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Caring for an individual with mild cognitive impairment: a qualitative perspective of health-related quality of life from caregivers
- Authors:
- CARLOZZI Noelle E., et al
- Journal article citation:
- Aging and Mental Health, 22(9), 2018, pp.1190-1198.
- Publisher:
- Taylor and Francis
Objectives: Little is known regarding the effect that caring for an individual with Mild Cognitive Impairment (MCI) has on health-related quality of life (HRQOL). The authors sought to identify the most important aspects of HRQOL related to caring for an individual with MCI. Methods: Six focus groups were conducted with caregivers of individuals with MCI (n = 32). Qualitative frequency analysis was used to analyze the data. Results: Findings indicated that caregivers most frequently discussed social health, including changes in social roles and an increased need for social support (51.2% of the total discussion). This was followed by mental health concerns (37.9%) which centred on anger/frustration, and a need for patience in the caregiving role, as well as caregiver-specific anxiety. Other topics included physical health (10.0%; including the impact that stress and burden have on medical heath), and caregivers’ cognitive health (0.9%; including memory problems in relation to caregiver strain, sleep disruption, and cognitive fatigue). Conclusions: Findings illustrate the multiple domains of HRQOL that are affected in individuals providing care for someone with MCI. Moreover, the findings highlight the need for extending support services to MCI caregivers, a group that is typically not offered support services due to the ‘less severe’ nature of an MCI diagnosis. (Edited publisher abstract)
Cognitive impairment in Parkinson's disease: impact on quality of life of carers
- Authors:
- LAWSON R.A., et al
- Journal article citation:
- International Journal of Geriatric Psychiatry, 32(12), 2017, pp.1362-1370.
- Publisher:
- Wiley
Background: The quality of life (QoL) of informal caregivers of people with Parkinson's disease (PD) (PwP) can be affected by the caring role. Because of cognitive symptoms and diminished activities of daily living, in addition to the management of motor symptoms, carers of PwP and cognitive impairment may experience increased levels of burden and poorer QoL compared with carers of PwP without cognitive impairment. This study aimed to investigate the impact of cognitive impairment in PD upon QoL of carers. Methods: Approximately 36 months after diagnosis, 66 dyadic couples of PwP and carers completed assessments. PwP completed a schedule of neuropsychological assessments and QoL measures; carers of PwP completed demographic questionnaires and assessments of QoL. Factor scores of attention, memory/executive function and global cognition, as derived by principal component analysis, were used to evaluate cognitive domains. Results: Hierarchical regression analysis found lower Montreal Cognitive Assessment was a significant independent predictor of poorer carer QoL, in addition to number of hours spent caregiving, carer depression and PD motor severity. Attentional deficits accounted for the largest proportion of variance of carer QoL. Carers of PwP and dementia (n = 9) had significantly poorer QoL scores compared with PwP and mild cognitive impairment (n = 18) or normal cognition (n = 39) carers (p < 0.01). Conclusions: Attentional deficits were the strongest predictor of carer QoL compared with other cognitive predictors. Carers for those with PD dementia reported the poorest QoL. Interventions such as respite or cognitive behavioural therapy to improve mood and self-efficacy in carers may improve carer QoL. (Publisher abstract)
Service utilization and cognitive complaints in adults with HIV: results from a statewide survey
- Authors:
- OKONKWO Ozioma, et al
- Journal article citation:
- Journal of HIV/AIDS and Social Services, 7(2), 2008, pp.175-194.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
This study aimed to demonstrate an association between the subjective cognitive complaints (mild declines in cognitive function short of dementia diagnosis) among adults with HIV AIDS in Alabama and their utilisation of HIV AIDS services provided. Face-to-face interviews with 385 adults with HIV AIDS, who were receiving care from various AIDS service organisations (ASOs), used a 13 page questionnaire from the 2003 AIDS Alabama Needs Assessment which assessed their mental health problems and diverse aspects of service utilisation. Significant correlation was found between cognitive complaints and work status, financial difficulties, difficulty in getting medical care, legal problems, medication compliance, emotional problems, housing difficulties, counselling for sexual issues, transportation difficulties and difficulty getting food. Adults with HIV AIDS in this study who reported more cognitive complaints experienced more difficulty in accessing services they needed. Predictors of cognitive complaints were identified by multiple regression analysis and included level of education, stress and physical pain. Despite concerns over limitations of this study, such as sole use of participants associated with ASOs being more likely to be economically disadvantaged, the authors cite this research in a call for intervention aimed at reducing cognitive complaints and improving neuropsychological functioning which may enhance service utilisation as part of their activities of daily living and the quality of life of adults with HIV AIDS.
Not knowing where I am doesn't mean I don't know what I like: cognitive impairment and quality of life responses in elderly people
- Authors:
- MOZLEY Caroline Godlove, et al
- Journal article citation:
- International Journal of Geriatric Psychiatry, 14(9), September 1999, pp.776-783.
- Publisher:
- Wiley
This study sought to elucidate the extent to which elderly people with cognitive impairment are able to answer questions about their quality of life. 308 elderly residents were interviewed within 2 weeks of admission to one of 30 residential or nursing homes in north-west England. The findings suggest that a high proportion of elderly people can answer questions about their quality of life, even in the presence of significant cognitive deficits.
The mental health of older people: report based on the analysis of the ONS survey of psychiatric morbidity among adults in Great Britain carried out for the Department of Health, the Scottish Executive Health Department and the Welsh Assembly Government
- Authors:
- EVANS Olga, et al
- Publisher:
- Great Britain. Office for National Statistics,|Stationery Office
- Publication year:
- 2003
- Pagination:
- 110p.,tables.
- Place of publication:
- London
A chapter of the report is dedicated to each of the following areas: the prevalence of common mental disorder and variations in prevalence with socioeconomic characteristics; variations in prevalence of common mental disorder with experience of stressful life events, social support, and physical health problems; the impact of common mental disorder on self-reported mental and physical wellbeing, activities of daily living and service use; the distribution of cognitive function and variations in distribution with socioeconomic characteristics; the impact of cognitive function on self-reported mental and physical well-being, activities of daily living and service use; and the association between cognitive impairment and common mental disorder and physical health problems.