Search results for ‘Subject term:"mental health problems"’ Sort:
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Development of a framework for recovery in older people with mental disorder
- Authors:
- DALEY Stephanie, et al
- Journal article citation:
- International Journal of Geriatric Psychiatry, 28(5), 2013, pp.522-529.
- Publisher:
- Wiley
This study evaluates whether a conceptual framework of recovery developed for working age adults holds value for users of older people's mental health services, including those with dementia. Thirty-eight qualitative interviews were undertaken with service users and carers from an older people's mental health service in South London and were analysed using grounded theory methods. Components of recovery, which appear to be meaningful to older people with mental disorder include the following: (i) the impact of illness, (ii) the significance of personal responsibility, and (iii) specific coping strategies. Unlike their younger peers, older people did not aspire to a new and revised sense of identity, nor did they seek peer support from others with lived experience of mental illness. Three components of recovery were identified as being distinct to older people: the significance of an established and enduring sense of identity; coping strategies, which provide continuity and reinforce identity; and the associated impact of physical illness. Finally, two additional components of recovery were identified for people with dementia: (i) the changing experience over time and (ii) support from others. Mental health policy is increasingly framed in terms of ‘recovery’. This paper provides empirical evidence of how it applies to users of older people's mental health services. Practice implications include the need to focus on the maintenance of identity, and embed the values of empowerment, agency and self-management within service delivery. (Edited publisher abstract)
Listen to the voices of experience
- Authors:
- KEADY John, NOLAN Mike, GILLIARD Jane
- Journal article citation:
- Journal of Dementia Care, 3(3), May 1995, pp.15-17.
- Publisher:
- Hawker
It is necessary to listen carefully to the experiences and opinions of people with dementia to achieve the ideal of responsive, flexible, and individually-based services. Reports on interviews with people in the early stages of dementia.
What kind of care: summary report of a survey of satisfaction with community services for elderly people with mental health problems in Leeds NW and Leeds SE
- Author:
- BULLIVANT Maxine
- Publisher:
- Leeds Community Health Council
- Publication year:
- 1992
- Pagination:
- 4p.
- Place of publication:
- Leeds
Living with dementia during the COVID-19 pandemic: coping and support needs of community-dwelling people with dementia and their family carers. Research findings from the IDEAL COVID-19 Dementia Initiative (IDEAL-CDI)
- Authors:
- O'ROURKE Gareth, et al
- Publisher:
- University of York. Social Policy Research Unit
- Publication year:
- 2021
- Pagination:
- 49
- Place of publication:
- York
This report sets out findings from the IDEAL COVID-19 Dementia Initiative (IDEAL CDI), which was established to identify concerns and issues faced by people living with dementia and their carers as a result of the coronavirus epidemic and the strict social restrictions imposed in England between March and June 2020. The report is based on interviews with people with dementia and carers from the IDEAL cohort. Some people with dementia coped well, while others coped with difficulty or were only just coping. The additional stress of COVID-19 exacerbated pre-existing coping difficulties. For many, social isolation increased anxiety. Some felt that lack of activity or lack of social contact caused a decline in their abilities to manage everyday tasks. Confusion about COVID-19 rules or difficulty remembering what to do led to anxiety when leaving the house. People felt that members of the public might not understand their particular needs. While some carers felt they were coping well, others experienced stress when having to leave the home because the person with dementia might not be safe if left alone. Some experienced increased strain in the caring relationship compounded by an uncertainty about future availability of respite. Some were concerned about the complex health needs of the person with dementia alongside COVID-19 risk and lack of personalised information. Both people with dementia and carers talked about the importance of access to safe outdoor space. People were anxious about how others would react or behave towards them regarding keeping a distance if they went out. Being connected to friends, family and wider community or support groups was important to help combat the effects of isolation. People from BAME communities worried about their increased vulnerability to the virus. A lack of trust in Government guidance and in health care services added to their anxiety. However, some benefitted from strong community and faith group involvement. (Edited publisher abstract)
Using Appreciative Inquiry to promote choice for older people and their carers
- Authors:
- SEEBOHM Patience, et al
- Journal article citation:
- Mental Health and Social Inclusion, 14(4), November 2010, pp.13-21.
- Publisher:
- Emerald
This article describes how an ‘Appreciative Inquiry’ approach was used in south London to enhance the levels of choice that older adults with dementia or mental health problems and their carers have in relation to the care and support they receive. During this project, a wide range of participants across the borough of Lewisham took part in conversations about making the choices that matter most to them. This article tells the story of this project, its background, the Appreciative Inquiry approach, and what was learnt. The Appreciate Inquiry approach comprises 4 stages: discovery; dream; design; and delivery. In the discovery stage, over 60 people with different roles and backgrounds shared stories in appreciative interviews. The Design Group read all these stories and drew out their common and different themes. On 9 July 2010, 120 people including managers, practitioners, carers, and service users met to share more discovery stories and to convey their visions of the best possible future for older people and their carers, building on what works. Later, the Design Group drew up on action plan for taking the work forward. Through looking at successful stories about making real choice in Lewisham, the project provided information about the conditions that support choice, including the importance of good relationships, building trust, making time, giving and receiving encouragement, and support.
Exploring perceptions of quality of life of frail older people during and after their transition to institutional care
- Author:
- ESRC GROWING OLDER PROGRAMME
- Publisher:
- University of Sheffield. Department of Sociological Studies
- Publication year:
- 2003
- Pagination:
- 4p.
- Place of publication:
- Sheffield
Reports on research to investigate the quality of life of older people with severe physical and/or mental conditions or disabilities at the end of their lives. The research aims to contributed to the understanding of the quality of life for frail older people, from the perspective of older people themselves. The research used a symbolic interactionist framework and takes a subjective, qualitative approach to quality of life as a multi-dimensional concept, including social, psychological, emotional, cultural, spiritual and environmental dimensions. This ethnographic research included six focus groups, naturalistic observation, and interviews with 52 individuals who had moved into care homes in the previous six months.
Work satisfaction, stress, quality of care and morale of older people in a nursing home
- Authors:
- REDFERN Sally, et al
- Journal article citation:
- Health and Social Care in the Community, 10(6), November 2002, pp.512-517.
- Publisher:
- Wiley
The aim in this study, which was carried out in one nursing home for older people, was to determine the feasibility of working with care workers and very frail service users to investigate links between the levels of work satisfaction and stress of the staff, and the quality of care and morale of the residents. The findings revealed a staff group with a fairly high level of job dissatisfaction and stress, who were, nevertheless, very committed to the nursing home. The morale of the residents was good although the residents rated the home atmosphere lower than the staff did.
End of life treatment decisions in people with dementia: carers' views and the factors which influence them
- Authors:
- POTKINS Dawn, et al
- Journal article citation:
- International Journal of Geriatric Psychiatry, 15(11), November 2000, pp.1005-1008.
- Publisher:
- Wiley
Treatment decisions in life threatening situations (TD) are poorly studied in people with dementia. The carers of people with dementia were asked four TD questions, pertaining to cardiac resuscitation, intravenous fluids, oral antibiotics and intravenous antibiotics. The impact of key variables (age, dementia severity, psychiatric co-morbidity, physical illness, family relationship of carer) on TD were evaluated. The global view of carers, was not influenced greatly by key disease variables. There are potential implications for the way in which carers are used as proxy decision makers.
Identifying research priorities for older people’s mental health services
- Authors:
- EMRICH-MILLS Luke, et al
- Journal article citation:
- Mental Health and Social Inclusion, 23(2), 2019, pp.89-100.
- Publisher:
- Emerald
Purpose: Including the views of service users, carers and clinical staff when prioritising health research can ensure future projects are meaningful and relevant to key stakeholders. One National Health Service Foundation Trust in England, UK undertook a project to identify the top 10 research priorities according to people with experience using or working in services for dementia and older adult mental health. The paper aims to discuss these issues. Design/methodology/approach: Service users with dementia and mental health difficulties; informal carers, family and friends of service users; clinical staff working in the Trust. Participants were surveyed for research ideas. Ideas were processed into research questions and checked for evidence. Participants were then asked to prioritise their personal top 10 from a long list of research questions. A shortlist of 26 topics was discussed in a consensus workshop with a sample of participants to decide on the final top 10 research priorities. Findings: A total of 126 participants provided 418 research ideas, leading to 86 unique and unanswered research questions. In total, 58 participants completed interim prioritisation, 11 of whom were invited to the consensus workshop involving service users, carers and clinical staff. The final top 10 priorities were dominated by topics surrounding care, psychosocial support and mental health in dementia. Research limitations/implications: Future research from the Trust and collaborating organisations can use these results to develop relevant projects and applications for funding. Originality/value: This project has demonstrated the possibility of including key stakeholders in older adult mental health research priority setting at the local level. (Edited publisher abstract)
Social exclusion in adult informal carers: a systematic narrative review of the experiences of informal carers of people with dementia and mental illness
- Authors:
- GREENWOOD Nan, MEZEY Gillian, SMITH Raymond
- Journal article citation:
- Maturitas, 112, June 2018, pp.39-45.
- Publisher:
- Elsevier
Social exclusion has a negative impact on quality of life. People living with dementia or mental health disorders as well as informal carers have been separately described as socially excluded. The objective of this systematic narrative review was to examine the extent to which social exclusion experienced by adult informal carers of people living with dementia or severe mental health disorders has been identified and described in research literature. It synthesised qualitative and quantitative evidence and included the perspectives of carers themselves and of professionals. Eight electronic databases (1997-2017) were searched. Five relevant studies published between 2010 and 2016 were identified. All were qualitative and used interviews and focus groups. Study quality was variable and most were European. Two focused on carers of people living with dementia and three on carers of people with mental health disorders. Four investigated carers' perspectives and experiences of social exclusion directly (total of 137 carer participants, predominantly parents, spouses and adult children), while the fifth focused on the perceptions of 65 participants working in health and social care. Stigma, financial difficulties and social isolation were highlighted in four studies and the challenges for carers in engaging in leisure activities were described in the fifth. Most conceptualised social exclusion as a form of stigma, or as resulting from stigma. One presented social exclusion as an element of carer burden. Two explicitly discussed the negative effects of social exclusion on carers. The dearth of research and the lack of specificity about social exclusion in carers was surprising. Future research should investigate aspects of social exclusion that may adversely affect carer wellbeing. (Edited publisher abstract)