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Measuring carer burden in informal carers of patients with long-term conditions
- Authors:
- KUDRA Aleksandra, LEES Carolyn, MORRELL-SCOTT Nicola
- Journal article citation:
- British Journal of Community Nursing, 22(5), 2017, p.230–236.
- Publisher:
- MA Healthcare
- Place of publication:
- London
Introduction: The aim of this literature review is to identify the most common tools used to measure burden in carers of people with Parkinson's disease (PD), heart failure (HF), multiple sclerosis (MS) and chronic obstructive pulmonary disease (COPD). Method: Databases such as Medline, PsycINFO, CINAHL and Academic Search Complete were searched. Studies in which carer burden was measured were included. Results: Zarit Burden Inventory and Caregiver Reaction Assessment were most commonly used to measure carer burden, regardless of the chronic condition. A wide range of other instruments were also used. Conclusions: Even though a range of tools are available, further improvements are necessary in order to enable healthcare professionals to identify carers experiencing high burden. (Publisher abstract)
Social identity in people with multiple sclerosis: a meta-synthesis of qualitative research
- Authors:
- BARKER Alex B., et al
- Journal article citation:
- Social Care and Neurodisability, 5(4), 2014, pp.256-267.
- Publisher:
- Emerald
Purpose: Many aspects of the self are lost as a consequence of having multiple sclerosis (MS). A person's identity can be altered by negative self-concepts, which are associated with poor psychological wellbeing and can lead individuals to reconstruct their sense of self. The Social Identity Model of Identity Change argues that previously established identities form a basis of continued social support, by providing grounding and connectedness to others to facilitate the establishment of new identities. Family support is a salient factor in adjustment to MS and may enable the establishment of new identities. The purpose of this paper is to investigate identity reconstruction following a diagnosis of MS. Design/methodology/approach: A meta-synthesis of the qualitative literature was conducted to examine the relationship between identity change and family identity of people with MS and other family members. Findings: In all, 16 studies were identified that examined identity change and the family following a diagnosis of MS. Coping strategies used by people with MS and their wider family groups, affect the reconstruction of people's identity and the adjustment to MS. Receiving support from the family whilst a new identity is constructed can buffer against the negative effects of identity loss. Practical implications: The family base is strengthened if MS-related problems in daily life are adapted into the individual and family identity using positive coping styles. Originality/value: This review provides an interpretation and explanation for results of previous qualitative studies in this area. (Publisher abstract)
Cognitive-behavioural therapy for depression in people with a somatic disease: meta-analysis of randomised controlled trials
- Authors:
- BELTMAN Matthijs W, VOSHAAR Richard C. Oude, SPECKENS Anne E.
- Journal article citation:
- British Journal of Psychiatry, 197(1), July 2010, pp.11-19.
- Publisher:
- Cambridge University Press
This article describes a meta-analysis of the effectiveness of cognitive-behavioural therapy (CBT) for depression in people with an underlying somatic disease. The hypothesis was that there would be higher efficacy in people who met predefined criteria for depression, so separate meta-analyses were conducted for studies of participants with depressive disorder from those with depressive symptoms. A literature search for relevant studies was conducted in several databases up to October 2008. Twenty nine papers that described randomised controlled studies meeting the inclusion criteria were selected. The results showed that cognitive–behavioural therapy was superior to control conditions, with larger effects in studies restricted to participants with depressive disorder than in studies of participants with depressive symptoms. Subgroup analyses showed that CBT was not superior to other psychotherapies. The article concludes that cognitive–behavioural therapy significantly reduces depressive symptoms in people with a somatic disease, especially in those who meet the criteria for a depressive disorder.
Too ill to talk: user involvement and palliative care
- Authors:
- SMALL Neil, RHODES Penny
- Publisher:
- Routledge
- Publication year:
- 2000
- Pagination:
- 263p.,bibliog.
- Place of publication:
- London
Debates the concept of user involvement in the context of people with serious illness. Reviews the literature on user involvement, describes user involvement in palliative care, and reviews the experiences of people with multiple sclerosis, motor neurone disease, and cystic fibrosis.