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Psychosocial adjustment in children and adolescents with a parent with multiple sclerosis: a systematic review
- Authors:
- BOGOSIAN Angeliki, MOSS-MORRIS Rona, HADWIN Julie
- Journal article citation:
- Clinical Rehabilitation, 24(9), September 2010, pp.789-801.
- Publisher:
- Sage
The databases MEDLINE, EMBASE, PsycINFO, CINAHL and Web of Science were searched for studies on children with a parent with multiple sclerosis. Additional papers were also collected through hand-searching journals and reference lists, contacting authors and multiple sclerosis societies. Twenty studies that satisfied the inclusion criteria were included. The research articles were ranked according to a quality assessment checklist and were categorized as good, medium or poor quality. The review found good evidence to suggest that parental multiple sclerosis has a negative impact on children’s social and family relationships and their psychological well-being. The review also identified potential factors associated with poor adjustment.
Social identity in people with multiple sclerosis: a meta-synthesis of qualitative research
- Authors:
- BARKER Alex B., et al
- Journal article citation:
- Social Care and Neurodisability, 5(4), 2014, pp.256-267.
- Publisher:
- Emerald
Purpose: Many aspects of the self are lost as a consequence of having multiple sclerosis (MS). A person's identity can be altered by negative self-concepts, which are associated with poor psychological wellbeing and can lead individuals to reconstruct their sense of self. The Social Identity Model of Identity Change argues that previously established identities form a basis of continued social support, by providing grounding and connectedness to others to facilitate the establishment of new identities. Family support is a salient factor in adjustment to MS and may enable the establishment of new identities. The purpose of this paper is to investigate identity reconstruction following a diagnosis of MS. Design/methodology/approach: A meta-synthesis of the qualitative literature was conducted to examine the relationship between identity change and family identity of people with MS and other family members. Findings: In all, 16 studies were identified that examined identity change and the family following a diagnosis of MS. Coping strategies used by people with MS and their wider family groups, affect the reconstruction of people's identity and the adjustment to MS. Receiving support from the family whilst a new identity is constructed can buffer against the negative effects of identity loss. Practical implications: The family base is strengthened if MS-related problems in daily life are adapted into the individual and family identity using positive coping styles. Originality/value: This review provides an interpretation and explanation for results of previous qualitative studies in this area. (Publisher abstract)