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Models of care in motor neurone disease: final report to the Motor Neurone Disease Association
- Author:
- WILSON Myles
- Publisher:
- Office for Public Management
- Publication year:
- 2016
- Pagination:
- 79
- Place of publication:
- London
This research, commissioned by the Motor Neurone Disease Association, aimed to identify different models of care for people with motor neurone disease (MND) which could be used by the Association to plan, commission and deliver quality multidisciplinary services. The term ‘model of care’ is used to refer to the way health and social care services are delivered and set up to provide care for people with MND. The project looked the types of activities and services delivered to provide care and support; the location and setting of services; how health, social care and other services work together; and the how teams and professionals involved interact. It also examines the benefits of different models of care and how they are commissioned, and delivered. Research methods included a rapid evidence review on models of care for people with MND; a call for evidence, both targeted to MND Care Centres and Care Networks and to health and social care professionals working with people with MND; and twenty follow-up interviews. Based on the interviews five models of care were identified: MND Care Centres, MND Care Networks; Non-MND Association specialist clinics, community-based teams with a specialist care coordinator, and mixed teams without a coordinator role. Factors contributing to an effective model of care for MND included: multidisciplinary teams to help professionals keep up-to-date, inform them of newly diagnosed people, and identify issues that need to be addressed; MND-specific clinics to provide a one stop shop; local community services that provide sufficient care at home; and good care coordination. The role of a care coordinator was particularly valued both for providing support to people with MND and their families, and as a source of contact and advice for professionals. (Edited publisher abstract)