Debates the concept of user involvement in the context of people with serious illness. Reviews the literature on user involvement, describes user involvement in palliative care, and reviews the experiences of people with multiple sclerosis, motor neurone disease, and cystic fibrosis.
Debates the concept of user involvement in the context of people with serious illness. Reviews the literature on user involvement, describes user involvement in palliative care, and reviews the experiences of people with multiple sclerosis, motor neurone disease, and cystic fibrosis.
Subject terms:
hospices, literature reviews, long term conditions, motor neurone disease, multiple sclerosis, palliative care, user participation, community care, children, cystic fibrosis, empowerment, health care;