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Global MS employment report 2016
- Author:
- JONES Nick
- Publisher:
- MS International Federation
- Publication year:
- 2016
- Pagination:
- 20
- Place of publication:
- London
This report outlines the findings from a survey of 12,233 people based in 93 countries on MS and employment. It looks at the nature of employment, changes in working patterns, factors enabling people with MS to stay in work, types of MS in people in and out of employment, and effect of being a caregiver on employment status. The survey found that 43 per cent of people with MS who were not in employment had stopped working within three years of diagnosis. This figure rose to 70 per cent after ten years. 62 per cent of people with MS who were not in employment said fatigue prevented them from staying in work – far less than the 85 per cent reported in 2010. Fewer people had reduced their working hours or taken a short term absence compared to 2010 data and more people reported not needing to change their working pattern compared to 2010 data. The report suggests that effective changes and adaptations could keep more people with MS in work and that many of the changes required to enable people with MS to stay in employment, such as adaptations in the workplace or access to treatments, are achievable through advocacy. (Edited publisher abstract)
Information provision for people with Multiple Sclerosis: a theory of change and outcomes measurement framework approach
- Authors:
- HOARE George, MCLEOD Rosie, JOY Iona
- Publisher:
- New Philanthropy Capital
- Publication year:
- 2016
- Pagination:
- 30
- Place of publication:
- London
This report explores how providing information to people with multiple sclerosis can improve their lives by helping them feel more in control about their own health care. It describes a project New Philanthropy Capital undertook with the Multiple Sclerosis (MS) Society, and MS Trust to look at the role of information in the lives of people living with Multiple Sclerosis and find ways of measuring the success of information sharing activities. It uses a theory of change model to map outcomes of information provision which identifies goals, activities, outcomes and enabling factors. The report outlines the measurement framework (a theory of change) used to prioritise key outcomes, defines the intended changes that result from those activities, and specifies the data needed to show those results. Examples of user journeys are also included to illustrate the role information could play in the lives of individual people with multiple sclerosis and how it can improve their lives by both answering their questions and empowering them. (Edited publisher abstract)