Search results for ‘Subject term:"learning disabilities"’ Sort:
Results 1 - 7 of 7
Distress in children with learning disabilities at a respite unit: perspectives on their experiences
- Authors:
- RADCLIFFE Jonathan J. L., TURK Vicky
- Journal article citation:
- British Journal of Learning Disabilities, 36(2), June 2008, pp.91-101.
- Publisher:
- Wiley
Numerous studies have investigated the benefits of respite to families with a disabled child. Far fewer have examined the effects on the child and none have systematically compared information about this from different sources. Reports of behavioural reactions and views on distress of children attending respite care in London were gathered from parents, teachers and respite staff. Children were also asked for their views. Over half the children (54%) were reported to show medium or strong negative reactions lasting for 1 or more days by a parent or teacher. Reported reactions varied widely between home and school and no concordance was found between parents, teachers and respite staff groups regarding distress. Some children’s views differed from those of their parent or teacher. The findings highlight the extent of differences in perspectives and suggest the need for greater awareness of the possible distress to children attending respite. This is discussed in relation to factors such as the potential conflict of interests between parents and children, communication and behavioural difficulties, and the context in which the child is observed.
Respite care as a community care service: factors associated with the effects on family carers of adults with intellectual disability in Taiwan
- Authors:
- CHOU Yueh-Ching, et al
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 33(1), March 2008, pp.12-21.
- Publisher:
- Taylor and Francis
This study examines the effects and associated factors of respite care, which was legislated as a community service for adults with an intellectual disability (ID) in Taiwan in 1997. A total of 116 family carers who live with an adult with ID and have utilised the respite care program were surveyed using standardised measures. The results suggest that the most notable effects of respite care include improvement in the carers' social support and life satisfaction, and relief of psychological stress and overall burden of care. The factors associated with these effects include the way the participants have used the respite care and the users' individual characteristics. How families used the respite care, whether the carers practised a religion, and where the families resided, were the most significant factors in determining the effectiveness of the respite. Suggestions are made for making access to information about the program more widely available, and for extending the availability and duration of the service.
Barriers to non-residential respite care for adults with moderate to complex needs: a UK perspective
- Author:
- SOUTHBY Kris
- Journal article citation:
- Journal of Intellectual Disabilities, 21(4), 2017, pp.366-386.
- Publisher:
- Sage
- Place of publication:
- London
Respite aims to alleviate the stress and burden of caring for someone with an intellectual disability and/or autism. Respite can take place in a number of different ways, but most commonly occurs in a residential setting. Based on survey and interview data with carers (CAs), service users and stakeholders (STs) in a northern city in England, this article explores some of the perceived or actual barriers to availing ‘non-residential’ respite. A number of barriers to non-residential respite are identified. Residential respite appears to be the default conceptualisation of ‘respite’ for carers, service users and stakeholders. Persuading carers, service users and stakeholders to give up the familiarity and safety of residential respite in favour of a non-residential alternative will be challenging unless those involved are more informed. Limitations and directions for future research are suggested. (Publisher abstract)
Overwhelmed
- Author:
- LEASON Katie
- Journal article citation:
- Community Care, 01.12.05, 2005, pp.30-31.
- Publisher:
- Reed Business Information
Intensive caring can eventually lead some parents to harbour murderous thoughts about their own children. The author looks at the problems that can arise and how respite care can help.
The effect of a family support scheme on maternal mental health of mothers caring for children with mental handicaps
- Author:
- BOSE Ruchira
- Journal article citation:
- Research Policy and Planning, 9(1), 1991, pp.2-8.
- Publisher:
- Social Services Research Group
Reports on a evaluation of the Canterbury and Thanet Link Family Scheme which provides respite care by volunteer families.
Does respite care reduce parental stress in families with developmentally disabled children
- Authors:
- CHAN Jeffrey B., SIGAFOOS Jeff
- Journal article citation:
- Child and Youth Care Forum, 30(5), October 2001, pp.253-263.
- Publisher:
- Springer
Reviews studies that have evaluated the effects of respite care services used by families who have children with developmental disabilities, with an emphasis on parental stress. The results of this review suggest that, at least in the short-term, respite care is associated with significant reductions in parental stress for the majority of parents who use it. However, the number of stories on this issue was relatively small and many studies have significant limitations.
Influence of gender, parental health, and perceived expertise of assistance upon stress, anxiety, and depression among parents of children with autism
- Authors:
- SHARPLEY Christopher, BITSIKA Vicki, EFREMIDIS Bill
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 22(1), March 1997, pp.19-28.
- Publisher:
- Taylor and Francis
A survey of Australian parents of children with autism was administered on a confidential and anonymous basis to find out influences on their levels of stress, anxiety and depression. Independent variables were: gender of parents, age of child and age of onset, parental health, access to other family members, and level of understanding of those family members of the child's problems. Data indicated that, although social support has previously been posited as an alleviating factor for parental stress, this may be a result of the perceived expertise of the family member who provides respite care for the parents. Issues of self-efficacy, training in behaviour management, and provision of home-based care for parents are discussed.