Search results for ‘Subject term:"multiple sclerosis"’ Sort:
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Social work intervention with a multiple sclerosis population
- Author:
- WELCH G.J.
- Journal article citation:
- British Journal of Social Work, 17(1), 1987, pp.45-59.
- Publisher:
- Oxford University Press
Describes a stress reduction programme for members of an MS. self help group.
Supporting people with multiple sclerosis in employment: a United Kingdom survey of current practice and experience
- Author:
- TOWNSEND Gail
- Journal article citation:
- British Journal of Occupational Therapy, 71(3), March 2008, pp.103-111.
- Publisher:
- Sage
This paper reports on one section of a larger project, which examined employment issues from the perspectives of people with multiple sclerosis (MS) and the professionals who may support them in retaining or regaining employment. The aims of the study were, first, to explore the knowledge and experience of MS specialists, occupational therapists and disability employment advisers of employment and MS and, second, to identify the current practice of professionals supporting people with MS in work. A postal questionnaire was used to elicit a wide range of responses. The results showed that the impact of MS on employment was well understood, but that there was less awareness of the wider social influences on the ability to retain employment. There was evidence of a range of support being offered by some participants, but there appeared to be a gap between the problems reported and interventions offered overall. There is a need for further research to develop effective interventions targeted at supporting people with MS in work, which will underpin the implementation of Quality Requirement 6 of the National Service Framework for Long-Term Conditions.
Using telerehabilitation to support people with multiple sclerosis: a qualitative analysis of interactions, processes, and issues across three interventions
- Authors:
- FAKOLADE Afolasade, FINLAYSON Marcia, PLOW Matthew
- Journal article citation:
- British Journal of Occupational Therapy, 80(4), 2017, pp.259-268.
- Publisher:
- Sage
Introduction: It is important to understand the interactions, processes, and issues that occur within telerehabilitation interventions to inform research and practice. The aim of this study was to identify the difficulties reported and intervention features that were captured as helpful in the notes written by occupational therapists during a telerehabilitation trial. Method: Administrative documentation in the form of 60 subjective, objective, assessment, and plan notes were collected. The trial examined the effectiveness of three teleconference-delivered interventions: physical activity alone, fatigue management with physical activity, and contact-control social support for people with multiple sclerosis. Results: Five themes emerged: desiring change, taking action, experiencing difficulty, infrastructure support, and relief and appreciation. Desiring change captured therapists’ observations of clients’ desire to manage symptoms and improve participation; it was most apparent at the beginning and supported clients’ taking action as the interventions progressed. Therapists identified their own difficulties with group facilitation and time management and clients’ difficulties with some intervention materials. Infrastructure support was reported to be helpful in minimizing some of these difficulties. In the end, the therapists expressed relief that the clients appeared to benefit from and appreciate the interventions. Conclusion: This study highlights the need for and importance of providing resources and training to support teleconference-delivered interventions in clinical practice. (Publisher abstract)
Motivational interviewing may improve exercise experience for people with multiple sclerosis: a small randomized trial
- Authors:
- SMITH Douglas C., et al
- Journal article citation:
- Health and Social Work, 37(2), May 2012, pp.99-109.
- Publisher:
- Oxford University Press
Recent research has indicated that people with multiple sclerosis (MS) are likely to benefit from regular exercise. However, physical inactivity and poor exercise adherence are relatively common among people with MS. The aim of this small randomised study was to determine whether motivational interviewing (MI) affects adherence to and personal experience in an exercise programme among people with MS. The participants were 13 previously inactive people with MS participating in an 8-week exercise programme. The participants were randomly assigned to either 3 brief MI or 3 health coaching sessions. Data was collected from administrative records, observational assessments, and self-report measures. The study demonstrates the feasibility of delivering a rigorously monitored, MI-based intervention to individuals with MS. In this study, the participants attended 95% of all MI sessions. Large effects favouring the MI condition were found for physical exertion, affect during exercise, and fatigue, but no effects were found for adherence to the exercise programme. Treatment integrity measures of MI were correlated with outcomes in expected directions. These preliminary findings, and the limitations of the study, are discussed.
Evaluation of a pilot relapse support service (RSS) for people with multiple sclerosis – “a tiny pot of sunshine in my pocket”
- Authors:
- THOMAS Peter W., THOMAS Sarah, ALLEN Helen
- Journal article citation:
- Social Care and Neurodisability, 3(2), 2012, pp.89-100.
- Publisher:
- Emerald
Multiple sclerosis (MS) relapses can have a profound effect on a person's daily activities, including employment. Individual budgets may be a means of providing personalised, timely, and flexible support to people with MS in preparation for, and during, a relapse. This paper reports on a pilot scheme that aimed to help people with MS to prepare for future relapse. The one year pilot scheme conducted in East Sussex, England, aimed to help 12 people with MS by a process of tailored relapse support planning, in combination with the provision of an individual grant of £750. An evaluation was conducted incorporating telephone and face-to-face interviews which indicated that the service was valued by participants and that, overall, they reported feeling more in control of managing a relapse or worsening of symptoms. The authors concluded that the results will help inform the development and expansion of the service.
Pilot study of an educational programme for caregivers of people ageing with Multiple Sclerosis
- Authors:
- FINLAYSON Marcia, PREISSNER Katharine, GARCIA Jennifer
- Journal article citation:
- British Journal of Occupational Therapy, 72(1), January 2009, pp.11-19.
- Publisher:
- Sage
The purpose of this study was to examine the outcomes and participant-reported benefits of a multiple sclerosis (MS) caregiver education programme called 'Meeting the Challenges of MS'. Nineteen caregivers were recruited to this community-based pilot study; 12 completed all sessions. Occupational therapists facilitated five 2-hour weekly sessions, addressing strategies to problem solve the physical and emotional challenges of caregiving. Questionnaires were administered before and after the programme to determine if changes were achieved in caregivers' self-efficacy, abilities to prepare for and manage caregiving challenges, and abilities to monitor and implement personal health-promoting strategies. Focus groups obtained participants' feedback on the programme. All study procedures were approved by the university ethics committee. The participants reported that they were more prepared for their caregiving role, were able to reframe their experiences positively and sought more practical assistance. Some tests performed poorly and need to be re-examined to determine their potential for use in future studies. Feedback from the participants emphasised the value of interacting with and learning from other caregivers to develop effective problem-solving strategies and obtain peer support.
Do caregivers who connect online have better outcomes? A systematic review of online peer-support interventions for caregivers of people with stroke, dementia, traumatic brain injury, Parkinson’s disease and multiple sclerosis
- Authors:
- WALLACE Sarah J., et al
- Journal article citation:
- Brain Impairment, early cite 15 March 2021,
- Publisher:
- Cambridge University Press
Background and Objectives: This systematic review aimed to identify and appraise the evidence for online peer-support interventions for caregivers of stroke survivors (with and without aphasia), and people with dementia, traumatic brain injury (TBI), Parkinson’s disease and multiple sclerosis. Research Design and Methods: Systematic review conducted in accordance with Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. Five databases were systematically searched up until September 2020: EMBASE, PubMed, CINAHL, Scopus and Web of Science. Two reviewers independently screened titles, abstracts and full-text articles. The methodological quality of included studies was assessed using Physiotherapy Evidence Database (PEDro) and Mixed-Methods Appraisal Tool (MMAT) scales. Interventions were described using the Template for Intervention Description and Replication (TIDieR) checklist. Results: A total of 3026 records were identified from database searches. Following screening, 18 studies reporting 17 interventions were included in this review. Most studies (n = 13) reported interventions for caregivers of people with dementia. All studies incorporated an element of peer support as part of the intervention, however, most interventions (n = 15) comprised both psychosocial and educational elements. Statistically significant changes were reported for 11 interventions in one or more of the following domains: caregiver knowledge, mental health, stress, depression, distress, burden, self-efficacy, mastery, helplessness and perceived support. Qualitative outcomes included perceived reductions in stress and increased emotional and informational support. Discussion and Implications: Positive changes in caregiver outcomes were identified in response to multi-component online interventions (i.e., peer support in addition to education). Peer support was often poorly described, limiting the conclusions that could be drawn about the intervention components which result in better outcomes. Online interventions may provide an accessible and effective means of supporting caregivers. (Edited publisher abstract)