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Joined up thinking, joined up care...report of the Scottish Partnership for Palliative Care Big Lottery Fund project: ‘Increasing access to palliative care for people with life-threatening conditions other than cancer’
- Author:
- SCOTTISH PARTNERSHP FOR PALLIATIVE CARE
- Publisher:
- Scottish Partnership for Palliative Care
- Publication year:
- 2006
- Pagination:
- 138p.
- Place of publication:
- Edinburgh
The project focussed on the experiences of people with ten specific progressive, life-threatening conditions and those caring for them. These were: cystic fibrosis, dementia, heart failure, HIV/AIDS, motor neurone disease, multiple sclerosis, muscular dystrophy, Parkinson’s disease, renal failure and respiratory failure. Specific objectives of the project were to identify some of the common palliative care needs of people with specific non-malignant progressive conditions and to promote wider recognition of these, to understand some of the barriers involved in the difficulty often experienced by these groups in accessing appropriate palliative care, and to begin to identify possible ways of overcoming the barriers and meeting the needs identified. To attempt to meet these objectives a Scotland-wide consultation process was carried out. Questions were asked of people with conditions other than cancer and informal carers about their palliative care and information needs, professional carers about their educational support needs, and NHS Boards, local authorities and voluntary organisations about their needs assessments and planned palliative care strategies.