Search results for ‘Subject term:"learning disabilities"’ Sort:
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Talking together: views of people with learning disabilities and their carers on future services
- Author:
- BRIDGES
- Publisher:
- Bridges
- Publication year:
- 1992
- Pagination:
- 48p.
- Place of publication:
- Ross-on-Wye
Report from a series of workshops. Outlines the background to the workshops and their content.
The review of the all Wales strategy: a view from the carers; a report on a postal survey of 650 parents and other family carers
- Author:
- GREAT BRITAIN. Welsh Office
- Publisher:
- Great Britain. Welsh Office
- Publication year:
- 1991
- Pagination:
- 73p.,tables.
- Place of publication:
- Cardiff
The important things in life
- Journal article citation:
- Viewpoint, 131, November/December 2012, pp.14-17.
- Publisher:
- Mencap/Gateway
Decisions made on behalf of people with a learning disability and their families are often made without any input from the people they affect the most. Mencap's 'Listen and Learn' consultation programme was developed to find what is important to people with learning disabilities. The consultation used surveys, focus groups and interviews with people with learning disabilities, their family members or carers, Mencap members of staff and leaders of local Mencap groups. The results of the consultation are briefly discussed under the following themes: early years and childhood; making decisions about where to live, jobs and money; support for the whole family; healthcare; participation; staying safe; and relationships. Mencap intend to use the results to inform its work and planning over the next five years. (Original abstract)
Turn your life around: person centred planning and families
- Authors:
- GREAT BRITAIN. Department of Health. Valuing People Support Team, (Producer)
- Publisher:
- Great Britain. Department of Health. Valuing People Support Team
- Publication year:
- 2010
- Pagination:
- DVD
- Place of publication:
- London
A short film aimed at carers which presents the story of two families and their experiences of person centred planning. The DVD also contains background information about person centred planning and contacts for further information.
Mainstream in-patient mental health care for people with intellectual disabilities: service user, carer and provider experiences
- Authors:
- DONNER Ben, MUTTER Robin, SCIOR Katrina
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 23(3), May 2010, pp.214-225.
- Publisher:
- Wiley
Government guidelines promote the use of mainstream mental health services for people with intellectual disabilities whenever possible. This study aimed to explore how people with intellectual disabilities fare in such services, by examining how service users with intellectual disabilities, their carers and service providers perceive mainstream in-patient mental health services, and to what extent their accounts are in line with key policy objectives. Face-to-face interviews with 9 service users, 9 carers and 4 community nurses were completed and analysed on a case by case basis using interpretative phenomenological analysis. The results were followed up in focus groups with service providers. The positive aspects of admission included the provision of respite, particularly for carers, and good basic care. These were outweighed by a perception of the admission as disempowering and lacking in flexible treatment provision. Accessing help emerged as a major problem, as well as the prospect of staff neglecting the specific needs of people with intellectual disabilities. The article concludes that, while there were some indications of improvements in line with recent policies and guidance, mainstream services seem a long way off realising aims of easy accessibility, person-centred practices and active partnership with intellectual disability services.
A yes man no more
- Author:
- WEBSTER Keith
- Journal article citation:
- Learning Disability Today, July 2008, pp.32-34.
- Publisher:
- Pavilion
- Place of publication:
- Hove
The author, a man with learning disabilities, explains how he received an individual budget through an In Control voluntary pilot scheme, and the difference it has made to his life. Virginia, Keith’s mother, also gives her views of how individual budgets has helped her son.
The knowledge people with learning disabilities and their carers have about psychotropic medication
- Authors:
- HESLOP Pauline, FOLKES Liz, RODGERS Jackie
- Journal article citation:
- Tizard Learning Disability Review, 10(4), October 2005, pp.10-18.
- Publisher:
- Emerald
Psychotropic medications are a treatment commonly used for people with learning disabilities. Legislation and guidance suggest that, for a person to give informed consent to treatment, they must have knowledge of the potential treatment. This study of 21 people with learning disabilities, and their carers and prescribers, living in four different regions of England, suggests that few of the people with learning disabilities were fully informed about their treatment. Many of their carers said that although they know how to administer the medication, they know little about why the person was taking it and what the implications might be. Despite this, people with learning disabilities made the general assumption that carers would, or should, know everything about their medication. The current provision of information to people with learning disabilities and carers was found to be poor. For key strategies identified in supporting people with learning disabilities in obtaining information about medication were spending more time providing and reiterating key information, providing accurate, up-to-date, accessible information about medication, providing training for carers in wider aspects of medication usage, and tailoring information to each person's individual needs.
Planning for the future with adults with a learning disability living with older carers
- Authors:
- GORFIN Laura, McGLAUGHLIN Alex
- Journal article citation:
- Housing Care and Support, 7(3), September 2004, pp.20-24.
- Publisher:
- Emerald
Planning for the future for adults with a learning disability who live with older carers is an important aspect of the white paper Valuing People. Most research about future planning has tended to focus on the perspective of the family carer rather than the service user. This paper considers the findings of a project which directly sought the views of adults with a learning disability, including their experiences of living with their older carers and planning for future housing and support. Demonstrates that adults with a learning disability are very aware of the likelihood of an end to family care and have preferences about their future housing and support. However, planning for the future can be difficult because of the mutually supportive relationships that often exist in these families.
Sexuality as a perceived hazard in the lives of adults with learning difficulties
- Authors:
- HEYMAN Bob, HUCKLE Sarah
- Journal article citation:
- Disability and Society, 10(2), 1995, pp.139-155.
- Publisher:
- Taylor and Francis
Qualitative research by the present authors has suggested that the management of hazards is a central issue for adults with learning difficulties (adults) and informal carers. This paper focuses on adult sexual relationships as a perceived hazard. Informal carers viewed such relationships as unacceptably dangerous. Those from 'danger avoiding' families, who had low risk tolerance, prohibited situations which might lead to a sexual relationship, e.g. privacy with a boy or girlfriend. Informal carers from 'limited risk taking' families gave adults more scope, e.g. to move freely round the locality, and were anxious that the adult, unsupervised, might become involved in a sexual relationship which he or she could not manage. Adult views about their own sexual relationships are analysed in these social contexts, and the implications for professional practice aimed at enhancing adult autonomy are briefly considered..
The right to know: informing people with learning difficulties-some issues and possibilities
- Author:
- MOFFATT Virginia
- Publisher:
- Southwark Inform
- Publication year:
- 1993
- Pagination:
- 18p.
- Place of publication:
- London
Report arising out of wide consultation in the borough of Southwark with service users, carers and service providers. Outlines issues for consideration in providing information for people with learning difficulties, the major information needs of service users and identifies some possible methods of improving accessibility.