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National audit of services for people with multiple sclerosis 2008
- Authors:
- WADE Derick, YOUNG Katharine, LOWE Derek
- Publisher:
- Royal College of Physicians of London
- Publication year:
- 2008
- Pagination:
- 85p.
- Place of publication:
- London
This organisation audit is being undertaken by the Royal College of Physicians and the MS Trust and aims to assess the implementation of the NICE Clinical Guideline for Multiple Sclerosis (2003) and the relevant parts of the National Service Framework for Long Term Conditions in England and Wales Data will be collected using web-based collection by questionnaire from four sources: Strategic Health Authorities / Regional Offices; Primary Care Trusts / Local Health Boards, Acute Trusts (service providers) and people with MS. This will enable the experiences and perceptions of the four parties to be compared and contrasted. The results of the audit may be used by your trust to evidence delivery of the Standards for Better Health (Department of Health, 2004) which forms part of the Health Care Commission’s ‘Annual Health Check’. The results will be provided in a national report; within the report individual site results will remain anonymous. Retention of local data by sites will allow comparison with national performance. This audit will be repeated and therefore service development can be assessed
Increasing NICE compliance in multiple sclerosis and cognition: a service evaluation
- Authors:
- REEVE Dawn, GAYSON Charlotte, STEPHAN Talal
- Journal article citation:
- Social Care and Neurodisability, 5(2), 2014, pp.102-110.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to increase awareness and compliance of The National Institute for Health and Care Excellence (NICE) Guidance regarding cognitive impairment in multiple sclerosis (MS). Design/methodology/approach: Assessments were offered routinely to consecutive inpatients with MS and to 20 per cent of outpatients. Once consent was gained, a cognitive assessment and subjective measure of cognition was completed with the patient, as well as a disability scale completed by the Medical Consultant. Individually targeted cognitive rehabilitation advice was provided using a bespoke advice leaflet. Afterwards, those who completed the assessment were asked to provide feedback on their experience. Findings: The percentage that were classed as below average cognitively and the pattern of impairment was comparable to previous findings. Memory was rated the most affected by the largest number of MS individuals and a strong relationship was found between objective and subjective measures of attention. The average functional disability level was rated at 6.99. Evaluations for the service provided were positive; over half of the sample was unaware of NICE Guidance on this issue but 100 per cent would recommend this service and provided optimistic quotes. Practical implications: This evaluation has enabled greater numbers to receive the recommended services and provided a useful baseline assessment of cognitive impairment and of patient attitudes towards this service. Resulting from this process, a new service framework has been proposed and presented at a local level. The advice leaflet developed for this process has been well received by patients and colleagues resulting in its submission to become an official NHS leaflet. Originality/value: Developed clinical governance of NHS services to patients with MS in offering improved assessment and management of cognitive problems. This is in contrast to the national trend showing little improvement of MS care and the lack of NICE implementation by the MS Trust and Royal College of Physicians audit. Furthermore, the bespoke advice leaflet developed for patients and carers of MS demonstrates originality of information provided. (Publisher abstract)
A qualitative study comparing the experiences of tilt-in-space wheelchair use and conventional wheelchair use by clients severely disabled with multiple sclerosis
- Authors:
- DEWEY Ann, RICE-OXLEY Margaret, DEAN Taraneh
- Journal article citation:
- British Journal of Occupational Therapy, 67(2), February 2004, pp.65-74.
- Publisher:
- Sage
Explores and compares the experiences of tilt-in-space wheelchair use and conventional wheelchair use in severely disabled clients with multiple sclerosis and significant spasticity. The research design was a descriptive qualitative approach, using in-depth audio-taped interviews in clients' homes carried out over a 9-month period. A total of 23 clients (7 tilt-in-space wheelchair users and 16 conventional wheelchair users) were recruited from three adjacent district wheelchair services in South-East England. The majority of tilt-in-space wheelchair users (6 out of 7) reported that their chairs were comfortable compared with only half of those in conventional wheelchairs (8 out of 16). The positive aspects of tilt-in-space wheelchair provision included comfort, improved postural support, enhanced seating stability, relief of pressure and being able to rest sitting out of bed for prolonged periods, often for more than 6 hours a day. The negative aspects of tilt-in-space wheelchairs included their bulky size and lack of manoeuvrability compared with conventional wheelchairs. All the wheelchair users had experienced difficulty with transport and many had relied on family and friends to help with the purchase of expensive adapted vehicles.
Self-management education in multiple sclerosis services
- Author:
- EMBREY Nikki
- Journal article citation:
- Nursing Times, 23.08.05, 2005, pp.34-36.
- Publisher:
- Nursing Times
This article discusses the benefit of providing good information and support networks for patients with multiple sclerosis (MS). It reports the results of an audit examining the effectiveness of information programmes provided by MS specialist nurses and identifies patients' views on services promoting self-management. It demonstrates the advantages of such initiatives, emphasising their role in empowering patients, and could be used by nurses working with patients with other chronic conditions.