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Carers' and users' expectations of services - carer version (CUES-C): a new instrument to support the assessment of carers of people with a severe mental illness
- Authors:
- LELLIOTT Paul, et al
- Journal article citation:
- Journal of Mental Health, 12(2), April 2003, pp.143-152.
- Publisher:
- Taylor and Francis
- Place of publication:
- London
Carers of people with a severe mental illness often experience health and social problems themselves. In the UK, carers now have a statutory right to an assessment of their needs. The aim was to develop a brief instrument to identify and measure the experience of those caring for people with a severe mental illness across the range of domains that the carers themselves consider important. Potential domains were identified from published and 'grey' literature and refined through consultation with carers. Pilots and field trials of the resulting draft instrument involved a total of 412 carers. Principal components analysis yielded factors relating to impact of caring and the quality of support provided for carers. Test-retest reliabilities for all items were moderately good or better. The great majority of 75 carers, who gave structured feedback, found they could follow the instructions for the instrument and 90% thought the length was 'about right'. CUES-C could be used as part of the carers' assessment. The instrument does cover the domains that carers value, is acceptable to carers and has reasonable test-retest reliability.
Carers' and Users' Expectations of Services-User Version (CUES-U): a new instrument to measure the experience of users of mental health
- Authors:
- LELLIOTT Paul, et al
- Journal article citation:
- British Journal of Psychiatry, 179, July 2001, pp.67-72.
- Publisher:
- Cambridge University Press
The Department of Health in England intends to evaluate mental health services "against the aspirations and experience of its users". Surveys of service users will be conducted locally as a function of clinical governance and by the new Commission for Health Improvement as it inspects mental health services. Although there are tested instruments for measuring aspects of the experience of service users, including quality of life, needs problems and satisfaction with services none address all or even most of the issues that are important to service users. This report describes the development instrument to enable users of mental health services to rate their experiences across the range of domains that they consider to be important.
Survey of patients from an inner-London health authority in medium secure psychiatry care
- Authors:
- LELLIOTT Paul, AUDINI Bernard, DUFFETT Richard
- Journal article citation:
- British Journal of Psychiatry, 179, January 2001, pp.62-66.
- Publisher:
- Cambridge University Press
Under-provision by the National Health Service (NHS) has led to an increase in medium secure psychiatric beds managed by the independent sector. Black people are over-represented in medium secure care. This study describes those people from an inner-London health authority occupying all forms of medium secure provision, and compares those in NHS provision with those in the independent sector, and Black patients with White patients. The researchers concluded that the NHS meets only part of the need for medium secure care of the population of this London health authority. This comparison of the characteristics of Black and White patients does not help to explain why Black people are over-represented in medium secure settings.
Commentaries on: An index of need for psychiatric services based on in-patient utilisation
- Authors:
- LELLIOTT Paul, et al
- Journal article citation:
- British Journal of Psychiatry, 169, September 1996, pp.317-312.
- Publisher:
- Cambridge University Press
Comments on the preceding article by Peter Smith et al (pp.308-316), which looks at the development of an index of need for psychiatric services for the purpose of distributing NHS funds between English Health Authorities.