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“They need to be able to have walked in our shoes”: what people with intellectual disability say about National Disability Insurance Scheme planning
- Authors:
- COLLINGS Susan, DEW Angela, DOWSE Leanne
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 44(1), 2019, pp.1-12.
- Publisher:
- Taylor and Francis
Background: Planning is a key mechanism by which the Australian National Disability Insurance Scheme (NDIS) ensures individuals with disability have choice and control over supports. People with intellectual disability will comprise the largest NDIS participant group and many will need assistance to engage in planning. In order to respond effectively, NDIS planners must understand the decision-making support required by individuals. Method: Focus groups were conducted with 9 adults with intellectual disability living in an NDIS trial site to explore their experiences of NDIS planning. Results: Thematic analysis identified 6 themes related to good planning experiences for people with intellectual disability: preparation, learning from mistakes, personal growth, and having a credible, consistent, and disability-aware planner. Conclusions: Participants who developed a trusting relationship with a planner used planning to increase independence and social participation. Planner skills, particularly communication and sector knowledge, and attributes such as warmth and openness created trust. (Edited publisher abstract)
Delivering same-sex accommodation in mental health and learning disability services
- Author:
- NHS CONFEDERATION
- Publisher:
- NHS Confederation
- Publication year:
- 2010
- Pagination:
- 5p.
- Place of publication:
- London
This Briefing summarises existing national policy and good practice on same-sex accommodation across NHS mental health and learning disability services, explains what support is available to organisations that need to make improvements, and sets out what both providers and commissioners can do to ensure same-sex accommodation becomes a reality for all.
Six lives: progress report
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2010
- Pagination:
- 58p.
- Place of publication:
- London
The Parliamentary and Health Service Ombudsman and Local Government Ombudsman published the Six Lives: The Provision of Public Services to People with Learning Disabilities report in March 2009, which investigated the deaths of six people with learning disabilities. This progress report in response to the recommendations in the Six Lives report was prepared using information and views gathered from a range of service providers, service users and other relevant people and groups. It looks at the Six Lives recommendations, discussing reviewing and reporting, regulatory bodies, and the role of the Department of Health, and what seems to be making a difference and what is causing most concern in terms of impact. It notes that much work has been undertaken to improve care and treatment of people with learning disabilities, but that more needs to be done.
Six lives: progress report summary: easy read
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2010
- Pagination:
- 13p.
- Place of publication:
- London
This is an Easy Read summary of the progress report written for the Parliamentary and Health Service Ombudsman and Local Government Ombudsman. The progress report is in response to the recommendations in their 2009 report Six Lives: The Provision of Public Services to People with Learning Disabilities, which investigated the deaths of six people with learning disabilities. It describes the background, and looks at progress in doing what the ombudsmen asked, what was found out, things that are making a difference, and things that people were worried about. It also notes that more work needs to be done to make things better for people with learning disabilities, and summarises what happens next.
The development of the QUALITRA-ID: a user-orientated interview to assess the quality of care and service trajectories for intellectually disabled persons
- Authors:
- BARELDS A., et al
- Journal article citation:
- Journal of Intellectual Disability Research, 54(3), March 2010, pp.224-239.
- Publisher:
- Wiley
This article describes the development, via a pilot study, of the QUALITRA-ID (QUALIty assessment of care and service TRAjectories), a Netherlands based user-orientated interview concerning the quality of care and service trajectories for people with intellectual disabilities (ID). First, the phenomenon ‘care and service trajectories’ is conceptualised on the basis of document analysis and semi-structured interviews with key informants in the field of health care for people with ID. Second, the quality of care and service trajectories is operationalised by means of eight focus group discussions with intellectually disabled people and their parents/relatives, along with a review of the relevant literature. Third, the QUALITRA-ID is constructed using the results of the conceptualisation and operationalisation of the phenomenon. Fourth, the QUALITRA-ID is refined in two stages that were concerned with examining the feasibility, understandability and completeness of the QUALITRA-ID. The second stage was also concerned with the first quality assessment among people with ID. The final result is a 24-item QUALITRA-ID consisting of a personal conversation and a closed-ended part.
A relationship support service for people with learning disabilities
- Authors:
- JENNER Phillip, GALE Tim M.
- Journal article citation:
- Tizard Learning Disability Review, 11(2), April 2006, pp.18-25.
- Publisher:
- Emerald
This article describes the background to, and process of, setting up a Relationship Support Service for individuals with learning disabilities. The service was funded as a pilot project in Hertfordshire in response to the unmet needs of service users with learning disabilities and their carers. Superficially, the service functions like a conventional dating service. However, unlike a conventional dating agency, this is a learning disability service, providing opportunities for personal development. A crucial aspect of the service is that it provides continued support in maintaining friendships and relationships over time. The article outlines the rationale behind the service, the obstacles that have been overcome, the application procedures and the safeguards that are in place, and reports some preliminary data on service uptake. The pilot study emphasises both the feasibility and potential benefits of setting up this much needed service.
3 lives: what we have learned, what we need to do
- Author:
- CARE QUALITY COMMISSION
- Publisher:
- Care Quality Commission
- Publication year:
- 2014
- Pagination:
- 10
- Place of publication:
- Newcastle upon Tyne
This report, which came from an event hosted by the Care Quality Commission, outlines the experiences of three young people and details how they and their families were let down by learning disability services that should have been caring for them. The family stories told at the event outlined the experiences of: 18 year old Connor, who died at an assessment and treatment centre after he was found unconscious after a seizure whilst unsupervised in a bath; Kayleigh, who spent 10 years in assessment and treatment centers, including Winterbourne View; and Lisa who was kept for the majority of the time in a locked area at an assessment and treatment centre with staff interacting with her through a small letterbox style hatch. The report outlines the actions identified by those attending the event around a number of key themes. The common themes were: the importance of understanding the person, and listening to them and their family; the need for local professional expertise and early intervention close to home; the importance of good multidisciplinary support, including transition between child and adult services; the closure of services that do not meet people’s needs, and which are at odds with the right models of care. (Edited publisher abstract)
Making reasonable adjusments to dementia services for people with learning disabilities
- Authors:
- KENNEY Amanda, IMPROVING HEALTH AND LIVES: LEARNING DISABILITIES OBSERVATORY
- Publisher:
- Improving Health and Lives: Learning Disabilities Observatory
- Publication year:
- 2013
- Pagination:
- 25
- Place of publication:
- London
'Making reasonable adjusments to dementia services for people with learning disabilities' is part of a series of reports produced by IHaL which focus on reasonable adjustments to mainstream services, so that they meet the needs of people with learning disabilities. The report is a provides sources of evidence, research, policy and guidance, resources, and case studies and good practice examples. It can be used by people with learning disabilities (there is an easy read summary at the start of the report), carers, commissioners, providers, public health leads, and advocacy services, to improve dementia services for people with learning disabilities. (Edited publisher abstract)
Gender issues for people with intellectual disabilities and mental health problems: asking what service users and staff think
- Author:
- KROESE Biza Stenfert
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 7(4), 2013, pp.181-190.
- Publisher:
- Emerald
The current qualitative study aims to investigate service users’, support staff's and community team members’ views of gender differences in cause and presentation of mental health problems, whether current services respond differently to men and women with mental health problems and areas in which services can become more gender sensitive. Two focus groups were conducted with service users with intellectual disabilities and mental health problems in addition to two focus groups with a variety of staff. Subsequently, individual interviews were conducted with both male and female staff members employed in residential and community intellectual disability services. The number of participants totalled 54 (16 service users and 38 staff). Thematic analysis was adopted in order to identify dominant themes in the discourse of these stakeholder groups. The analysis produced a number of themes which include: compliance versus challenge; vulnerability; expression of emotion; gender equality; same sex support; caring qualities; and boundaries. A number of suggestions for improving services are discussed in the context of the current findings. (Publisher abstract)
Revolving door of service providers
- Author:
- DRINKWATER Mark
- Journal article citation:
- Community Care, 24.11.11, 2011, pp.28-29.
- Publisher:
- Reed Business Information
Competitive tendering of services to non-profit organisations and profit making companies can be very disruptive for staff and service users, especially when involving supported living services for people with learning disabilities. The difficulties people with learning disabilities can face when changing service providers and the concerns that local authorities should address are discussed.