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Growing health disparities for persons who are aging with intellectual and developmental disabilities: the social work linchpin
- Authors:
- ROBINSON Laura M., et al
- Journal article citation:
- Journal of Gerontological Social Work, 55(2), February 2012, pp.175-190.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Like the wider population, adults with intellectual and developmental disabilities (IDD) are living longer; into their 70s and beyond. Health care disparities have been well-documented for this vulnerable and underserved population. The authors’ aim in this discussion was to draw attention to the limited presence of social workers in the IDD field, the lack of educational opportunities to support current and future social workers in this field and the impact of these trends on the health disparities experienced by people ageing with IDD. Social workers are often responsible for assessment, coordination of care, and negotiation of necessary and appropriate services for people with IDD. The authors explore the challenges facing social workers in meeting the growing health and social needs of aging adults with IDD and their families.
Choice of where and how you live: how families can create new solutions to a familiar problem
- Author:
- KING Nigel
- Journal article citation:
- Housing Care and Support, 6(1), February 2003, pp.27-32.
- Publisher:
- Emerald
Describes how carers, families and social workers can find out more about the various housing and support options for people with learning difficulties. It explains the choices, how to go about getting housing and the support people can expect to find.
Fathers with learning disabilities and their experiences of adult social care services
- Authors:
- UNIVERSITY OF BRISTOL. School for Policy Studies, NATIONAL INSTITUTE FOR HEALTH RESEARCH. School for Social Care Research
- Publisher:
- NIHR School for Social Care Research
- Publication year:
- 2017
- Pagination:
- 6
- Place of publication:
- London
The summary findings of a study which interviewed eight fathers with learning disabilities to better understand their experiences of being fathers and of accessing adult social care services. The study also interviewed nine practitioners in adult learning disability services to understand some of the practice issues about working with fathers with learning disabilities. Being a father was seen to be important to all fathers in the study and they had a strong desire to prove people wrong about their perceived abilities as men and as fathers. Fathers spoke about the stresses of being a parent, which sometimes had a direct impact on their mental health. They also felt that they were left out of support provided to mothers. The results of interviews with practitioners also recognised that fathers were not routinely engaged by services. Most practitioners also saw their main role as supporting the adult, but not in their parenting role, which was seen as the responsibility of children’s services. The study highlights the importance of including fathers in family-focused social care practice and the need to coordinate support for these fathers across adults’ and children’s services. (Edited publisher abstract)
Information needs of parents about learning disabilities
- Author:
- McCONKEY Roy
- Journal article citation:
- Journal of Learning Disabilities, 7(3), September 2003, pp.211-219.
- Publisher:
- Sage
A survey of over 400 parents and carers of children and adults with severe learning disabilities was undertaken in N. Ireland. The aim was to identify the persons approached by the parents, the information required and the means used. The data are relevant to the setting up of national information centres as proposed by the government. The most common informants were social workers, staff in schools and centres, and GPs, but little use was made of voluntary services. A similar pattern was found regarding future informants. The most common topics were available services, leisure and holidays, and benefits. Parents of children under 10 were more likely to want information on education and therapies. The preferred means of getting information was through face-to-face contacts in the home.
Tackling violence against disabled women and girls: a toolkit for social care, housing, mental health and safeguarding services 2019
- Authors:
- BALDERSTON Susie, et al
- Publisher:
- Disability Rights UK
- Publication year:
- 2019
- Pagination:
- 105
- Place of publication:
- London
This toolkit aims to help social workers, mental health and housing professionals to make their services more accessible and relevant for disabled/Deaf women and girls who have experienced violence or abuse. It is based on the findings of use-led research led by Vision Sense and co-produced with Against Violence and Abuse (AVA) and the Centre for Disability Research (CeDR) at Lancaster University. The report provides the results of a literature review on longer term interventions; a review of learning from Safeguarding Adults Reviews (SARs), Domestic Homicide Reviews and Preventable Death Reports to identify learning from service providers; and the results of interviews with disabled/Deaf women and girls who has experienced violence on what they want from services to help them stay safe in the medium and longer term. The research identified severe barriers to equality of outcome for disabled or Deaf women who are survivors of violence, particularly at the intersection of gender, disability, ethnicity, poverty and multiple disadvantage. It concludes that the co-production of solutions with disabled survivors who have a lived experience of violence can help to achieve quality of outcome and improve life chances. The research also found that much regulation in safeguarding, inspection, commissioning and for-profit or charity provision is failing disabled people. The report includes checklists and recommendations for all services and specific recommendations for individual services, including Safeguarding Board; health and social care services; and housing services. The project was funded by Big Lottery Fund through DRILL (Disability Research on Independent Living and Learning) Fast Track. (Edited publisher abstract)