Search results for ‘Subject term:"multiple sclerosis"’ Sort:
Results 1 - 9 of 9
Multiple sclerosis: the history of a disease
- Author:
- MURRAY T. Jock
- Publisher:
- DEMOS
- Publication year:
- 2005
- Pagination:
- 580p.
- Place of publication:
- New York
The basic facts about multiple sclerosis are well known. But these facts do not convey the impact of the disease on the people whose lives it affects. In this history, the reader meets individuals who suffered with MS in the centuries before the disease had a name, including blessed Lidwina of Holland, who took joy from her misery, believing that she was sent to accept suffering for the sins of others; the grandson of George III and cousin of Queen Victoria, whose case shows how someone with access to the best of medical care of the age was understood and managed; and Heinrich Heine, the great German poet, who also had access to all medical services that were available, but who progressed into his grave in two decades, aware of the loss of physical ability while still able to compose great poetry to the end. From these early cases the author demonstrates how progress in diagnosing and managing multiple sclerosis has paralleled the development of medical science, from the early developments in modern studies of anatomy and pathology and eventually to modern diagnosis and treatment.
Just diagnosed: an introduction to MS
- Author:
- MULTIPLE SCLEROSIS SOCIETY
- Publisher:
- Multiple Sclerosis Society
- Publication year:
- 2002
- Pagination:
- 34p.
- Place of publication:
- London
MS occurs when there is damage to the protective material – or myelin – around the nerves in the central nervous system. (The central nervous system is made up of your brain and spinal cord.) When myelin is damaged, messages are slower or distorted or do not get through at all, causing the symptoms of MS. MS is an autoimmune disease, which means the body’s immune system attacks its own tissue in the mistaken belief it’s a foreign body. In the case of MS, the immune system attacks myelin in the brain and spinal cord.
It's my life: an interactive resources for social care professionals
- Authors:
- MULTIPLE SCLEROSIS SOCIETY, (Producer)
- Publisher:
- Multiple Sclerosis Society
- Publication year:
- 2007
- Pagination:
- CD ROM
- Place of publication:
- London
Multiple Sclerosis (MS) is the most common disabling neurological condition affecting young adults. Around 85,000 people in the UK have MS. MS is the result of damage to myelin - a protective sheath surrounding nerve fibres of the central nervous system. For some people, MS is characterised by periods of relapse and remission while for others it has a progressive pattern. For everyone, it makes life unpredictable. The film provides helpful information about all these aspects of MS
Multiple sclerosis
- Author:
- BURNFIELD Alexander
- Publisher:
- Heinemann Library
- Publication year:
- 2005
- Pagination:
- 56p.
- Place of publication:
- Oxford
Multiple Sclerosis looks at the symptoms of MS, discusses who is most likely to develop the condition and explians how it is diagnosed. It looks at what it is like to have MS and how it affects daily life. It also explores the historical background to MS as well as current treatments and new areas of scientific research into a cure.
"I'm not what I used to be": a qualitative study exploring how young people experience being diagnosed with a chronic illness
- Authors:
- KIRK Susan, HINTON Denise
- Journal article citation:
- Child: Care, Health and Development, 45(3), 2019, pp.216-226.
- Publisher:
- Wiley
Background: Childhood long‐term conditions are usually diagnosed in infancy or early childhood. Little is known about the particular experiences and needs of young people who receive a chronic illness diagnosis during adolescence or late childhood. This paper will examine this experience in relation to multiple sclerosis (MS), which is increasingly being diagnosed before adulthood. Aims: To explore how young people experience an MS diagnosis. Methods: Qualitative study using a grounded theory approach. In‐depth interviews were conducted with 21 young people diagnosed with MS. Participants were recruited through health service and voluntary sector organizations in the United Kingdom. Results: Young people's pre‐illness normality was disrupted by the diagnosis of a chronic illness (MS). Participants experienced their body as changed physically, cognitively, and emotionally and as changeable due to symptom unpredictability. This influenced how participants perceived and presented their identity, disrupted their relationships, and altered their future biography. Young people developed strategies to manage their condition and identities in order to incorporate MS into their current and future lives, which required continual illness and identity work in response to changing symptoms, social contexts, and relationships. Conclusions: Although young peoples' experience of living with chronic illness has been widely explored, the aftermath of diagnosis has been underresearched from their perspective. This study contributes to this knowledge gap by illuminating how young people experience a chronic illness diagnosis and negotiate the resulting changes to their identity, relationships, and future. The findings suggest that young people need preparation and support in disclosing their diagnosis to others. Professionals supporting young people with long‐term conditions need to work closely with specialist mental health services to ensure that they receive appropriate emotional support. Schools have an important role in ensuring young people with long‐term conditions achieve their academic potential and receive appropriate careers advice. (Publisher abstract)
Childhood MS: a guide for parents
- Author:
- WESTLAKE Sarah
- Publisher:
- Multiple Sclerosis Society
- Publication year:
- 2008
- Pagination:
- 55p.
- Place of publication:
- London
Childhood MS is rare, but both children and teenagers can be diagnosed with it. Young people face particular challenges living with a long-term condition. This publication, written for parents, covers the symptoms, diagnosis and treatment of childhood MS. It discusses what effects there can be on the child, the family and school life and explains the support available for parents and young people.
Pain and sensory symptoms
- Author:
- BAILEY James
- Publisher:
- Multiple Sclerosis Society
- Publication year:
- 2006
- Pagination:
- 18p.
- Place of publication:
- London
No two people will experience exactly the same pain. Multiple Sclerosis (MS) pain can come and go in short bursts, or may last longer. It can be a daily nuisance, a distressing but occasional shock, or an ongoing ache that makes it hard to think about anything else. Even mild changes in sensations can have an impact on daily life, so it is important that pain is acknowledged and managed. Describing and explaining MS pain to health care professionals helps the causes to be found. Knowing the cause of pain can help find the most appropriate ways to manage it. This may include a combination of physiotherapy, drug treatments, complementary therapies and making adjustments to the way that daily activities are approached.
What is MS?: a guide to multiple sclerosis
- Author:
- MULTIPLE SCLEROSIS SOCIETY
- Publisher:
- Multiple Sclerosis Society
- Publication year:
- 2004
- Pagination:
- 28p.
- Place of publication:
- London
Multiple sclerosis (MS) is a condition of the central nervous system. It is the most common disabling neurological disease among young adults and affects around 85,000 people in the UK. MS is most often diagnosed in people between the ages of 20 and 40 (though it can be earlier or later). Women are almost twice as likely as men to develop MS, and in rare cases it affects children. Some people feel relief after diagnosis because they finally understand their symptoms and have a name for their condition. However, shock, fear, grief or anger are also perfectly natural reactions and it can often take several months before these feelings settle down. Adapting to life with MS can take some time, but with a generally positive attitude and appropriate health and social care, most people manage their condition well.
Multiple sclerosis: management of multiple sclerosis in primary and secondary care; clinical guideline 8
- Author:
- NATIONAL HEALTH SERVICE. National Institute for Clinical Excellence
- Publisher:
- National Institute for Clinical Excellence
- Publication year:
- 2003
- Pagination:
- 64p.
- Place of publication:
- London
Specialist neurological and neurological rehabilitation services should be available to every person with MS, when they need them. This is usually when they develop any new symptom, sign, limitation on activities, or other problem, or when their circumstances change. An individual who is suspected of having multiple sclerosis should be referred to a specialist neurology service, and seen rapidly within an audited time. The individual should be seen again after all investigations necessary to confirm or refute the diagnosis have been completed (also rapidly within an audited time). Every health commissioning organisation should ensure that all organisations in a local health area agree and publish protocols for sharing and transferring responsibility for and information about people with MS, so as to make the service seamless from the individual’s perspective. All services and service personnel within the healthcare sector should recognise and respond to the varying and unique needs and expectations of each person with MS. The person with MS should be involved actively in all decisions and actions.