Search results for ‘Subject term:"learning disabilities"’ Sort:
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The important things in life
- Journal article citation:
- Viewpoint, 131, November/December 2012, pp.14-17.
- Publisher:
- Mencap/Gateway
Decisions made on behalf of people with a learning disability and their families are often made without any input from the people they affect the most. Mencap's 'Listen and Learn' consultation programme was developed to find what is important to people with learning disabilities. The consultation used surveys, focus groups and interviews with people with learning disabilities, their family members or carers, Mencap members of staff and leaders of local Mencap groups. The results of the consultation are briefly discussed under the following themes: early years and childhood; making decisions about where to live, jobs and money; support for the whole family; healthcare; participation; staying safe; and relationships. Mencap intend to use the results to inform its work and planning over the next five years. (Original abstract)
A radical new strategy for the 21st century
- Author:
- HOLMAN Andrew
- Journal article citation:
- Community Living, 14(4), April 2001, p.i.
- Publisher:
- Hexagon Publishing
For the first time, people with learning difficulties have had their views taken into account in government policy. Considers some of the issues the White Paper Valuing People addresses and concludes that we still have some way to go before people can play a full in society.
A comparison of carers needs for service users cared for both in and out of area
- Authors:
- EMERY Heidi, JONES Bridget, CHAPLIN Eddie
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 7(3), 2013, pp.143-151.
- Publisher:
- Emerald
This paper describes an ongoing process of engagement with carers of people with intellectual disabilities currently being monitored by an out of area service for both carers of people placed both in area and out of area within a local Mental Health Learning Disabilities team in South London. Using a series of consultation events, carers were asked to participate in a free dialogue which focussed on everyday issues for carers. This included financial implications of caring, knowledge of care pathways/systems in care, carer's needs and expectations and the support they currently receive. The issues and concerns that carers face in their daily lives when supporting one or more people are highlighted. These include lack of recognition, financial difficulties, lack of training and support. (Edited publisher abstract)
Beyond the 'tick box'
- Authors:
- HERSOV Eve Kuhr, MAGUIRE Sarah
- Journal article citation:
- Learning Disability Today, 13(3), May/June 2013, pp.16-17.
- Publisher:
- Pavilion
- Place of publication:
- Hove
Choice Support, a charity providing support services to people with learning disabilities, mental health needs, physical disabilities, and homeless people, worked with independent consultants to improve the quality of its annual user surveys. The survey now includes: a paper-based questionnaire; regional meetings and forum discussions; meeting with people in their own homes. Consultation also includes telephone interviews, email, surveys and face-to-face meetings with families of people receiving support. The results from the survey are used to create a framework for planning which are relevant to the lives and priorities of people receiving support. The article explores the themes identified in the first survey and how this shaped the themes developed in the second year. (Original abstract)
Challenging behaviour: service user consultation
- Authors:
- FELLOWS Jodie Louise, JONES Lizanne
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 5(3), 2011, pp.30-37.
- Publisher:
- Emerald
Worcestershire Mental Health Partnership NHS Trust consulted service users to assist the development of the Challenging Behaviour Strategy for adults with intellectual disabilities. This article describes how service users were consulted to obtain their views, learn from their experiences of service responses to challenging behaviour, and investigate what service users view as helpful and unhelpful in supporting people with challenging behaviour. 3 service users, all members of the local self advocacy group, took part in a focus group lasting 90 minutes where opinions were sought on the draft Challenging Behaviour Strategy. The article describes the approach used for developing and running the focus group and its results, covering responses to the key themes on the strategy, additional recommendations, helpful service responses and things that were seen as unhelpful. The service users wanted a flexible and inclusive service with well-trained staff who understand the reasons for individuals' distress and how best to help with the resulting behaviours. The authors note that service users with behaviour described as challenging are able to reflect on the service they receive and provide helpful feedback and suggestions for improvement.
Carer satisfaction with telephone consultations in a community intellectual disability unit
- Authors:
- BAINS Harinder, BONELL Enrique, SPEIGHT Peter
- Journal article citation:
- Journal of Intellectual Disabilities, 14(4), December 2010, pp.259-265.
- Publisher:
- Sage
- Place of publication:
- London
Telephone consultations have been shown to reduce the number of surgery contacts and out-of-hours visits. However, previous studies in general practice settings have shown patient dissatisfaction with a model based on telephone consultations. This paper reports on a survey of carer satisfaction with telephone consultations with doctors in a community service in Lincolnshire, England, for people with learning disabilities. Eleven participants returned a 10-item carer satisfaction questionnaire following telephone consultations over a 4 week period with questions about suitability, effectiveness, efficiency and appropriateness of telephone consultations. Findings indicated a high level of satisfaction with accessibility, effectiveness and suitability. Also, telephone consultations were an efficient use of time. However more than one-third of carers said they would have preferred a face-to-face consultation with the doctor. The paper concludes that, although routine practice in psychiatry, telephone consultations need further research to establish them as an alternative to face-to-face consultations.
A guide to short breaks: supporting family carers and people with learning disabilities to have short breaks that work for them
- Authors:
- FITZPATRICK Julia, WOOD Alicia
- Publisher:
- Paradigm
- Publication year:
- 2007
- Pagination:
- 30p.
- Place of publication:
- Birkenhead
This is a guide written by Paradigm on behalf of the Valuing People Support Team, aimed at family carers and people with learning disabilities. There are sections on: the importance of breaks; what is a short break?; short breaks - a recipe for success; the short breaks menu; essential ingredients; and sharing information and best practice.
Too many pages: SCOVO's guide to involving services to make services better
- Authors:
- STRONG Gwynneth, HEDGES Yvonne
- Publisher:
- Standing Conference of Voluntary Organisation for People with a Learning Disabil
- Publication year:
- 2000
- Pagination:
- 34p.
- Place of publication:
- Cardiff
Examines how voluntary organisations for people with learning disabilities can involve their service users. Sees user involvement as comprising four stages: information, consultation, participation, and sharing power and control.
Ask the users
- Authors:
- CURRY Paul, CUPPLES Joan
- Journal article citation:
- Community Living, 15(1), 2001, pp.18-20.
- Publisher:
- Hexagon Publishing
Reports on an action research project involving day service users in Luton which showed the way for future vocational development.
Stopping over-medication of people with a learning disability, autism or both (STOMP): a family carer perspective
- Author:
- CHALLENGING BEHAVIOUR FOUNDATION
- Publisher:
- Challenging Behaviour Foundation
- Publication year:
- 2016
- Pagination:
- 22
- Place of publication:
- Chatham
Reports on the results of a consultation of over 100 family carers on their experience of the prescription of medication for a relative with learning disability or autism for challenging behaviour. The consultation also aimed to identify what information and support family carers currently have access to when medication is suggested or prescribed for their relative. Issues discussed include: prescribing rationale, decision making process, impact of medication, and alternatives to medication. The research found that many family carers welcomed national work to stop the over medication of people with learning disabilities and autism, but expressed frustration at how long change is taking. Many family carers were anxious that their loved ones had been medicated inappropriately and had a range of debilitating side-effects. There was also evidence of a lack of information and advice for family carers regarding medication decisions. The report makes recommendations to reduce the use of antipsychotic and antidepressant medication, some of which are to be taken forward by the Stopping the Over Medication of People with a Learning Disability, Autism or Both (STOMP) NHS campaign to consider. (Edited publisher abstract)