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Rights discourses in relation to education of people with intellectual disability: towards an ethics of care that enables participation
- Authors:
- MCKENZIE Judith Anne, MACLEOD Catriona Ida
- Journal article citation:
- Disability and Society, 27(1), 2012, pp.15-29.
- Publisher:
- Taylor and Francis
This article argues that human rights approaches people with learning disabilities have failed to recognise the complexity of rights claims made by and on behalf of this group. Drawing on a research project into discourses of education for intellectually disabled people in the Eastern Cape, South Africa, it discerns three rights discourses; namely, rights to full participation, rights to special services and rights to protection. These draw off a social model, a medical model and a protective model, respectively. The authors note that these discourses may be set up in contestation with each other. However, the article argues that they can be seen as complementary if viewed within an ethics of care that enables participation. Within this conceptualisation, participation is viewed within relations of care but is subject to a critique that examines the role of context and disciplinary power in constructing dependency.
Stigma, the medical model and dementia care: psychological growth in senior health professionals through moral and professional integrity
- Authors:
- WALMSLEY Bruce D., McCORMACK Lynne
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 15(6), 2016, pp.1685-1702.
- Publisher:
- Sage
Minimal research explores the impact of a career in dementia care on senior health professionals. This study sought positive and negative subjective interpretations from seven senior health professionals regarding their experiences in dementia care. Data from semi-structured interviews were analysed using interpretative phenomenological analysis (IPA). One superordinate theme, Honouring stigmatised self, overarched four sub-themes: Systemic stigma, Invalidated, Self-respect and Moral integrity and Growth. Stigma was interpreted as systemically entrenched minimisation of aged care and the aged-care workforce, including poor remuneration and training. Participants experienced peer invalidation particularly when attempting to resolve complex professional and moral challenges in dementia care. These often occurred in the context of efforts to individualise care, constrained within a medical model. Paradoxically, external invalidation motivated a search for redefining ‘self’ and moral integrity. By wisely acknowledging career experience, growthful domains of self-respect, optimism, humility and innovation defined professional practice and personal choices. Implications are discussed. (Publisher abstract)
Social work and the DSM: a qualitative examination of opinions
- Authors:
- HITCHENS Kristine, BECKER Dana
- Journal article citation:
- Social Work in Mental Health, 12(4), 2014, pp.303-329.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Social work has had an irresolute association with the Diagnostic and Statistical Manual of Mental Disorders (DSM), and it has been suggested that social workers have been a relatively silent majority when it comes to critiques of the DSM. This study examined social workers’ attitudes towards the DSM via semi-structured interviews completed with twenty experienced social workers. Data revealed both ambivalence and unease in relation to what the DSM represents sufficient to suggest that social workers might be encouraged collectively to champion a new method of assessment that is more congruent with the mission of social work. (Publisher abstract)
Mental health recovery paradigm: implications for social work
- Author:
- CARPENTER Jenneth
- Journal article citation:
- Health and Social Work, 27(2), May 2002, pp.86-94.
- Publisher:
- Oxford University Press
The medical model is often often seen as a driving force in policy and services provision in mental health services. Here the authors argue that the values and beliefs of the consumer-survivor recovery movement are more closely aligned to the social work profession. Outlines the main concepts of the recovery model and discusses the implications for practice, policy making, education and research.
Judging the ethics of qualitative research: considering ethics as process model
- Authors:
- RAMCHARAN Paul, CUTCLIFFE John R.
- Journal article citation:
- Health and Social Care in the Community, 9(6), November 2001, pp.358-366.
- Publisher:
- Wiley
Decision-making about the ethics of qualitative research in problematic where the research design is emergent, and the balance between risks and benefits for research subjects are difficult to ascertain prior to study implementation. The discourses of health/medical research ethics and those of social research are shown to be divergent and where ethics committees tie themselves to the health/medical model of ethical decision making, qualitative research approaches can be disadvantaged. Having demonstrated the dual discourses and their relevance to qualitative research ethics, a critical review of current approaches to maximising the success of qualitative research proposals being considered for approval by ethics committees is undertaken. This leads to a call for system of monitoring qualitative research so that the 'benefit to risk' ration is always on the side of benefit. This has implications for the way in which ethics committees are organised and the ways in which they function.