Search results for ‘Subject term:"learning disabilities"’ Sort:
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Deconstructing the co-production ideal: dilemmas of knowledge and representation in a co-design project with people with intellectual disabilities
- Authors:
- CHINN Deborah, PELLETIER Caroline
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 45(4), 2020, pp.326-336.
- Publisher:
- Taylor and Francis
Background: The co-production concept holds out the promise of forging new relationships between professionals and service users with intellectual disabilities. However, little empirical research explores the embodied practices of these projects occasion. We identify two key tensions intrinsic to such projects; the tension between expert/professional knowledge and lay/experiential knowledge, and between co-producers as different from or typical of the public they are representing. Methods: We explored how these tensions were manifested and responded to in ongoing interactions by analysing video recordings of co-design groups where people with intellectual disabilities engaged in the production of Easy Read materials. Results: We noticed the instability of participants’ claims to expert/professional knowledge and the challenges of attending to and mobilising participants’ experiential knowledge within the constraints of the group task. Conclusions: Interactional dynamics were managed to preserve consensus and homogeneity within the groups, with the potential for reinforcing a limited identity associated with “intellectual disability.” (Edited publisher abstract)
Participatory research, people with intellectual disabilities and ethical approval: making reasonable adjustments to enable participation
- Authors:
- NORTHWAY Ruth, HOWARTH Joyce
- Journal article citation:
- Journal of Clinical Nursing, 24(3-4), 2015, pp.573-581.
- Publisher:
- John Wiley and Sons
Aims and objectives: The aim of this paper is to explore how making reasonable adjustments to the process of securing ethical approval for research can facilitate the meaningful involvement of people with intellectual disabilities as members of a research team. This is achieved through critical reflection upon the approach taken within one participatory research study whose objective was to explore how people with intellectual disabilities understand abuse. Background: Internationally participatory research studies (in which active involvement of community members in all stages of the research process is sought) are becoming increasingly common in the context of health care and, more specifically, within research involving people with intellectual disabilities. However, whilst it is acknowledged that participatory research gives rise to specific ethical challenges, how (or if) involvement in securing ethical approval is facilitated, is not discussed in most research reports. The significance of this paper is that it seeks to address this gap by exploring how meaningful participation can be promoted by making reasonable adjustments. Methods: Within the study, the research team worked in collaboration with the ethics committee to identify potential barriers that could prevent the participation of members of the research team who had intellectual disabilities. Reasonable adjustments (such as redesigning forms) were made to the processes involved in securing ethical approval. Conclusions: This study demonstrated that it is possible to ensure that ethical standards are upheld and the requirements of ethics committees met whilst also facilitating the meaningful involvement of people with intellectual disabilities. Relevance to clinical practice: The reasonable adjustments approach explored within this paper can be translated into the context of clinical practice: making changes to the way that services are delivered can promote greater involvement of people with intellectual disabilities in their own health care. (Publisher abstract)
Social work with marginalised people who have a mild or borderline intellectual disability: practicing gentleness and encouraging hope
- Authors:
- ELLEM Kathy, et al
- Journal article citation:
- Australian Social Work, 66(1), 2013, pp.56-71.
- Publisher:
- Taylor and Francis
People with mild or borderline intellectual disabilities are a group of people who usually do not meet the eligibility criteria for specialist disability services. They may traverse many services, often entering, exiting, and returning to the same service providers with few positive results. This article explores the practice approach of the Meryton Association, a medium-sized non-government agency located in Brisbane, Australia. The Association provides social work support to people with mild to borderline intellectual disabilities, actively assisting this group to build relationships, resources, knowledge, and autonomy in their everyday lives. Using qualitative in-depth interviews with 11 Meryton Association staff and analysis of Meryton Association policy and practice documents, the challenges and opportunities of using this practice approach are documented. The authors propose that specialist services are needed that use a developmental approach, stress the importance of relationship, and the need to practice gentleness and hope in social worker-client interaction.
Views and experiences of people with learning disability in relation to policing arrangements in Northern Ireland
- Author:
- SOCIAL MARKET RESEARCH
- Publisher:
- Police Ombudsman for Northern Ireland; Northern Ireland Policing Board
- Publication year:
- 2011
- Pagination:
- 251p.
- Place of publication:
- Belfast
The report is the outcome of a major research project co-funded by the Police Ombudsman’s Office and the Policing Board into the issues faced by people with learning disabilities when dealing with the police and policing organisations. Almost 300 people with learning disabilities, along with key workers and organisations in the learning disability sector, and representatives of the police, policing organisations and criminal justice bodies were consulted during the project. The study found that people with learning disabilities had largely positive views and experiences of the police. But it also found that many instances of bullying and harassment of people with learning disabilities were likely to go unreported because the victims did not realise that they had been a victim of crime, or were unwilling to report it. The report makes a total of 24 recommendations to help ensure that the police and policing organisations respond appropriately to the needs of people with learning disabilities, and also to help combat disability hate crime.
Examining pre-retirement and related services offered to service-users with an intellectual disability in Ireland
- Authors:
- LAWRENCE Stephanie, ROUSH S.E.
- Journal article citation:
- Journal of Intellectual Disabilities, 12(3), September 2008, pp.239-252.
- Publisher:
- Sage
- Place of publication:
- London
The purpose of this study was to describe the pre-retirement and related services offered to service-users with intellectual disability in Ireland. Increasing numbers of service-users with an intellectual disability are living into older adulthood, creating important challenges for services providers. The National Intellectual Disability Database 2007 (NIDD) suggests that the population of service-users with an intellectual disability in the Republic of Ireland is an ageing population. Significant ongoing demands for new retirement-related intellectual disability services and enhancement of existing services are indicated. It is unknown how to support the development of a retirement policy to meet this growing need. The findings of this survey study indicate that there is, in general, recognition among Ireland's service providers of the need for retirement options for this population, although little attention has been directed towards formalizing these services through policy-making. There are few retirement policies in place, limiting the implementation of comprehensive services to meet the changing needs of ageing adults with an intellectual disability.
Having a voice: involving people with learning difficulties in research
- Authors:
- MINKES John, et al
- Journal article citation:
- British Journal of Learning Disabilities, 23(3), 1995, pp.94-97.
- Publisher:
- Wiley
Advocates involving people with learning difficulties at every stage of the research process. Describes several pieces of work, carried out by or with the support of staff at Norah Fry, which illustrate the Centre's attempts to put this principle into practice. It is argued that the end result is better research, which is of more direct benefit to people with learning difficulties.
"I carry her in my heart": an exploration of the experience of bereavement for people with learning disability
- Authors:
- THORP Nicki, STEDMON Jacqui, LLOYD Helen
- Journal article citation:
- British Journal of Learning Disabilities, 46(1), 2018, pp.45-53.
- Publisher:
- Wiley
Background: Bereavement is a universal experience, yet little research has explored the lived experience of bereavement for people with learning disability (PWLD). Materials and methods: Four PWLD were interviewed about their experience of bereavement. Data were analysed using interpretative phenomenological analysis. Results: Four themes were identified: "Needing to know: Being included," "Struggling to say: The emotional experience," "Love after death: A continuing relationship" and "Missing their presence: The wider impact of death." Conclusions: PWLD should have the opportunity to make informed choices about their level of involvement and to develop their emotional experience. PWLD should be supported to develop a continued bond with the deceased and the wider impact of their loss recognised. (Publisher abstract)
Coping with stress: the experiences of service-users with intellectual disabilities in forensic services
- Authors:
- BURNS John, LAMPRAKI Alexandra
- Journal article citation:
- Journal of Intellectual Disabilities and Offending Behaviour, 7(2), 2016, pp.75-83.
- Publisher:
- Emerald
Purpose: It is now widely acknowledged that stress negatively impacts holistic and well-being and has been identified as a major global concern. The purpose of this paper is to report on a qualitative research study which sought to explore the experiences of stress and the use of coping strategies from the perspective of people with intellectual disabilities (ID) currently residing within the forensic in-patient services of one National Health Service Trust. Design/methodology/approach: Data were gathered via focus group discussions involving 20 service-users with an ID. The data were subject to thematic analysis. Findings: Data analysis produced three key themes: experiencing stress; sources of stress and coping with stress. Practical implications: The findings of the research study have implications for practice. These include the need to utilise appropriate stress assessment measures and implement effective stress reduction and management programmes to address the holistic needs of people with ID, to ensure forensic services are truly high quality, person-centred and recovery focused. Originality/value: Whilst stress experienced by people with ID residing in community settings has been explored, no studies have focused on how stress is experienced by people with ID residing in forensic services. This paper seeks to address this gap in the literature. (Publisher abstract)
The use of photovoice with people with intellectual disabilities: reflections, challenges and opportunities
- Authors:
- POVEE Kate, BISHOP Brian J., ROBERTS Lynne D.
- Journal article citation:
- Disability and Society, 29(6), 2014, pp.893-907.
- Publisher:
- Taylor and Francis
Photovoice is part of the growing use of participatory research approaches with people with intellectual disabilities. In this paper we explore the process, opportunities and challenges associated with the use of photovoice with people with intellectual disabilities, illustrated through a research project entitled ‘This Is Me’. Photovoice requires researchers to share power and control in the research process and to tolerate uncertainty. Large investments in time and money are also required. These challenges, however, are outweighed by the benefits of the use of photovoice with people with intellectual disabilities. Photovoice creates a space where people with intellectual disabilities can meaningfully participate and exert control in the research process, and as such is an empowering experience. As a participatory research approach, photovoice is accessible and offers the opportunity for people with intellectual disabilities to develop new skills, confidence and experience inclusiveness in their own terms. (Publisher abstract)
Involving people with intellectual disabilities within research teams: lessons learned from an Irish experience
- Authors:
- IRIARTE Edurne Garcia, O'BRIEN Patricia
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 11(2), 2014, pp.149-157.
- Publisher:
- Wiley
A growing body of literature has shed light into the process of conducting research with people with intellectual disabilities (ID). However, there is limited research on the feasibility of conducting research projects including various groups of people with ID, their supporters, and researchers. This paper reviews three studies conducted with these three groups of people in light of their feasibility, the knowledge generated, and their impact on individual and social change. This study used a reflective analysis focused on the main findings from the three studies, focus groups with people with ID and supporters who conducted the research, and interviews with people to whom the findings were disseminated. The analysis suggested that a team approach including active supporters and experienced researchers was critical to their feasibility. The studies generated knowledge particularly on the perspectives of people with ID on their rights. As a result of participation in these studies, some changes at the individual and social levels occurred, but these were relatively limited. The implications of this analysis for future research are discussed in the context of the implementation of the United Nations Convention on the Rights of Persons with Disabilities. (Publisher abstract)