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National programme for improving mental health and well-being small research projects initiative 2006: ... An exploration as to how personal narraitives are used in the promotion of recovery and social inclusion by mental health service users in Scotland
- Authors:
- ALTENBERGER Iris, MACKAY Rob
- Publisher:
- Scotland. Scottish Government
- Publication year:
- 2008
- Pagination:
- 2p.
- Place of publication:
- Edinburgh
Findings are presented from a study that aimed to explore and identify how personal narratives are used in Scotland to promote recovery and social inclusion by mental health service users. This study took the form of semi-structured interviews with 12 individuals in six locations across Scotland. This was followed up with a focus group discussion with four of the same individuals.
Inspirational journeys of hope
- Author:
- RECOVERY RENFREWSHIRE
- Publisher:
- Scottish Recovery Network
- Publication year:
- 2008
- Pagination:
- 34p.
- Place of publication:
- Paisley
'Stories of Hope' was an idea born out of the efforts of a small group of individuals belonging to a larger group called 'Recovery Renfrewshire'. This booklet is intended to inspire and motivate the reader. By sharing people's stories, the publishers hope to help change, in a small way, preconceived attitudes and beliefs around mental health.
Routes to recovery: collected wisdom from the SRN narrative research project
- Author:
- SCOTTISH RECOVERY NETWORK
- Publisher:
- Scottish Recovery Network
- Publication year:
- 2007
- Pagination:
- 24p.
- Place of publication:
- Glasgow
Routes to Recovery was developed by the Scottish Recovery Network (SRN) based on interviews with people in recovery from long-term mental health problems. The information and ideas described in this booklet came from Scottish Recovery Network’s Narrative Research Project. During this project 67 people around Scotland who described themselves as in recovery, or recovered, from a long-term mental health problem were interviewed. This publication is intended to highlight some of the things that people said that they had been able to do to support their recovery.
A tale of two crises: the cost of living and mental health
- Author:
- D'ARCY Conor
- Publisher:
- Money and Mental Health Policy Institute
- Publication year:
- 2022
- Pagination:
- 11
- Place of publication:
- London
Drawing on a survey of people with lived experience of mental health problems, this briefing explores how the cost of living crisis is affecting their mental health and finances. The rapid rise in the cost of living is putting pressure on millions of families in the UK. In response, nearly three-quarters (73%) of us have had to change how we live in recent months, for instance cutting back on energy use or other essential spending. Trouble in making ends meet is having a damaging psychological impact too. Over half (54%) of UK adults say they have felt anxious as a result of higher prices of late, while one in five (21%) have felt unable to cope. While these difficulties have been widely experienced, people who were already struggling with their mental health and finances have been among those hardest hit. People with mental health problems are more likely to say that the rocketing cost of living has had a negative effect on their mental health, and they are also more likely to have borrowed money or cut back on spending in response. Approaching half (46%) of Research Community respondents who have been affected by the rise in the cost of living told us that they had reduced the number of meals they ate per day. With the toxic cycle of mental health problems and money worries in full flow, immediate action is needed from the government, regulators and firms to stop the cost of living crisis becoming a mental health crisis. (Edited publisher abstract)
How do people with eating disorders experience the stigma associated with their condition? A mixed-methods systematic review
- Authors:
- O'CONNOR Cliodhna, et al
- Journal article citation:
- Journal of Mental Health, 30(4), 2021, pp.454-469.
- Publisher:
- Taylor and Francis
- Place of publication:
- London
Background: Public opinion research shows that eating disorders (EDs) are a major target of stigmatisation. To understand the implications of this stigma, research investigating how stigma is experienced by individuals with EDs is critical. Aim: This paper aims to collate, evaluate and synthesise the extant empirical research illuminating how people with EDs experience the stigma associated with their condition. Method: A systematic mixed-methods literature search was performed. Articles that met a specified set of inclusion criteria underwent a quality assessment and thematic synthesis. Results: Twenty-nine articles were included in the review. Studies were mostly qualitative and of reasonable methodological quality. The literature was characterised by five research themes, illuminating (i) the nature and prevalence of stigma experienced, (ii) stigma in families, (iii) stigma in healthcare contexts, (iv) self-stigmatisation and illness concealment, and (v) stigma resistance. Conclusions: The reviewed research showed that people with EDs have extensive experience of stigma in diverse settings. They report that stigma has negative implications for their psychological wellbeing and likelihood of help-seeking. However, research also shows that people with EDs actively seek to resist and challenge stigma. The review identifies the outstanding gaps and weaknesses in this literature. (Edited publisher abstract)
Foregrounding the perspectives of mental health services users during the COVID-19 pandemic
- Authors:
- ZEILIG Hannah, et al
- Journal article citation:
- Mental Health and Social Inclusion, 24(3), 2020, pp.131-133.
- Publisher:
- Emerald
Purpose: This paper aims to highlight the critical importance of the perspectives of mental health service-users during the COVID-19 pandemic. Design/methodology/approach: This viewpoint is based on a review of recent research and literature and draws on consultations with experts by experience, including the lead author. Findings: The authors argue that expertise-by-experience is critical to policy, service development and research; but there is a risk it will be neglected at a time of rapid and reactive clinical development. Research limitations/implications: Understanding and responding to the nuances of individual need can only be achieved through coproducing service strategy design, delivery and research with mental health service users. The consultation outlined in this viewpoint gives some indication of the type of valuable insights that can be gained through seeking and listening to the perspectives of experts by experience. Originality/value: The discussions revealed that experience of managing severe and complex mental health conditions can actually be advantageous when facing a crisis such as COVID-19. (Edited publisher abstract)
Physical health and mental illness: listening to the voice of carers
- Authors:
- HAPPELL Brenda, et al
- Journal article citation:
- Journal of Mental Health, 26(2), 2017, pp.134-141.
- Publisher:
- Taylor and Francis
- Place of publication:
- London
Background: Shortened life expectancy of people with mental illness is now widely known and the focus of research and policy activity. To date, research has primarily reflected perspectives of health professionals with limited attention to the views and opinions of those most closely affected. The voice of carers is particularly minimal, despite policy stipulating carer participation is required for mental health services. Aim: To present views and opinions of carers regarding physical health of the people they care for. Methods: Qualitative exploratory. Two focus groups and one individual interview were conducted with 13 people identifying as carers of a person with mental illness. Research was conducted in the Australian Capital Territory. Data analysis was based on the thematic framework of Braun and Clarke. Results: Two main themes were interaction between physical and mental health; and, carers’ own physical and mental health. Participants described the impact of mental illness and its treatments on physical health, including their own. Conclusions: Carers are acknowledged as crucial for the delivery of high quality mental health services. Therefore they have an important role to play in addressing the poor physical health of people with mental illness. Hearing their views and opinions is essential. (Publisher abstract)
All talk: experiencing user-led research
- Authors:
- GILLARD Steve, STACEY Estelle
- Journal article citation:
- A Life in the Day, 9(2), May 2005, pp.27-30.
- Publisher:
- Emerald
The authors, of Slough User-Led Consultation (SULC) describe the benefits of people with experience of mental health problems undertaking research if the service users being interviewed are to feel able to talk freely and openly about their views and experiences of services.
Turning the tables
- Author:
- SLOCOMBE Will
- Journal article citation:
- Mental Health Today, September 2012, pp.28-29.
- Publisher:
- Pavilion
- Place of publication:
- Hove
A psychiatrist called Isabel Wilson (1895-1982) designed and created a group of table mats for a group of her colleagues. These table mats called, ‘Table Mats of the Famously Insane’, depicted various characters who might be called ‘famous’ and ‘insane’, including George III, an Egyptian god, and King Lear. They were accompanied by coasters designed around the topic of ‘causes and cures’ including drugs, the moon, and psychotherapy. Inspired by this story, CorpoArt, a small service user venture was commissioned to design their own set of table mats on the theme of famous psychiatrists and ‘causes and cures’. The aim was to introduce them to something of the history of psychiatry and how far it has come, and also to allow them to articulate their own experiences of treatment. The resulting mats are varied and interesting. Some focus on the designs of Wilson’s original mats. Another focuses on the ways in which mental health problems are ‘hidden’. Others are inspired by things that help people to cope, including activities such as cycling and the role of the mother. These mats may serve as a useful springboard into a conversation between service users and mental health professionals.
People with mental health conditions and pathways to work
- Authors:
- HUDSON Maria, et al
- Publisher:
- Great Britain. Department for Work and Pensions
- Publication year:
- 2009
- Pagination:
- 131p., bibliog.
- Place of publication:
- London
This qualitative research project aimed to identify how Jobcentre Plus Pathways to Work may better meet the needs of the mental health client group. The research explored the reasons why Pathways has yielded mixed results for clients with mental health conditions and what helps contribute to good outcomes. Fieldwork was carried out between January 2008 and February 2009 across 3 Jobcentre Plus districts. An iterative qualitative research design was used including interviews with Jobcentre Plus and non-Jobcentre Plus staff working with people with mental health conditions, incapacity benefit claimants with mental health conditions, and service provider workshops. The study focused on the areas of: Jobcentre Plus and non-Jobcentre Plus staff perceptions and experiences of working with people with mental health conditions and Pathways to Work; clients' attitudes towards and beliefs about work; clients’ experiences and perceptions of Work Focused Interviews; and clients’ experiences and perceptions of referrals; and other services and issues in entering and sustaining paid work. Many clients were satisfied with the help they received from Jobcentre Plus Pathways, though many mandatory clients felt that the opportunity to participate had not come at the right time for them. A range of suggestions are made for improvement to Pathways emerging from this research.