Search results for ‘Subject term:"learning disabilities"’ Sort:
Results 1 - 10 of 57
Reconciling value-directed and value-relative approaches to evaluation research: the case of the service packaging project
- Authors:
- RAMCHARAN Paul, GRANT Gordon, MCGRATH Morag
- Publisher:
- University of Wales. Centre for Social Policy Research and Development
- Publication year:
- 1990
- Pagination:
- 34p.,bibliog.
- Place of publication:
- Bangor
Paper explaining a research approach which looked at the outcomes of services provided to people with learning difficulties in Wales. Part of the All Wales Strategy.
Who does what?: the process of enabling people with learning difficulties to achieve what they need and want
- Author:
- DOWSON Steve
- Publisher:
- Values into Action
- Publication year:
- 1990
- Pagination:
- 24p., diags., bibliog.
- Place of publication:
- London
A framework for assessing what clients want, rather than what agencies perceive they need.
The important things in life
- Journal article citation:
- Viewpoint, 131, November/December 2012, pp.14-17.
- Publisher:
- Mencap/Gateway
Decisions made on behalf of people with a learning disability and their families are often made without any input from the people they affect the most. Mencap's 'Listen and Learn' consultation programme was developed to find what is important to people with learning disabilities. The consultation used surveys, focus groups and interviews with people with learning disabilities, their family members or carers, Mencap members of staff and leaders of local Mencap groups. The results of the consultation are briefly discussed under the following themes: early years and childhood; making decisions about where to live, jobs and money; support for the whole family; healthcare; participation; staying safe; and relationships. Mencap intend to use the results to inform its work and planning over the next five years. (Original abstract)
Life support: the difference between a daily existence and a fulfilling life
- Author:
- UNITED RESPONSE
- Publisher:
- United Response
- Publication year:
- 2012
- Pagination:
- 15p.
- Place of publication:
- London
The Campaigns Panel is an informal network of people with disabilities or mental health needs who are supported by United Response as well as their relatives. This report has been produced by members of the Campaign Panel who have a learning disability and support need, or are relatives to someone who has. The report explores what good support means to people with learning disabilities and why it is crucial that any reforms to social care lead to better quality support. The participants were asked about what support meant to them, what they liked to do in life, what their views were, and what their thoughts were on the future. The report is illustrated throughout with quotes and visual images.
What constitutes good quality end-of-life care? Perspectives of people with intellectual disabilities and their families
- Authors:
- CITHAMBARM Kumaresan, DUFFY Mel, COURTNEY Eileen
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 18(3), 2021, pp.207-216.
- Publisher:
- Wiley
Background: Due to increased life expectancy, just as with the general population, people with intellectual disabilities are experiencing, and dying from, chronic and life-limiting conditions. This has led to an increase in the need for end-of-life care for people with intellectual disabilities. However, there is limited evidence as to what constitutes good end-of-life care from the perspectives of people with intellectual disabilities and their family members. Methods: The study reported here aimed to find out the care needs of people with intellectual disabilities at the end of life in Ireland. A grounded theory approach was employed to explore the perspectives of the participants. After obtaining appropriate ethical approval, 19 semi-structured individual interviews were carried out with 11 people with mild and moderate intellectual disabilities and eight family members to collect data which was subsequently analyzed through constant comparative analysis. Results: The views of the participants suggested that providing personal care while vulnerable and dying, being with and communicating with the dying person, and meeting their spiritual needs, were considered as being essential at the end of life for people with intellectual disabilities. Conclusion: The findings from this study have shown that people with intellectual disabilities can engage with those around them and demonstrate how they would like to be cared for, and discuss what would be considered as being good care at the end of life. (Edited publisher abstract)
“I’d trust them if they understood learning disabilities” support needs of people with learning disabilities in the Criminal Justice System
- Authors:
- HOWARD Ruth, et al
- Journal article citation:
- Journal of Intellectual Disabilities and Offending Behaviour, 6(1), 2015, pp.1-4.
- Publisher:
- Emerald
Purpose: People with learning disabilities (LD) often lack necessary support in navigating and coping within the Criminal Justice System (CJS). The purpose of this paper is to explore their experiences, from their own perspective, and identify the supports which need to be implemented. Design/methodology/approach: Focus groups were held with nine patients in a forensic LD service, discussing their experiences and support needs within the CJS. Template analysis was undertaken on the transcripts. Findings: Four themes were identified: negative feelings, professional attitudes, suitability of the CJS, and supports needed. Practical implications: This research demonstrates the valuable opinions to be obtained from offenders with LD on their experiences and needs. Implications for the CJS include a need for further awareness, training, and expertise to work effectively with people with LD. Participant perspectives also highlight the importance of consistent liaison and diversion schemes, and indicate that CJS services may have something to learn from healthcare settings. Originality/value: Previous knowledge of offenders with LD overlooked the perspective of the service user. This research has given this group a voice, and has benefited from their insight. This is a timely piece of research in the current landscape of the CJS, and so these findings may be of practical value to the implementation of supports, particularly the liaison and diversion schemes. (Publisher abstract)
A comparison of carers needs for service users cared for both in and out of area
- Authors:
- EMERY Heidi, JONES Bridget, CHAPLIN Eddie
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 7(3), 2013, pp.143-151.
- Publisher:
- Emerald
This paper describes an ongoing process of engagement with carers of people with intellectual disabilities currently being monitored by an out of area service for both carers of people placed both in area and out of area within a local Mental Health Learning Disabilities team in South London. Using a series of consultation events, carers were asked to participate in a free dialogue which focussed on everyday issues for carers. This included financial implications of caring, knowledge of care pathways/systems in care, carer's needs and expectations and the support they currently receive. The issues and concerns that carers face in their daily lives when supporting one or more people are highlighted. These include lack of recognition, financial difficulties, lack of training and support. (Edited publisher abstract)
'It is time to stop talking and start doing': the views of people with learning disabilities on future research
- Authors:
- MARRIOTT Anna, WILLIAMS Val, TOWNSLEY Ruth
- Journal article citation:
- Mental Health and Learning Disabilities Research and Practice, 7(2), Autumn 2010, pp.132-147.
- Publisher:
- South West Yorkshire Mental Health NHS Trust and University of Huddersfield
A scoping exercise to determine the research priorities for the field of learning disabilities for the next 10 years is described. Specific focus of this paper is on the role of people with learning disabilities in setting this research agenda. A detailed description of the methodology used is given. The first stage included a series of regional workshops involving people with learning disabilities, held in Bristol, Birmingham, Leeds and London which aimed to identify the main issues and problems in the lives of people with learning disabilities. Data from these identified six priority themes: access to health care; getting good support; the right to relationships; housing options; work and personal finance; and inclusion in the community. The literature was then reviewed for published research in these areas and then further workshops were held in all four geographical areas to identify research gaps. A focus group was then held with nine researchers in the field. A summary of the findings in the six priority areas is presented. It is commented that the findings show that it is possible to involve people with learning disabilities in setting a research agenda. Their inclusion provided a perspective that could not be adequately represented by other stakeholder groups. People with learning disabilities were concerned that research has a meaningful impact and can lead to demonstrable improvements in care. In order for this to happen there is a need for widespread dissemination of accessible outputs that reach the relevant stakeholders.
Concepts of access for people with learning difficulties: towards a shared understanding
- Authors:
- NIND Melanie, SEALE Jane
- Journal article citation:
- Disability and Society, 24(3), May 2009, pp.273-287.
- Publisher:
- Taylor and Francis
This article explores both the process and outcomes of a seminar series on the concept of access for people with learning difficulties. The seminar topics chosen to foster dialogue across professional and disciplinary boundaries included access to information, education, employment, the law, health, leisure, community, past histories and future plans. The seminars brought together people with learning difficulties and their support workers, researchers and professionals, to examine the expert knowledge of people with learning difficulties in negotiating access, the role of practitioners in mediating access and the contribution of research to understanding access. The aim was to develop a rich, shared understanding of the concept of access for people with learning difficulties. However, a huge amount of 'access work' had to be done to achieve this. The article discusses that access work and proposes a multidimensional model of access and ways of promoting it.
Enabling adults with learning disabilties to articulate their housing need
- Authors:
- McGLAUGHLIN Alex, GORFIN Laura, SAUL Claire
- Journal article citation:
- British Journal of Social Work, 34(5), July 2004, pp.709-726.
- Publisher:
- Oxford University Press
This study is about involving adults with learning disabilities in service planning by asking them to articulate their own needs in relation to housing. It also identifies some of the barriers to meeting the housing needs of this group. The views expressed indicate that ordinary housing with small numbers is the preference, and that appropriate support is highly valued. This suggests a need for housing of a supported living model or similar. The service users in this study were clearly able to verbalize their preferences as well as to think through potential options. However, there is also clear evidence that they feel powerless in making choices, with decisions being taken on their behalf by professionals and carers. This demonstrates the need for a cultural shift whereby the voices of adults with learning disabilities are heard and acted upon.