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Receipt of professional care coordination among families raising children with special health care needs: a multilevel analysis of state policy needs
- Authors:
- PARISH Susan L., et al
- Journal article citation:
- Children and Youth Services Review, 31(1), January 2009, pp.63-70.
- Publisher:
- Elsevier
Data from the 2002 National Survey of Children with Special Health Care Needs in the US were analyzed to understand the state-level policies and individual characteristics associated with receipt of professional care coordination by families raising children with special health care needs. Families living in states with more generous State Children's Health Insurance Programs (SCHIP) were more likely to receive professional care coordination. Numerous individual characteristics are associated with receipt of support services. States could likely improve access to support services for these families by expanding SCHIP and implementing targeted measures to help uninsured children, children whose parents do not speak English, those living below 300% of the federal poverty level, and families raising children with the most severe impairments.
Type 2 diabetes: living a healthier life
- Authors:
- SPEAKUP SELF ADVOCACY, (Producer)
- Publisher:
- Speakup Self Advocacy
- Publication year:
- 2008
- Pagination:
- DVD
- Place of publication:
- Rotherham
Having diabetes means that your body produces too little or no insulin. If you have type 2 diabetes (also known as non-insulin dependent diabetes), your body produces some insulin, but less than you need. The insulin you do produce does not work properly. Whether you have had type 2 diabetes for some time, or if you are newly diagnosed, this section gives advice on how to eat healthily, manage the medication you may have to take and generally avoid the long term complications associated with having diabetes Your family and friends will also find this website useful, in particular the sections regarding hypoglycaemia (often referred to as 'hypo' or 'diabetic coma'), when your blood sugars may fall dangerously low and hyperglycaemia, when the opposite happens and your blood sugars rise too high. Having diabetes does not mean that you cannot live a normal life, but it does mean that you have to be more aware of your health now and how it will affect areas of your life such as working or travelling.
The impact of repeated health checks for adults with intellectual disabilities
- Authors:
- FELCE David, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 21(6), November 2008, pp.585-596.
- Publisher:
- Wiley
An earlier study found that a structured health check conducted in primary care identified clinically significant previously unrecognized morbidity among adults with intellectual disabilities. This study aimed to examine whether follow-up health checks would identify equally significant newly identified morbidity and to investigate this as a function of the interval between health checks. Adults with intellectual disabilities who had had an initial health check (n = 108) participated: group 1 (n = 39) had a repeat health check an average of 28 months later, group 2 (n = 36) had a repeat health check an average of 44 months later and group 3 (n = 33) did not have a subsequent health check. Thirty participants in group 1 had a second repeat health check an average of 14 months after the first repeat. An audit of the results of the health check established whether morbidity was newly identified. Information was collected on each participant's age, gender, place of residence, skills, challenging behaviour, social abilities, psychiatric status and perceived health. Comparisons within groups over time or between groups at a point in time were made using non-parametric statistics. A similar number of newly identified health problems were found at the repeat health check compared to the initial check. The nature of needs identified was also similar. There was no association between the number of new needs identified at the repeat health check and the interval between it and the initial check. The perceived health of participants receiving health checks tended to decline. As the level of new need revealed by repeated checks at even the shortest interval since the previous check studied here (mean = 14 months) was as high as that found by the initial check, annual health checking could be a justifiable intervention for this population. Decline in perceived health may represent more accurate assessment by carers following feedback from the health checks.
I feel good
- Authors:
- SPEAKUP SELF ADVOCACY, BUBBLE MEDIA, (Producers)
- Publisher:
- Speakup Self Advocacy
- Publication year:
- 2004
- Pagination:
- DVD
- Place of publication:
- Rotherham
Why should you exercise? Exercise can help keep the body working well. We all need to do exercise because it can help our bodies to work properly and to keep our heart healthy. The heart is like a pump and it pushes the blood around the body. Our heart is very important, a healthy heart can stop us getting ill. This film shows lots of ideas to get more exercise when at home or out and about.
Closing the gap: important recommendations for primary care practitioners
- Authors:
- DISABILITY RIGHTS COMMISSION, (Producer)
- Publisher:
- Disability Rights Commission
- Publication year:
- 2006
- Pagination:
- DVD
- Place of publication:
- London
From December 2006, the NHS – including Primary Care Trusts in England and Local Health Boards in Wales - will come under the Disability Equality Duty which places them under an obligation to ensure that their policies and practices do not discriminate, and do promote equal opportunities for disabled people. But a wide range of current practices, identified by the investigation, could clearly breach this duty. This DVD is for GPs and primary care staff on the investigation which highlights current experiences and gives practical advice on improving service provision.
Equal treatment: closing the gap: a formal investigation into physical health inequalities experienced by people with learning disabilities and/or mental health problems
- Author:
- DISABILITY RIGHTS COMMISISON
- Publisher:
- Disability Rights Commission
- Publication year:
- 2006
- Pagination:
- 122p., CD ROM
- Place of publication:
- London
This report probed the experience of people with mental health problems and/or learning disabilities of primary care services in England and Wales (1) after international research showed that these two groups were at higher risk of serious physical health problems. From December 2006, the NHS – including Primary Care Trusts in England and Local Health Boards in Wales - will come under the Disability Equality Duty which places them under an obligation to ensure that their policies and practices do not discriminate, and do promote equal opportunities for disabled people. But a wide range of current practices, identified by the investigation, could clearly breach this duty. The investigation provides important new evidence that people with learning disabilities and people with mental health problems are more likely to experience major illness, to develop serious health conditions at an earlier age and to die of them sooner than other people. Yet they are also less likely to receive some of the important evidence-based treatments and health checks than others with the same condition but without a mental health condition or learning disability. They also face real barriers to accessing services.
Equal treatment: closing the gap: information for primary care trusts, local authorities and strategic health authorities
- Author:
- DISABILITY RIGHTS COMMISSION
- Publisher:
- Disability Rights Commission
- Publication year:
- 2006
- Pagination:
- 5p.
- Place of publication:
- London
This report probed the experience of people with mental health problems and/or learning disabilities of primary care services in England and Wales (1) after international research showed that these two groups were at higher risk of serious physical health problems. From December 2006, the NHS – including Primary Care Trusts in England and Local Health Boards in Wales - will come under the Disability Equality Duty which places them under an obligation to ensure that their policies and practices do not discriminate, and do promote equal opportunities for disabled people. But a wide range of current practices, identified by the investigation, could clearly breach this duty. The investigation provides important new evidence that people with learning disabilities and people with mental health problems are more likely to experience major illness, to develop serious health conditions at an earlier age and to die of them sooner than other people. Yet they are also less likely to receive some of the important evidence-based treatments and health checks than others with the same condition but without a mental health condition or learning disability. They also face real barriers to accessing services.
Meeting the needs of children with disabilities: families and professionals facing the challenge together
- Author:
- WARNER Helen K.
- Publisher:
- Routledge
- Publication year:
- 2006
- Pagination:
- 166p.
- Place of publication:
- Abingdon
Children with disabilities have needs that reflect the needs of every child of their age or stage of development, but in addition they will have other needs that are unique and special to them. This text provides the reader with an insight into the needs of children with both physical and learning disabilities, particularly within an acute care setting.
Your health, your care, your say: research report
- Author:
- OPINION LEADER RESEARCH
- Publisher:
- Opinion Leader Research
- Publication year:
- 2006
- Pagination:
- 165p., tables
- Place of publication:
- London
Your health, your care, your say closed on 4 November 2005, and the White Paper will be published at the turn of the year. The consultation asked the public, patients, service users, and staff for their views on how to improve the services provided in the community by the NHS and social care. Your health, your care, your say involved the public and staff, including people like the homeless, people with learning difficulties and teenagers who are often not heard in consultation exercises. A number of deliberative, or 'listening', events took place as part of the consultation process. Between 50 and 100 people had the chance to give their views on what they wanted from services in their everyday lives.
Health in people with intellectual disabilities: current knowledge and gaps in knowledge
- Author:
- VAN VALK LANTMAN-DE SCCHROJENSTEIN Henny M.J.
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 18(4), December 2005, pp.325-333.
- Publisher:
- Wiley
Based on a review of the 2003 literature, this paper presents an overview of our knowledge on physical, mental and social well-being in people with intellectual disabilities. The results found that physical well-being is threatened by handicap-related conditions, syndrome-related health problems and lifestyle characteristics. Gaps in knowledge include insufficient evidence on health disparities, the lack of comparability of data on the prevalence of ill heath, lack of expertise in relation to communication problems and the fact that all knowledge is based on research in developed countries, while people with intellectual disabilities in developing countries face the same or even greater health problems. Recommendations concerning evidence, education and empowerment are formulated.