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Working with brain damaged clients
- Authors:
- SEGAL Julia, et al
- Journal article citation:
- Therapy Today, 21(2), March 2010, pp.22-26.
- Publisher:
- British Association for Counselling and Psychotherapy
Working with clients whose brains have been damaged by illness or physical trauma raises many questions and practical problems for counsellors and psychotherapists. The authors, who are all members of the support group, Psychotherapeutic Practitioners in Neurology (PPN), address some of the questions they face in their work with people with CNS illness or trauma. Not all clients with neurological conditions show signs of damage to thinking processes, personality or emotional capacities but others do, and these cases raise some of the most awkward questions about the validity of this work. Functioning may not improve for everyone but the authors believe that it has become clear that counselling can help, both those who already have cognitive impairment and those who fear its future onset. Sustained, respectful attention and understanding can, they suggest, reduce anxiety and increase a sense of control and security.
Nervous energy
- Author:
- DIX Ann
- Journal article citation:
- Health Service Journal, 5.05.05, 2005, pp.20-22.
- Publisher:
- Emap Healthcare
Reports on the national service framework for people living with long-term neurological conditions. Discusses how level of funding and rigorous implementation of quality standards will be key to its success.
Key messages for successful implementation of a specialist community rehabilitation service
- Author:
- BAILEY Nina
- Journal article citation:
- Journal of Integrated Care, 13(2), April 2005, pp.22-27.
- Publisher:
- Emerald
Considers the experiences of developing and implementing a community-based multidisciplinary rehabilitation service in the City of Wolverhampton to work with people suffering from multiple sclerosis and acquired brain injury. Outlines the process of defining and agreeing the service parameters, objectives and methods of service delivery and includes the main points from an initial evaluation of the team. Concludes with key messages for consideration by others setting up a similar service.
Do caregivers who connect online have better outcomes? A systematic review of online peer-support interventions for caregivers of people with stroke, dementia, traumatic brain injury, Parkinson’s disease and multiple sclerosis
- Authors:
- WALLACE Sarah J., et al
- Journal article citation:
- Brain Impairment, early cite 15 March 2021,
- Publisher:
- Cambridge University Press
Background and Objectives: This systematic review aimed to identify and appraise the evidence for online peer-support interventions for caregivers of stroke survivors (with and without aphasia), and people with dementia, traumatic brain injury (TBI), Parkinson’s disease and multiple sclerosis. Research Design and Methods: Systematic review conducted in accordance with Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. Five databases were systematically searched up until September 2020: EMBASE, PubMed, CINAHL, Scopus and Web of Science. Two reviewers independently screened titles, abstracts and full-text articles. The methodological quality of included studies was assessed using Physiotherapy Evidence Database (PEDro) and Mixed-Methods Appraisal Tool (MMAT) scales. Interventions were described using the Template for Intervention Description and Replication (TIDieR) checklist. Results: A total of 3026 records were identified from database searches. Following screening, 18 studies reporting 17 interventions were included in this review. Most studies (n = 13) reported interventions for caregivers of people with dementia. All studies incorporated an element of peer support as part of the intervention, however, most interventions (n = 15) comprised both psychosocial and educational elements. Statistically significant changes were reported for 11 interventions in one or more of the following domains: caregiver knowledge, mental health, stress, depression, distress, burden, self-efficacy, mastery, helplessness and perceived support. Qualitative outcomes included perceived reductions in stress and increased emotional and informational support. Discussion and Implications: Positive changes in caregiver outcomes were identified in response to multi-component online interventions (i.e., peer support in addition to education). Peer support was often poorly described, limiting the conclusions that could be drawn about the intervention components which result in better outcomes. Online interventions may provide an accessible and effective means of supporting caregivers. (Edited publisher abstract)
Integrated services for people with long-term neurological conditions: evaluation of the impact of the national service framework: summary
- Authors:
- BERNARD Sylvia, et al
- Publisher:
- University of York. Social Policy Research Unit
- Publication year:
- 2010
- Pagination:
- 4p.
- Place of publication:
- York
The National Service Framework (NSF) for Long-term Neurological Conditions recognised the need for an integrated approach to service delivery. This study aimed to identify what helps or hinders integrated services and to identify best models and practice of delivering continuity of care from the perspectives of people with LTNCs, their families, and professionals involved in their care. The research had three main components: a literature review; in-depth case studies in six neurology ‘service systems’ to identify the key indicators of good quality integrated service provision; and a benchmarking tool. The research identified 3 types of service that can promote continuity of care for people with LTNCs: community interdisciplinary neurological rehabilitation teams; nurse specialists; and proactive, holistic day opportunities services. The benchmarking tool was used to conduct a survey of English PCTs to audit progress towards implementation of the NSF nationally and the extent to which integrated services were available to people with LTNCs. Of the 152 PCTs in England, 118 responded (78%). Results of the survey showed that there is considerable variation in the availability of services for people with LTNCs, and that the implementation of the NSF for LTNCs has been hindered by competing policy, organisational and financial priorities.
Integrated services for people with long-term neurological conditions: evaluation of the impact of the national service framework
- Authors:
- BERNARD Sylvia, et al
- Publisher:
- University of York. Social Policy Research Unit
- Publication year:
- 2010
- Pagination:
- 179p.
- Place of publication:
- York
The National Service Framework (NSF) for Long-term Neurological Conditions (LTNCs) recognised the need for an integrated approach to service delivery. This study aimed to identify what helps or hinders integrated services and to identify best models and practice of delivering continuity of care from the perspectives of people with LTNCs, their families, and professionals involved in their care. The research had three main components: a literature review; in-depth case studies in six neurology ‘service systems’ to identify the key indicators of good quality integrated service provision; and a benchmarking tool. The research identified three types of service that can promote continuity of care for people with LTNCs: community interdisciplinary neurological rehabilitation teams; nurse specialists; and proactive, holistic day opportunities services. The benchmarking tool was used to conduct a survey of English PCTs to audit progress towards implementation of the NSF nationally and the extent to which integrated services were available to people with LTNCs. Of the 152 PCTs in England, 118 responded (78%). Results of the survey showed that there is considerable variation in the availability of services for people with LTNCs, and that the implementation of the NSF for LTNCs has been hindered by competing policy, organisational and financial priorities.