Search results for ‘Subject term:"mental health problems"’ Sort:
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‘I am not your nutter’: a personal reflection on commodification and comradeship in service user and survivor research
- Author:
- CARR Sarah
- Journal article citation:
- Disability and Society, 34(7-8), 2019, pp.1140-1153.
- Publisher:
- Taylor and Francis
This article offers some personal reflections from a mental health service user/survivor researcher working in English academia. It is a critical examination of what mainstream clinical mental health researchers and funders appear to need us to be, and what some in the service user and survivor movement perceive us to be. The discussion examines questions about commodification and public and patient involvement and contemporary challenges for service user and survivor research as a separate discipline operating within and beyond academia in England. The article concludes by exploring potential strategies for collaborative activism for service user and survivor researchers in academia based on the concepts of social capital and situated solidarity. (Publisher abstract)
Leadership for empowerment and equality: a proposed model for mental health user/survivor leadership
- Author:
- O'HAGAN Mary
- Journal article citation:
- International Journal of Leadership in Public Services, 5(4), December 2009, pp.34-43.
- Publisher:
- Emerald
The article, for the International Initiative for Mental Health Leadership, which works to improve mental health services by supporting innovative leadership, is written by an author who experienced severe mental health problems and used mental health services as a young woman, went on to establish in the 1990’s a user/survivor movement protesting at the system’s failures to help (or actually harming) users and focussing on empowerment and equality, was a mental health commissioner and is now an international consultant in mental health problems and services. Leadership, among people with lived experiences of mental health problems (survivors) could be better developed to help themselves and others currently experiencing mental health problems, at service and systemic levels. Critiques of conventional models of leadership, in terms of leaders being inherently good, denial of darker forces of greed and power at play, assumption of heroic responsibility all problems, lack of ability to change or critique themselves, and considering transactional and transformational approaches, may provide a framework upon which survivors can build a leadership model. The new roles, practices and competencies of user/survivor leaders will be dependent on philosophical, psychological, political and practical (physical) shifts in current mental health service systems for their acceptance.
Dancing to our own tunes: reassessing black and minority ethnic mental health service user involvement
- Author:
- KALATHIL Jayasree
- Publisher:
- National Survivor User Network
- Publication year:
- 2008
- Pagination:
- 36p., bibliog.
- Place of publication:
- Morden
This report presents the findings from a consultation exploring the involvement of service users/survivors from black and minority ethnic communities in mainstream user involvement initiatives in mental health. Other contents include: an outline of the work; redefining involvement; barriers to involvement; being involved - what has it achieved; effective involvement - what needs to change; looking to the future. A number of recommendations are presented including: set up a steering group; shift the focus of leadership; improve communities; build capacity of smaller groups; document and communicate.
Service user/survivor involvement in mental health training and education: overcoming the barriers
- Authors:
- BASSET Thurstine, CAMPBELL Peter, ANDERSON Jill
- Journal article citation:
- Social Work Education (The International Journal), 25(4), June 2006, pp.393-402.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
This article discusses 10 barriers to the involvement of service users/survivors in learning and teaching about mental health in higher education, suggesting ways of overcoming each. The paper is addressed to mental health trainers and educators, some of whom will be mental health service users/survivors. The involvement of carers/relatives in learning and teaching is not covered in this article, thought it is acknowledged that they have an important role to play and some of what we have written will have relevance to their involvement.
Turning the tables
- Author:
- BERESFORD Peter
- Journal article citation:
- Openmind, 116, July 2002, pp.16-17.
- Publisher:
- MIND
Reports on how research opportunities are opening up for mental health users/survivors.
Our voice in our future: mental health issues
- Author:
- BERESFORD Peter
- Publisher:
- National Institute for Social Work/Shaping Our Lives
- Publication year:
- 2000
- Pagination:
- 28p.,bibliog.
- Place of publication:
- London
Published as part of the Shaping Our Lives project, this booklet looks at involving users in mental health services and includes chapters on: changes in the past twenty years; current provision for mental health users; issues for black and minority ethnic users/survivors; current plans for mental health services; users' views on proposed changes; and users' views on alternatives.
‘Widening cross-disciplinary research for mental health’: what is missing from the Research Councils UK mental health agenda?
- Authors:
- ROSE Diana, CARR Sarah, BERESFORD Peter
- Journal article citation:
- Disability and Society, 33(3), 2018, pp.476-481.
- Publisher:
- Taylor and Francis
This current issues article is a brief critical examination of the recent Research Councils UK agenda and call for cross-disciplinary research in mental health. The authors' argument is based on the fact that patient and public involvement (PPI) is the only involvement and influencing strategy for service users and survivors in the agenda. Service user and survivor research as a discipline in itself remains unacknowledged. It is concluded that service user and survivor research is distinct and is different to PPI, and should be recognised in any mental health research agenda. (Edited publisher abstract)
Inclusive and empowering
- Author:
- FAULKNER Alison
- Journal article citation:
- Mental Health Today, November 2005, pp.31-33.
- Publisher:
- Pavilion
- Place of publication:
- Hove
In recent years there has been a considerable increase in both local and national research projects and initiatives involving (or led by) mental health service users and survivors. This article looks at a project to develop an accessible manual on ethical practice for researchers, trainers and interviewers working from the perspective of mental health service users and survivors. Interview and focus groups, a literature review and questionnaires distributed to a sample of survivor researchers were used in the study. This article summarises some of the main themes that arose from the research, and are covered in the guidelines.
The ethics of survivor research: guidelines for the ethical conduct of research carried out by mental health service users and survivors
- Author:
- FAULKNER Alison
- Publisher:
- Policy Press
- Publication year:
- 2004
- Pagination:
- 48p.
- Place of publication:
- Bristol
This manual offers guidance on some of the difficult and important issues to consider prior to a research project or research training programme. Aimed at mental health service users and survivor researchers, trainers and interviewers, it looks at ‘survivor-controlled’ research, though many of its guidelines are relevant to user involvement in research more generally. Drawing on the experience of survivors and service users it considers key issues such as informed consent and confidentiality with particular reference to mental health settings. It also addresses less commonly discussed issues, such as feedback to participants, dissemination and a commitment to change based on research findings.
The mental health service user movement in England
- Authors:
- WALLCRAFT Jan, BRYANT Michael
- Publisher:
- Sainsbury Centre for Mental Health
- Publication year:
- 2003
- Pagination:
- 19p.
- Place of publication:
- London
This policy paper aims to identify and analyse organisations comprising adults who are users of mental health services across England. No systematic attempt has been made until now to find out the extent and scope of the mental health service user/survivor movement, nor how far it represents the wider constituency of service users and survivors, including those from minority ethnic groups. A postal survey was conducted of all local mental health user groups in England. In all, 318 user groups responded to this survey and 25 were interviewed in depth. National leaders of the movement were also interviewed. Much of the research was carried out by users themselves.