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Facts about carers 2012: policy briefing
- Author:
- CARERS UK
- Publisher:
- Carers UK
- Publication year:
- 2012
- Pagination:
- 14p.
- Place of publication:
- London
This publication provides an overview of key facts and figures about carers. It includes information on: the number of carers; the characteristics of carers; what carers do; who carers care for; the impact of caring; and support for carers. It includes statistics on employment, health, age, tasks, finances and poverty, and rights. It reports that the vast majority of care in the UK is provided by family, friends and relatives. The care they provide is worth an estimated £119bn per year. Social services and the NHS rely on carers’ willingness and ability to provide care. The latest estimates suggest that there are nearly 6.5 million carers in the UK, a rise of just over 9%, from 5.8 million in 2001. This represents 10.5% of the total population, or 12.6% of the adult population.
Carers' and users' expectations of services - carer version (CUES-C): a new instrument to support the assessment of carers of people with a severe mental illness
- Authors:
- LELLIOTT Paul, et al
- Journal article citation:
- Journal of Mental Health, 12(2), April 2003, pp.143-152.
- Publisher:
- Taylor and Francis
- Place of publication:
- London
Carers of people with a severe mental illness often experience health and social problems themselves. In the UK, carers now have a statutory right to an assessment of their needs. The aim was to develop a brief instrument to identify and measure the experience of those caring for people with a severe mental illness across the range of domains that the carers themselves consider important. Potential domains were identified from published and 'grey' literature and refined through consultation with carers. Pilots and field trials of the resulting draft instrument involved a total of 412 carers. Principal components analysis yielded factors relating to impact of caring and the quality of support provided for carers. Test-retest reliabilities for all items were moderately good or better. The great majority of 75 carers, who gave structured feedback, found they could follow the instructions for the instrument and 90% thought the length was 'about right'. CUES-C could be used as part of the carers' assessment. The instrument does cover the domains that carers value, is acceptable to carers and has reasonable test-retest reliability.
Joint charter on mental capacity and decision making
- Authors:
- THE LAW SOCIETY, BRITISH MEDICAL ASSOCIATION, MAKING DECISIONS ALLIANCE
- Publisher:
- Law Society/Mencap
- Publication year:
- 2002
- Pagination:
- 2p.
- Place of publication:
- London
The Law Society, The Making Decisions Alliance and the British Medical Association all believe that the law does not provide proper protection to people who do not have the capacity to make their own decisions due to illness, injury, or disability. This charter calls new legislation on mental capacity.
Rescue me
- Author:
- FARMER Paul
- Journal article citation:
- Community Care, 13.7.00, 2000, pp.26-27.
- Publisher:
- Reed Business Information
People caring for someone with a mental illness finally have a right both to an assessment and to have their assessed needs met. The author explains how much difference this will make to carers and their loved ones.
Community care: rights to services
- Author:
- -
- Journal article citation:
- SCOLAG Journal, October 1998, pp.144-145.
- Publisher:
- ScoLAG(Scottish Legal Action Group)
In a brief article written from the perspective of a service user, the Legal Services Agency sets out rights to community care services in Scotland.
A radical proposal
- Author:
- CLEMENTS Luke
- Journal article citation:
- Community Care, 12.2.98, 1998, pp.24-25.
- Publisher:
- Reed Business Information
A new long awaited Green Paper has reopened the discussion on how best to protect the interests of mentally incapacitated adults. Reviews the proposals which could fundamentally increase their civil rights.
Family caregiving in mental illness
- Author:
- LEFLEY Harriet P
- Publisher:
- Sage
- Publication year:
- 1996
- Pagination:
- 271p.,bibliog.
- Place of publication:
- Thousand Oaks, CA
Looks at the role of carers of people with mental health problems discharged into the community in the United States. Examines the characteristics and conceptual models related to mental health problems and then surveys the experience of mental illness in the context of the family life cycle and developmental stages of the illness. Highlights aspects of the family burden, including social stigma, treatment barriers, stress, and the relationship between patient and carer. Also looks at the impact of the advocacy movement on carers.
Involving users and carers in shaping mental health services
- Author:
- JAMES Ann
- Journal article citation:
- Purchasing in Practice, 4, July 1995, pp.18-19.
Oxfordshire Health Authority has implemented an innovative programme to bring mental health care closer to the wishes of its users and carers. Describes progress so far.
The experience of young carers in the UK: the mental health issues
- Authors:
- DEARDEN Chris, BECKER Saul
- Journal article citation:
- Mental Health Care, 2(8), April 1999, pp.273-276.
- Publisher:
- Pavilion
The recent publication of a national carers strategy reflects increasing awareness of the burden of informal care on relatives of people with a disability or long-term health problem. This article examines the experiences of young carers in general, and of those caring for a parent or sibling with a mental health problem or learning disability.
Family involvement in the care of people with psychoses
- Authors:
- SZMUKLER George I., BLOCH Sidney
- Journal article citation:
- British Journal of Psychiatry, 171, November 1997, pp.401-405.
- Publisher:
- Cambridge University Press
There is growing evidence which points to the benefits of involving relatives and other informal carers in treating people with psychosis. This article outlines an approach to family collaboration which is sensitive to the issues of confidentiality and the potential competing interests of patient and family. Also offers some guidelines for practice where a patient refuses family involvement even though the interests of one or both are likely to be served.