Society
- Publication year:
- 2007
- Pagination:
- CD ROM
- Place of publication:
- London
Multiple Sclerosis (MS) is the most common disabling neurological condition affecting young adults. Around 85,000 people in the UK have MS. MS is the result of damage to myelin - a protective sheath surrounding nerve fibres of the central nervous system. For some people, MS is characterised by periods of relapse and remission while for others it has a progressive pattern. For everyone, it makes life unpredictable. The film provides helpful information about all these aspects of MS
Filling the void: how real life health information builds better services
- Author:
- SUE RYDER CARE
- Publisher:
- Sue Ryder Care
- Publication year:
- 2007
- Pagination:
- 12p.
- Place of publication:
- London
The report has revealed a ‘hidden population’ of people living with conditions including multiple sclerosis, Huntington’s disease, Motor Neurone disease and stroke who are unknown to health bodies. Crucially a lack of data is creating a very real barrier to ensuring they receive appropriate, effective and cost-efficient care.
When everything happens at once
- Author:
- -
- Journal article citation:
- Community Care, 11.05.07, 2007, pp.40-41.
- Publisher:
- Reed Business Information
A multidisciplinary team advises on the case of a pregnant women who is abandoned by her partner and finds out she has a multiple sclerosis soon after her child is born.
Women's issues: pregnancy, menstruation, contraception and menopause
- Author:
- NEILD Chloe
- Publisher:
- Multiple Sclerosis Society
- Publication year:
- 2006
- Pagination:
- 15p.
- Place of publication:
- London
There are a number of issues that specifically concern women with Multiple Sclerosis (MS) Why are more women affected? Do hormones play a role? Does menstruation make symptoms worse? Will medications affect the ability to become pregnant? Will the condition affect pregnancy or childbirth? Will MS impact on hormone replacement therapy and the symptoms of menopause? In this publication, these questions, and many others, are answered.
Multiple sclerosis
- Author:
- BURNFIELD Alexander
- Publisher:
- Heinemann Library
- Publication year:
- 2005
- Pagination:
- 56p.
- Place of publication:
- Oxford
Multiple Sclerosis looks at the symptoms of MS, discusses who is most likely to develop the condition and explians how it is diagnosed. It looks at what it is like to have MS and how it affects daily life. It also explores the historical background to MS as well as current treatments and new areas of scientific research into a cure.
Symptoms of depression in older adults with multiple sclerosis (MS): comparison with a matched sample of younger adults
- Authors:
- KNEEBONE I. I., DUNMORE E. C., EVANS E.
- Journal article citation:
- Aging and Mental Health, 7(3), May 2003, pp.182-185.
- Publisher:
- Taylor and Francis
The study considered for the first time depression in older adults with multiple sclerosis (MS). Depression symptom scores of 27 persons aged over 65 years who were part of a large study of persons with MS (n1/4529), were compared with those of a matched sample of younger adults from the same study. The association between cognitive (attitudinal) variables known to explain significant variance in depressive symptoms in younger adults with MS was then considered in the older adult sample. Consistent with findings from studies with general community samples, older adults with MS reported significantly fewer depressive symptoms than younger adults with MS. The relationship between cognitive variables and depressive symptoms found previously in younger adults was also evident for the older adults. Multiple sclerosis related helplessness was found to be significantly higher in older as opposed to younger adults with MS, the opposite of what was predicted given the differences between the groups in depression scores. Differences in the cognitive variables do not appear to explain the differences between older and younger adults with MS in terms of depressive symptoms. This finding offers support for the view that a decrease in emotional responsiveness may explain differences in depressive symptoms between younger and older adults with MS, rather than this being the result of differences in emotional control exerted via cognitive means.