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People with MS in long-term care: good practice guidelines for service providers
- Authors:
- RIDLEY Joanna, SMYTH Ann
- Publisher:
- Multiple Sclerosis Society,|Leonard Cheshire
- Publication year:
- 1998
- Pagination:
- 20p.
- Place of publication:
- London
This guide highlights the key principles that should underlie the provision of high quality care provision in residential and nursing care homes. The Guide is aimed at managers and owners of Homes and at current and potential service users, their families and friends. It will also be of interest to purchasing and registration authority staff. People with MS often have complex care needs and it is important that staff are appropriately trained to be able to meet these needs. But the key to providing the highest quality of care is recognising and responding to the needs of people as individuals. So, while this Guide focuses on care provision as it might relate to people with MS, it also emphasises that care services within a Home need to meet the full range of physical, clinical, social, spiritual and emotional needs of each individual.
What is MS?: a guide to multiple sclerosis
- Author:
- MULTIPLE SCLEROSIS SOCIETY
- Publisher:
- Multiple Sclerosis Society
- Publication year:
- 2004
- Pagination:
- 28p.
- Place of publication:
- London
Multiple sclerosis (MS) is a condition of the central nervous system. It is the most common disabling neurological disease among young adults and affects around 85,000 people in the UK. MS is most often diagnosed in people between the ages of 20 and 40 (though it can be earlier or later). Women are almost twice as likely as men to develop MS, and in rare cases it affects children. Some people feel relief after diagnosis because they finally understand their symptoms and have a name for their condition. However, shock, fear, grief or anger are also perfectly natural reactions and it can often take several months before these feelings settle down. Adapting to life with MS can take some time, but with a generally positive attitude and appropriate health and social care, most people manage their condition well.
Improving services for people with MS: resource pack
- Authors:
- MULTIPLE SCLEROSIS SOCIETY, MS PROFESSIONAL NETWORK
- Publisher:
- Multiple Sclerosis Society
- Publication year:
- 2002
- Pagination:
- 105p., six booklets in folder.
- Place of publication:
- London
Set of six booklets: developing MS healthcare standards, workbook for assessors and healthcare professionals, parts one and two; a charter for MS services, summary and full report; developing MS healthcare standards, evidence based recommendations for service providers; the measuring success award.
Developing MS healthcare standards: evidence-based recommendations for service providers
- Authors:
- FREEMAN Jenny, et al
- Publisher:
- Multiple Sclerosis Society,|MS Professional Network
- Publication year:
- 2002
- Pagination:
- 37p.
- Place of publication:
- London
The physical and psychosocial problems experienced by people with MS are wide ranging, variable and often complex. This presents problems when defining needs and making recommendations for the provision of high quality services. There are a number of recurring themes throughout this document, reflecting those that are present for people with MS throughout the different stages of the condition. These recommendations provide a clear framework, which should inform the work of all those concerned with MS services including Primary Care Trusts (PCTs), as they lead on consulting with the community and working with social services and other agencies to decide the most effective way of delivering services to people with MS. For practical purposes we considered four phases of the condition: diagnostic; minimal impairment; moderate disability; and severe disability.
Performing identities in illness narrative: masculinity and multiple sclerosis
- Author:
- RIESSMAN Catherine Kohler
- Journal article citation:
- Qualitative Research, 3(1), April 2003, pp.5-33.
- Publisher:
- Sage
Case studies have a valuable place in health research, including the increasingly popular illness narrative. The author analyzes and compares the performance of identities in two illness narratives, men with multiple sclerosis whom she interviewed in the 1980s. She includes herself as a figure in the construction of the narratives, as audience for their performance, and reinterprets them drawing on contemporary concepts of gender, disability, and performativity. The re-analysis locates the men in social structural contexts, drawing on work on class and the body's relationship to social space.
Multiple sclerosis: management of multiple sclerosis in primary and secondary care; clinical guideline 8
- Author:
- NATIONAL HEALTH SERVICE. National Institute for Clinical Excellence
- Publisher:
- National Institute for Clinical Excellence
- Publication year:
- 2003
- Pagination:
- 64p.
- Place of publication:
- London
Specialist neurological and neurological rehabilitation services should be available to every person with MS, when they need them. This is usually when they develop any new symptom, sign, limitation on activities, or other problem, or when their circumstances change. An individual who is suspected of having multiple sclerosis should be referred to a specialist neurology service, and seen rapidly within an audited time. The individual should be seen again after all investigations necessary to confirm or refute the diagnosis have been completed (also rapidly within an audited time). Every health commissioning organisation should ensure that all organisations in a local health area agree and publish protocols for sharing and transferring responsibility for and information about people with MS, so as to make the service seamless from the individual’s perspective. All services and service personnel within the healthcare sector should recognise and respond to the varying and unique needs and expectations of each person with MS. The person with MS should be involved actively in all decisions and actions.