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Residential care for those with neurological conditions: an exploration of three specialist neurological care facilities in the UK
- Authors:
- WILSON Eleanor, AUBEELUCK Aimee
- Journal article citation:
- Journal of Care Services Management, 7(2), 2013, pp.61-71.
- Publisher:
- Taylor and Francis
Neurological conditions account for a high number of years lived with disability. Progressive long-term neurological conditions include Huntington's disease, Parkinson's disease, motor neurone disease, and multiple sclerosis. A multidisciplinary approach is recommended, but there is little evidence of the types of support needed for people living in long-term residential care facilities with these conditions. The authors used a qualitative case study approach to evaluate the care provided by three long-term residential care facilities. Focus groups (n = 5), interviews (n = 13), and observations were undertaken to engage 35 staff members, service users, and family members. Findings show an ethos of personalised and tailored care where continuity of staffing created a homely environment. Physical spaces were adapted to meet the needs of residents. On-site physiotherapy services were provided for all residents to proactively manage conditions and maintain as much function as possible. A range of social activities were also provided to engage residents in a variety of ways. These were felt to be delivered by dedicated staff members in specialist spaces and in consultation with residents. Participants based at the facilities reported high levels of specialist expertise. Findings from this evaluation highlight a number of areas of best practice. However, large-scale, longitudinal studies designed to capture measurable outcomes or provide cost–benefits analysis are now needed. (Edited publisher abstract)
Assessments of nursing home guidelines for quality of care provided to residents with multiple sclerosis
- Authors:
- BUCHANAN Robert J., et al
- Journal article citation:
- Journal of Social Work in Disability and Rehabilitation, 12(4), 2013, pp.237-255.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
This study assessed the opinions of nursing directors about quality guidelines developed by the National Multiple Sclerosis Society (NMSS) to assist with the care of nursing home residents with multiple sclerosis (MS). Data were collected in a survey of nursing directors at 800 nursing facilities, with 64 nursing directors participating (8.2% response rate). Participating nursing facilities are similar to other nursing homes for facility characteristics and the number of MS residents receiving care. Large majorities of participants thought these NMSS guidelines were important to the development of care plans and staff training. However, most nursing directors were unaware of these guidelines. (Publisher abstract)