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The Lancashire quality of life profile: first experiences in the Netherlands
- Authors:
- van NIEUWENHUIZEN Chijs, et al
- Journal article citation:
- Community Mental Health Journal, 34(5), October 1998, pp.513-524.
- Publisher:
- Springer
In the Netherlands, as in many other European countries, there is a strong desire for a reliable, valid and feasible instrument to assess the quality of life of people with long-term mental illness. After careful evaluation, it was decided to translate and adapt the Lancashire Quality of Life Profile (LQOP) developed by Oliver and associates. This article presents the preliminary results of a pilot study using the LQOLP. Results indicate that the psychometric properties of the translated LQOLP are encouraging and that the instrument can be used for people with mental illness who live in the Netherlands.
Person centred planning: what's it all about?
- Author:
- SANDERSON Helen
- Journal article citation:
- Soundtrack, 11, December 1997, pp.6-7.
- Publisher:
- National Development Team
Explains some of the differences between traditional and person centred planning.
Conceptualizing quality of life among older adults in guardianship: guardians and elder law attorneys talk about QOL and spirituality
- Authors:
- SVARE Gloria Messick, ANNGELA-COLE Linda
- Journal article citation:
- Journal of Religion and Spirituality in Social Work, 29(3), July 2010, pp.237-255.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
To explore definitions and assessments of Quality of Life (QOL) and spirituality as a component of QOL for older people four focus groups were conducted with elder law attorneys and guardians. All 21 participants were professionals working with incapacitated adults; 13 were guardians or case managers from a public guardian agency, 6 were guardians or case mangers from two private guardian agencies, and 2 were senior law attorneys. Seven key themes about QOL and spirituality were identified: QOL is impossible without choice; choice can be identified only by knowing the incapacitated adult as an individual; for this population, QOL is primarily subjective; quality of life versus quality of care; QOL is not static; finances limit choices; spirituality as broadly defined is related to QOL. Choice was identified as central to QOL. Choice allowed incapacitated older adults to engage in relationships and activities that are important to them and thereby increase hope, purpose,, and meaning in life. As individuals lose the ability to communicate, spiritual aspects of life continue to be as, or even more, prominent although taking different forms. Participant feedback supported the use of a general QOL measure, rather than a health-related QOL measure, which includes a measure of spiritual wellbeing in this population.
Factors associated with quality of life in a cohort of forensic psychiatric in-patients
- Authors:
- LONG Clive G., et al
- Journal article citation:
- British Journal of Forensic Practice, 10(1), March 2008, pp.4-11.
- Publisher:
- Emerald
Self-reported quality of life was examined in a cohort of detained psychiatric in-patients. Two patient groups, categorised as high and low on the Lehman Quality of Life Interview (QOLI) in terms of their ‘satisfaction with life in general’, were compared. A model of satisfaction with life derived from a logistic regression analysis contained three measures: (high) QOLI satisfaction rating for living situation (low) suicidality and (high) motivation and energy. The practical implications of these findings are discussed in terms of assessment, symptom relief and environmental change.
Quality of life and service utilisation of psychotic patients in south London: the PRISM study
- Authors:
- CLARKSON Paul, McCRONE Paul
- Journal article citation:
- Journal of Mental Health, 7(1), February 1998, pp.71-80.
- Publisher:
- Taylor and Francis
- Place of publication:
- London
Quality of Life (QQL) measures are being used increasingly in the assessment of outcomes in community services for the mentally ill. This article presents evaluations made by an epidemiologically representative group of psychotic patients in South London concerning their quality of life while receiving a comprehensive range of community care services. Results indicate differences in patients' evaluations of quality of life according to specific services used.
Manual for the adult carers quality of life questionnaire (AC-QoL)
- Authors:
- ELWICK Hannah, et al
- Publisher:
- Princess Royal Trust for Carers
- Publication year:
- 2010
- Pagination:
- 10p.
- Place of publication:
- Woodford Green
There are nearly six million people providing unpaid care in the UK. In the National Carer’s Strategy, it was reported that 71% of carers have had health problems which included poor physical and mental health. In turn poorer physical and mental health can affect the person’s ability to care, with the majority of these carers reporting that their health problems also affected the person they were caring for. This manual is intended to provide researchers and practitioners in the field of caring with a relevant and accessible instrument to assess the quality of life of adult, unpaid carers. The questionnaire can be used on a one off basis for the purpose of assessment, or as a pre and post intervention tool to measure change and the impact of support. This manual will be of interest to professionals in the fields of health and social care as well as those researching care-giving and caring organisations themselves.
Mental health of US Gulf War veterans 10 years after the war
- Authors:
- TOOMEY Rosemary, et al
- Journal article citation:
- British Journal of Psychiatry, 190(5), May 2007, pp.385-393.
- Publisher:
- Cambridge University Press
Gulf War veterans reported multiple psychological symptoms immediately after the war; the temporal course of these symptoms remains unclear. The aim was to assess the prevalence of war-era onset mental disorders in US veterans deployed to the Gulf War and in non-deployed veterans 10 years after the war. Mental disorders were diagnosed using structured clinical interviews. Standard questionnaires assessed symptoms and quality of life. Gulf War-era onset mental disorders were more prevalent in deployed veterans (18.1%, n=1061) compared with non-deployed veterans (8.9%, n=1128). The prevalence of depression and anxiety declined 10 years later in both groups, but remained higher in the deployed group, who also reported more symptoms and a lower quality of life than the non-deployed group. Remission of depression may be related to the presence of comorbid psychiatric disorders and level of education. Remission of anxiety was related to treatment with medication. Gulf War deployment was associated with an increased prevalence of mental disorders, psychological symptoms and a lower quality of life beginning during the war and persisting at a lower rate 10 years later.
The role of stigma in the quality of life of older adults with severe mental illness
- Authors:
- DEPLA Marja F. I. A., et al
- Journal article citation:
- International Journal of Geriatric Psychiatry, 20(2), February 2005, pp.146-153.
- Publisher:
- Wiley
Stigma and discrimination against older people with mental illness is a seriously neglected problem. (1) To investigate whether stigmatisation of older adults with mental disorder is associated with the type of residential institution they live in or the type of disorder they suffer and (2) to assess the role of stigma experiences in their quality of life. A cross-sectional study was carried out of 131 older adults with severe mental illness, recruited in 18 elder care homes operating supported living programmes and in eight psychiatric hospitals throughout the Netherlands. Stigmatisation was assessed with an 11-item questionnaire on stigma experiences associated with mental illness. Quality of life was assessed with the Manchester Short Assessment of Quality of Life (MANSA). To better ascertain the role of stigma, we also assessed in comparison the relationship of social participation to quality of life. Some 57% of the respondents had experienced stigmatisation. No association emerged between residential type or disorder type and the extent of stigma experiences. Stigmatisation did show a negative association with quality of life, a connection stronger than that between social participation and quality of life. A feeling of belonging, as contrasted with being excluded, is at least as important for the quality of life of older people with severe mental illness as their actual participation in the community.
The emotional lives of people with learning disability
- Author:
- ARTHUR Andrew R.
- Journal article citation:
- British Journal of Learning Disabilities, 31(1), 2003, pp.25-30.
- Publisher:
- Wiley
This paper reviews accounts of research and therapy and makes an assessment of the current state of knowledge. Very little research actually exists when compared to the non-learning disabled, and so, studies of psychotherapy, child development, parent-infant bonding, psychological assessment and emotional disturbance in people with learning disability are examined. The review finds that there is evidence to suggest the presence of a significantly higher level of emotional developmental problems and disturbance in people with learning disability. This problem requires multidisciplinary attention if progress in improving quality of life is to be maintained.
How are you? Further development of a generic quality of life outcome measure
- Authors:
- CLIFFORD Paul I., et al
- Journal article citation:
- Journal of Mental Health, 11(4), August 2002, pp.389-404.
- Publisher:
- Taylor and Francis
- Place of publication:
- London
The methods described in the 'How Are You?' measures are designed to meet the need for a broad-based self-report tool that integrates the recording of health and social problems and the measurement of quality of life outcomes within routine practice. This article describes the process of revising the original How Are You? Utilizing a series of factor analyses, we hoped to confirm that items that were theoretically coherent aggregated empirically, with the goal of refining the measure for outcome analyses and comparisons with other outcomes measures. Based upon data from both the USA and the UK, the factor analyses confirmed the How Are You? theoretical structure and identified a new factor, referred to as 'Risk' that measures emotional dyscontrol and symptoms that can be associated with psychosis. The advantages of the refined scale include shorter length, a broad set of quality of life domains and the instruction to the respondent to identify key problems that are of most concern. The revisions will allow for a more valid assessment of outcome.