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Distress or disability? Proceedings of a symposium held at Lancaster University 15-16 November 2011
- Authors:
- ANDERSON Jill, SAPEY Bob, SPANDLER Helen, (eds.)
- Publisher:
- Lancaster University. Centre for Disability Research
- Publication year:
- 2012
- Pagination:
- 113p.
- Place of publication:
- Lancaster
This symposium was organised jointly by Mental Health in Higher Education, the Centre for Disability Research at Lancaster University, and the School of Social Work at the University of Central Lancashire. The symposium was by invitation only and brought together academics, activists and research students from the north-west of England to explore the issues that arise from trying to situate mental distress or ’madness’ within the social model of disability, focussing specifically on psychosis, hearing voices and other extra-ordinary experiences. Participants at the symposium were asked to build upon a discussion document ‘Distress or Disability?’ written in 1994 by Anne Plumb for the Greater Manchester Coalition of Disabled People. In this paper she argued for the autonomy of mental health system survivor activism and highlighted some of the difficulties of integrating mental distress within broader disability politics. After reproducing Plumb’s paper, this e-book draws together the papers presented at the symposium in order to collate and disseminate the ideas that were shared.
Role of common mental and physical disorders in partial disability around the world
- Authors:
- BRUFFAERTS Ronny, et al
- Journal article citation:
- British Journal of Psychiatry, 200(6), June 2012, pp.454-461.
- Publisher:
- Cambridge University Press
Previous work has associated mental and physical disorders with total disability, but their effects on days with partial disability (ability to perform some activities of daily living) are not well understood. This study looked at individual (consequences for a person with a disorder) and societal effects (the avoidable partial disability in the society) of mental and physical disorders on days with partial disability worldwide. The study drew on World Mental Health surveys of adults from 26 nationally representative samples (n = 61259) which interviewed respondents regarding mental and physical disorders, and day-to-day functioning. The Composite International Diagnostic Interview was used to assess mental disorders; partial disability was assessed with the WHO Disability Assessment Schedule in the CIDI 3.0. Those with disorders reported about 1.58 additional disability days per month compared with respondents without disorders. At the individual level, mental disorders (especially post-traumatic stress disorder, depression and bipolar disorder) yielded a higher number of days with disability than physical disorders. At the societal level, the population attributable risk proportion due to physical and mental disorders was 49% and 15% respectively. It is concluded that mental and physical disorders have a considerable impact on partial disability, at both the individual and the societal level; physical disorders had greater impact on partial disability than mental disorders.
Recovery: bringing service users in
- Authors:
- FOX Joanna, RAMON Shula
- Journal article citation:
- Social Work and Social Sciences Review, 14(3), 2012, pp.10-22.
- Publisher:
- Whiting and Birch
This article introduces the new meaning of recovery, and reflects on its potential to develop current thinking and practice in mental health with adults. It also explores the implications for service providers and service users, with regards to the UK government's policy to move disabled people, including mental health service users, from welfare back to work. The social and economic climate that drives this policy agenda, and the implications for society of the focus on employment, are presented. The article reflects on the role of work in supporting or hindering the recovery process and identities re-formation, in part through the experience of the first author. The article concludes by suggesting how practice can enable a process of returning to ordinary living, including employment, that supports recovery through a process of shared responsibilities.
In-patient psychiatric rehabilitation services: survey of users in three metropolitan boroughs
- Authors:
- COWAN Colin, et al
- Journal article citation:
- Psychiatrist (The), 36(3), March 2012, pp.85-89.
- Publisher:
- Royal College of Psychiatrists
A study examined a range of in-patient rehabilitation services provided by 2 NHS mental health trusts in Birmingham, Solihull and Sandwell in the West Midlands. It collected and analysed data about 98 service users from 10 services (5 community rehabilitation units, 3 longer-term complex care services, and 2 high-dependency rehabilitation units). The study found significant differences for service users in the different units with respect to duration of stay, length of history, number of admissions, community team, physical health, social functioning, history of aggression, and perceived risk if discharged. Overall, the units managed high levels of risk and disability. The authors concluded that the findings support the principle that different types of rehabilitation services are required, also commenting that community service provision may not adequately meet the needs of the most disabled and access to appropriate move-on facilities for rehabilitation in-patients is insufficient.
Impact of a multicomponent support services program on informal caregivers of adults aging with disabilities
- Authors:
- LAVELA Sherri L., et al
- Journal article citation:
- Journal of Gerontological Social Work, 55(2), February 2012, pp.160-174.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
A multicomponent support services program was implemented for veterans aging with disabilities and their informal caregivers (n = 42 dyads, caregiver average age 56 years) living in Florida. The programme was provided through Social Work Services and targeted high risk families. It included 24 hour in-home respite care, caregiver group support, and education and skills training. It was designed to keep veterans in their home while providing temporary relief to family caregivers. Caregiver outcomes (satisfaction, physical and mental health status, burden, and benefits) were evaluated before and after program use. They reported significant improvements in mental health post-program. Those who provided care to individuals with impaired physical health experienced meaningful improvements in burden after the support services were implemented. The authors conclude that supporting caregiver health status through such programs is vital to preserve noninstitutional long-term care for persons aging with disabilities, particularly when care is provided over many years to an individual with physical impairments.
The right to take risks: service users' views of risk in adult social care
- Author:
- FAULKNER Alison
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 2012
- Pagination:
- 38p.
- Place of publication:
- York
Commissioned as part of a scoping programme on rights, responsibilities, risk and regulation in adult social care, this paper looks at service users' perspectives on issues concerning their right to decide about the risks they wish to take in their lives and on their right to be protected from risks. It is based on existing literature presenting the views or experiences of service users or disabled people and discussions with service users and disabled people from a range of different backgrounds and experiences. It presents the views of service users on risk, the balance between risk and benefits, rights, responsibility, and the role of regulation. It identifies additional risks and fears to those commonly identified by professionals and policy makers and notes that perceptions of risk and rights are significantly different for mental health service users.
Not only a crime but a tragedy [...] exploring the murder of adults with disabilities by their parents
- Author:
- BROWN Hilary
- Journal article citation:
- Journal of Adult Protection, 14(1), 2012, pp.6-21.
- Publisher:
- Emerald
The author considers what can be learned from the occasional cases in which the parents of disabled adults kill their sons and daughters. She seeks to reconcile society's need to apply strong sanctions to the parents while also recognising the stresses in their lives. Six cases are reviewed in detail. These involved seven disabled adults killed by a parent in the UK between 1999 and 2009. Every case involved the mother. Their actions did not appear to be motivated by malice, but occurred against a backdrop of significant mental illness and distress. Two of the parents killed themselves as well as their adult child and another attempted suicide. The explanations offered in court included a combination of caregiver stress and mercy killing. The author suggests that the judicial system is struggling to find a consistent approach. Study limitations are noted. Only high profile cases reported in the press are included, these represent a subset of all cases in the study period. Only information in the public domain is included; the portrayal of the issues in the media is integral to the study. The author concludes with recommendations as to how the backdrop of significant mental ill-health could be taken into account in the way families are offered support with a view to preventing further tragedies.
Supporting people with alcohol and drug problems: making a difference
- Author:
- GALVANI Sarah
- Publisher:
- Policy Press
- Publication year:
- 2012
- Pagination:
- 224p.
- Place of publication:
- Bristol
This book addresses the challenges social workers face when working with people with alcohol and other drug problems. It addresses a perceived gap in social work education by providing a combination of research evidence, policy frameworks and practical hints and tips for good social work practice. The text is based around practice examples from both adults' and children's social care and combines knowledge with action as well as providing an introduction to the evidence base on assessment, intervention and partnership working with specialist substance use colleagues. The book is written for all those working in children's and adults' social work and social care settings who are working with people who use, or have problems with, alcohol or other drugs. Among the topics discussed are : theories, models and methods; multidisciplinary working; minority ethnic people; parental substance use; domestic abuse and substance use; older people's use; young people's use; people with mental ill health; and people with disabilities.
Find Me Good Care
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2012
- Place of publication:
- London
Find Me Good Care is a website to help people to make choices about care and support for themselves or other adults in England. This includes care and support at home and in a residential setting. The site combines advice and information about choosing care with a comparable database of services. It also allows you to create your own Good Care Planner online so that you can save all the information that you find most useful in one place. The site has three main sections: a care planner to help plan care and support for yourself or someone else; a search facility to allow you to search for care and support services across England; information on paying for care and care costs. The site is developed and managed by the Social Care Institute for Excellence.
Disabled children and young people who are looked after: a literature review
- Authors:
- DOWLING Sandra, KELLY Berni, WINTER Karen
- Publisher:
- Queens University Belfast
- Publication year:
- 2012
- Pagination:
- 137
- Place of publication:
- Belfast
This review aims to report on the research literature that addresses the range of issues affecting disabled children and young people who are looked after. The review is based on 58 empirical and theoretical papers and a further 72 papers which provided contextual background. It covers the following areas: numbers of disabled children and young people who are looked after and the challenges of measuring prevalence in this heterogeneous group; their characteristics; pathways to disabled children and young people becoming looked after; placement types and permanency; issues faced by disabled young people on leaving care; and the perspectives of parents and disabled children and young people. Literature relating to international perspectives is incorporated, where available, throughout these thematic sections. The review of literature has highlighted particular gaps in knowledge and priority issues for future research and policy developments. In particular it draws attention to the need for a single accepted definition of disability in relation to looked after children and for regular, quality assured recording to be implemented; to the need for additional practical and emotional support, including increased short break provision, which may enable families whose children are ‘on the edge’ of care to remain within their family home; to the need for policy changes that enhance the parental status of foster parents to strengthen the sense of permanency that can be achieved in fostering arrangements; to the need for policy guidance on person-centred transition planning for disabled care leaver; and to the need to improve the inclusion of disabled children and young people who are looked after in consultation on matters which affect them. (Edited publisher abstract)