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Best practice in learning disability and dementia
- Author:
- CENTRE FOR RESEARCH ON FAMILIES AND RELATIONSHIPS
- Publisher:
- Centre for Research on Families and Relationships
- Publication year:
- 2006
- Pagination:
- 4p.
- Place of publication:
- Edinburgh
Dementia is a particular concern for service providers supporting older people with learning disabilities. Until recently little forward planning had been built into services to prepare for residents to grow older, and cope with medical conditions of older age such as arthritis, osteoporosis or dementia. For people with Down’s syndrome, there is a high prevalence rate of dementia as medical advances mean they, as with the rest of the population, are living longer lives. Little is known about the views and experiences of people with a learning disability who have dementia or are living with someone with dementia in a residential setting (Wilkinson et al 2003, 2004; Lyngaard 2004). A three year research project funded by the Community Fund in collaboration with CARE1 has explored best practice for people with a learning disability who develop dementia - looking at what enables people to remain in their own homes and communities. A key element of this wider project was a service user advisory forum. One of the things this research wanted this group to tell us was what people with learning disabilities know about dementia and what it was like to live with someone who has dementia.
Government proposals to close the Bournewood gap
- Authors:
- CURRAN Christopher, GRIMSHAW Catherine, DEERY Anthony
- Journal article citation:
- Openmind, 142, November/December 2006, pp.24-25.
- Publisher:
- MIND
The authors explain the government's proposals to address some of the issues required to close the 'Bournewood Gap'. The safeguards are for people who lack capacity and are deprived of their liberty but do not receive mental health legislation safeguards. The principles of the Mental Capacity Act will apply, including the requirement to act in the best interests of the incapacitated person and in the least restrictive manner.
Housing with capacity: the Mental Capacity Act explained
- Author:
- WILLIAMSON Toby
- Journal article citation:
- Housing Care and Support, 9(4), December 2006, pp.13-19.
- Publisher:
- Emerald
The Mental Capacity Act 2005 comes into effect in England and Wales 2007. The Act contains principles, procedures and safeguard to empower people to make decision for themselves wherever possible, but also to ensure that decision made on their behalf if they lack the mental capacity to make decision themselves are done in their best interests. The Act will apply to anyone working in the supported housing field or residential care where residents may lack the capacity to make decisions as a result of illness, injury or disability. This article gives an overview of the Mental Capacity Act and its relevance to the field of supported housing.
Home from home
- Author:
- JACKSON Catherine
- Journal article citation:
- Mental Health Today, October 2006, pp.14-15.
- Publisher:
- Pavilion
- Place of publication:
- Hove
The author describes, Duddon Mews in Cumbria, an extra care housing complex designed specifically for older people with dementia and other mental health problems. The project, winner of the NIMHE positive practice award for integrated care, is the result of a five-way collaboration between the local mental health trust, social services, a housing association, a home care provider, and Age Concern.
Consultation on regulations to be made under the Mental Capacity Act 2005
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2006
- Pagination:
- 14p.
- Place of publication:
- London
The Mental Capacity Act is scheduled for full implementation from April 2007. It provides a framework setting out who can take decisions in respect of those individuals who because of the nature of their dementia, brain injury, mental health problems or learning difficulties may be unable to make their own decisions. A consultation is being held on two aspects relating to sections 30-34 which set out the framework for research with such individuals. Research is defined as ‘inclusive research’ and includes social care research studies. Views are sought on the arrangements for appointing the ‘appropriate body’ that approves such research, and on the arrangements for people in longer term studies who agreed in the past but have now lost capacity.
Happy days
- Author:
- -
- Journal article citation:
- Mental Health Today, May 2006, pp.14-15.
- Publisher:
- Pavilion
- Place of publication:
- Hove
This article looks at the work of Sandwell Third Age Arts (STAA), which was winner of the 2005 NIMHE positive practice award for older people and mental health. The work is funded by Sandwell Social Inclusion and Health (Sandwell's social services department) and from fundraising and donations. It takes arts activities to older people with dementia and other mental and physical health problems wherever they are and what ever their level of support needs.
Effect of the Meeting Centres Support Program on informal carers of people with dementia: Results from a multi-centre study
- Authors:
- DROES R-M, et al
- Journal article citation:
- Aging and Mental Health, 10(2), March 2006, pp.112-124.
- Publisher:
- Taylor and Francis
Because of the complex nature of the problems that carers of persons with dementia encounter, several comprehensive support programs for carers were developed in the past decade. One such program is the Meeting Centres Support Program (MCSP) that integrates different types of support for persons with dementia and their carers, which have proved to be effective in practice and/or research. Within the framework of a study into the national implementation of the MCSP, it was investigated whether the positive effects found in carers that participated in the first Amsterdam Meeting Centres, were also achieved in other regions of The Netherlands. A pre-test–post-test control group design with matched groups was applied. In total, 94 carers in the MCSP in eight meeting centres and 34 carers of dementia patients who frequented regular psychogeriatric day care (PDC) in three nursing homes were included in the study. During the study period 23 carers of the MCSP group and 21 carers of the PDC group dropped out. At baseline and after seven months indicators of burden (psychological and psychosomatic symptoms, feelings of burden and time between start of support and institutionalization of the persons with dementia) were measured, as well as potential determinants of burden (sense of competence, coping strategies, experienced support, loneliness and the emotional impact of behaviour problems). Though on a group level no effect was found, either in psychological and psychosomatic symptoms or in the determinants of burden, a subgroup of carers who felt lonely (n?=?22) at baseline benefited significantly more from the MCSP than from PDC in terms of psychological and psychosomatic symptoms. A majority of MCSP carers (82.1%) experienced less burden and more professional support. After seven months significantly fewer persons with dementia in the MCSP (4%) were institutionalized as compared to the patients in PDC (29%). Patients in the MCSP participated for a longer period of time before institutionalization. Although the effect on sense of competence of carers that was found in the Amsterdam study was not found in this multi-centre study, the effect on burden and delayed institutionalization of the person with dementia were confirmed. The integrated MCSP also proved more effective than PDC in decreasing psychological and psychosomatic symptoms in lonely carers. Further dissemination of the MCSP is therefore recommended.
Guide to the Mental Capacity Act 2005: Part 1
- Authors:
- CURRAN Christopher, GRIMSHAW Catherine
- Journal article citation:
- Openmind, 138, March/April 2006, pp.24-25.
- Publisher:
- MIND
This article provides an overview of the Mental Capacity Act which received Royal Assent on 7 April 2005. It covers England and Wales, and provides a statutory framework for decision-making on behalf of adults who cannot take decisions for themselves because of incapacity, either temporary or permanent. It also provides guidance for adults who wish to plan for the future in event that they lose their capacity to act.
Mental health, incapacity and the law in Scotland
- Author:
- PATRICK Hilary
- Publisher:
- Tottel
- Publication year:
- 2006
- Pagination:
- 1022p.
- Place of publication:
- Haywards Heath
This is a guide to mental health law in Scotland, including the changes brought about by the Mental Health (Care and Treatment) (Scotland) Act 2003 and the Adults with Incapacity (Scotland) Act 2000. Mental health and incapacity law affect not just those subject to compulsory orders, but everyone with a mental health problem, dementia or a learning disability.This guide covers every aspect of mental health law, including tribunal procedure, procedures for adults with incapacity, community care, patients’ rights and legal remedies for when things go wrong.
Working with the Mental Capacity Act 2005
- Authors:
- RICHARDS Steven, MUGHAL Aasya F.
- Publisher:
- Matrix Training Associates
- Publication year:
- 2006
- Pagination:
- 44p.
- Place of publication:
- North Waltham
The Mental Capacity Act 2005 provides for the first time, a statutory framework for assessing whether a person has capacity to make decisions and defines how others can make decisions on their behalf. Its scope is wide-ranging involving decisions regarding personal welfare (care and treatment) and financial affairs. Statutory and non-statutory organisations providing health and social care for people who lack capacity will have to ensure that their policies and procedures comply with the Act from April 2007. This book provides a detailed explanation of the new law and its implications for working practice. It is written in an accessible style and is designed to be of maximum use to health and social care professionals so they feel confident using the Act in daily practice.