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Developing collective advocacy for people who fall within the remit of the new Mental Health (Scotland) Bill: final report
- Authors:
- SCOTTISH HUMAN SERVICES TRUST, SCOTTISH DEVELOPMENT CENTRE FOR MENTAL HEALTH
- Publisher:
- Scottish Human Services Trust
- Publication year:
- 2003
- Pagination:
- 62p.
- Place of publication:
- Edinburgh
This report is the result of a research project commissioned by the Scottish Human Services Trust that studies collective advocacy for people who fall within the remit of the new Mental Health (Scotland) Bill. The purpose of the study was to map existing collective advocacy groups in Scotland for people with mental health problems, those with learning disabilities, people with dementia or acquired brain injury. Also, to describe the issues currently faced by collective advocacy groups and the likely challenges and opportunities presented by the proposed new legislation; and, to identify the steps that might be taken to enable collective advocacy groups to respond effectively to the new Mental Health (Scotland) Bill and other recent legislation. A framework was developed that enabled information to be gathered on the structure and function of collective advocacy groups. Information was collected on 54 groups across Scotland. The mapping exercise showed that a wide range of different types and sizes of groups undertake collective advocacy and that a wide range of collective advocacy work is undertaken. It also became clear that the term “collective advocacy” is not always used by groups offering a collective advocacy service. The report concludes that it is important to take into account the breadth of collective advocacy functions. Also, that the fragility and vulnerability of much collective advocacy activity and the variable amounts of information and knowledge about legislative developments held by collective advocacy groups suggests that there is need for a considerable building of capacity.
Delusions of Japanese patients with Alzheimer's disease
- Authors:
- IKEDA Manabu, et al
- Journal article citation:
- International Journal of Geriatric Psychiatry, 18(6), June 2003, pp.527-532.
- Publisher:
- Wiley
Delusions constitute one of the most prominent psychiatric complications in Alzheimer's disease (AD). However, there is little consensus of the prevalence and associated factors for delusions in AD. 112 consecutive patients with AD were recruited over a one year period and administered the Neuropsychiatric Inventory (NPI). Delusions were present in 53 patients (47.3%). Delusions of theft were the most common type of delusion (75.5% of patients with delusions), followed by misidentification delusions and delusions of suspicion. More hallucination, agitation, and female gender were found in the delusions group. The authors found a high frequency of delusions, particularly of delusions of theft and suggested that gender was associated with the expression of delusions in Japanese patients with AD.
What is financial abuse?
- Author:
- BROWN Hilary
- Journal article citation:
- Journal of Adult Protection, 5(2), May 2003, pp.3-10.
- Publisher:
- Emerald
The author explores the meaning of the term 'adult abuse' and suggests new ways of looking at the phenomenon. The article brings together the literature on both financial abuse and neglect, focusing in particular on the interaction between financial abuse and neglect in the context of adults who lack capacity.
Women only
- Author:
- WELLARD Sarah
- Journal article citation:
- Community Care, 10.4.03, 2003, pp.34-35.
- Publisher:
- Reed Business Information
Looks at attempts to provide services for women with mental health problems that also include their specific needs, such as child care and female-only wards.
Responding to the challenges of ageing and dementia in intellectual disability in Ireland
- Authors:
- McCARRON M., LAWLOR B. A.
- Journal article citation:
- Aging and Mental Health, 7(6), November 2003, pp.413-417.
- Publisher:
- Taylor and Francis
The intellectual disability (ID) population in Ireland is ageing and the number of older persons with the dual disability of ID and dementia is increasing. In spite of these demographic trends, as in other countries adequate policy and service provision for this population are lacking. This paper draws upon data available on the population with ID and dementia, reviews both generic and ID specific literature, considers the policy context and argues for a specific model of service provision. A service model is proposed for the development of multidisciplinary specialist teams within ID, delivered through mobile regional ID dementia clinics.
Long-term outcome of late-onset schizophrenia: 5-year follow-up study
- Authors:
- BRODATY Henry, et al
- Journal article citation:
- British Journal of Psychiatry, 18(9), September 2003, pp.213-219.
- Publisher:
- Cambridge University Press
There is controversy about whether late-onset schizophrenia is a precursor of cognitive decline. The purpose of this research was examine the long-term outcome of a group of patients with late-onset schizophrenia. Patients with onset of DSM–III–R schizophrenia at age 50 years or over, but without dementia, and a healthy control group were assessed at baseline (n=27 andn=34, respectively), after 1 year and after 5 years (n=19 and n=24, respectively) on measures of psychopathology, cognition and general functioning, and compared on rates of decline and incidence of dementia. Nine patients with late-onset schizophrenia and none of the control group were found to have dementia (5 Alzheimer type, 1 vascular, 3 dementia of unknown type) at 5-year follow-up. There appeared to be a subgroup of late-onset schizophrenia patients without signs of dementia at baseline or at 1 year follow-up who subsequently declined. Late-onset schizophrenia may be a prodrome of Alzheimer-type dementia. More longitudinal studies are required to determine its nosological status.
Negative symptoms in Alzheimer's disease: a confirmatory factor analysis
- Authors:
- DE JONGHE Jos F. M., et al
- Journal article citation:
- International Journal of Geriatric Psychiatry, 18(8), August 2003, pp.748-753.
- Publisher:
- Wiley
Negative symptoms are a prominent clinical feature of Alzheimer's disease and they are related to memory impairment but not to mood disturbances. Methods employed in this research included Nurses' Behavioural observation scale for psychogeriatric inpatients (GIP). Global clinical ratings of severity of dementia and depression based on the Cambridge Examination for Mental Disorders of the Elderly-Dutch version (CAMDEX-N). A unidimensional model of dementia fitted the data poorly. Multidimensional models produced better results. In two- and three-factor models negative symptoms were separated from cognitive impairment and mood disturbances. The more severe the memory impairment, the more socially withdrawn patients were. In this sense negative symptoms may have been secondary to cognitive decline. However, no association was found between negative symptoms and mood disturbances.
Teaching and training in old age psychiatry: a general survey of the World Psychiatric Association member societies
- Authors:
- CAMUS Vincent, et al
- Journal article citation:
- International Journal of Geriatric Psychiatry, 18(8), August 2003, pp.694-699.
- Publisher:
- Wiley
One of the main goals of the World Psychiatric Association (WPA) section on old age psychiatry is to promote its discipline and consequently to help member societies to promote and develop locally specific medical education programmes in old age psychiatry. In order to target its support to the needs expressed by the member societies, the section conducted a survey within the WPA during the year 2001. Answers were obtained from 50 WPA member societies (response rate 54%) from 48 countries (response rate 52%). The existence of specific old age psychiatry services was reported in 40 (83%) countries, but the discipline is recognized as a subspecialty in only 13 (27%). Formal teaching in old age psychiatry was reported at the undergraduate level in 44 (92%) countries. Specific learning objectives for postgraduate training were reported in 30 (86%) of the countries where the discipline is not yet recognized as a subspecialty. Specific Continuing Medical Education (CME) programs were however reported in only 50% of the countries. Support for the development of educational material was mostly thought to be useful at the postgraduate level. Depression, dementia, psychopharmacology and psychotherapy were among the most frequently cited areas in which educational material might be usefully provided. Support for the development of postgraduate training is seen as the most pressing need by WPA member societies. Such support could help to increase the level of recognition of the discipline locally and hence provide more effective support to older people with mental disorders.
Scoping the field: services for carers of people with mental health problems
- Author:
- ARKSEY Hilary
- Journal article citation:
- Health and Social Care in the Community, 11(4), July 2003, pp.335-344.
- Publisher:
- Wiley
Mental ill health is very common. Most people with problems live in the community, and as many as 1.5 million people in the UK may be involved in caring for a relative or friend with mental illness or some form of dementia. Recent legislation and policy initiatives such as the National Strategy for Carers and the National Service Frameworks for Mental Health and Older People emphasise the importance of providing support for this group. This paper reports the findings of a scoping study to identify what research tells us about the effectiveness and cost-effectiveness of interventions for carers of people with mental health problems, and also where there are gaps in the knowledge base. Some 204 evaluation studies were included, just 13 of which had an economic component. Most were conducted in the USA and were aimed at carers of people with Alzheimer's disease or other forms of dementia. Overall, there was a lack of strong evidence to support any specific interventions, although almost all studies were able to identify some positive outcomes of services provided. In contrast to the relatively narrow approach to effectiveness adopted in most studies reviewed, the contributors to a consultation exercise perceived this concept in a far more rounded and holistic way. For them, the process of service delivery was as important as the outcome. There was relatively little research evaluating interventions and services singled out in UK policy initiatives as potentially useful in supporting this group of carers. Further evaluation studies are needed.
Social sensory stimulation groups: do the benefits last?
- Authors:
- MAGUIRE Siobain, GOSLING Anna-Louise
- Journal article citation:
- Journal of Dementia Care, 11(2), March 2003, pp.20-22.
- Publisher:
- Hawker
Reports on a study to consider whether the benefits of running an activity and stimulation group have any demonstrable effect after the group itself has finished. An activity group was set up in a nursing home, with a minimum of four residents and a maximum of six residents attending each week. All residents in the study has a diagnosis of dementia. Group members were observed for 30 minutes before the group started and for 30 minutes after the group had finished. The study found the group was effective in stimulating activity resulting in improved levels of well-being, but no carry-over effect was found. Discusses the possible reasons for this.